Project Detail
Interagency Autism Coordinating Committee (IACC) logo
Office of Autism Research Coordination (OARC) logo

Prometheus Research, LLC  

Development of SFARI Base (Simons Foundation Autism Research Initiative), a Web-based information system that supports data acquisition, curation and distribution for scientific studies and related resources, such as the Simons Simplex Collection (SSC). Each clinical site in the SSC employs software to collect study data and keeps track of identifying information for each study participant. Central storage of the data enables expert curators to assess data quality and make improvements with the assistance of clinical sites. SFARI Base provides sophisticated interfaces to enable approved researchers around the world to explore and query clinical data, place orders for specimens and obtain data produced by genetic analysis. Project Status
ONGOING

2010

Funder Simons Foundation
Fiscal Year Funding $3,394,272.51
Current Award Period Ongoing
Project Number n/a
Principal Investigator Contract
Received ARRA Funding? No
Strategic Plan Question Question 7: What Other Infrastructure and Surveillance Needs Must Be Met? (Infrastructure)
Subcategory Data Tools
Strategic Plan Objective New! Green dot: Objective has greater than or equal to the recommended funding. 7N. Enhance networks of clinical research sites offering clinical care in real-world settings that can collect and coordinate standardized and comprehensive diagnostic, biological (e.g., DNA, plasma, fibroblasts, urine), medical, and treatment history data that would provide a platform for conducting comparative effectiveness research and clinical trials of novel autism treatments by 2012. IACC Recommended Budget: $1,850,000 over 1 year.
Federal or Private? Private
Institution Prometheus Research, LLC
State/Country Connecticut
Web Link 1 Prometheus Research, LLC (External web link)
Web Link 2 No URL available.
Web Link 3 No URL available.
New! History/Related Projects Prometheus Research, LLC | $4,878,022.13 | 2009 | Project number unavailable