The International Society for Autism Research (INSAR) 2023 Annual Meeting
Ethical, Social & Legal Implications of Autism Genetics and Neuroscience
Paul Wang, M.D.
Thursday, May 4, 2023
Impact of a Parent Advocacy intervention on service access for transition-aged autistic youth: a multi-site randomized control trial
Julie Lounds Taylor, Ph.D.
Thursday, May 4, 2023
Breaking Down Barriers to Research for Children with Genetic Disorders, Intellectual Disability, or Communication Challenges
Alycia Halladay, Ph.D.
Friday, May 5, 2023
Obstetric Care and Pregnancy Experiences Among Autistic People
Dena Gassner, M.S.W.
Saturday, May 6, 2023
IACC Autism Research Portfolio Analysis Reports
- Provides a comprehensive analysis of autism research portfolios of major U.S. federal agencies and private organizations, including alignment with the IACC Strategic Plan and multi-year funding trends
- Report is used by the IACC as well as advocacy organizations, Congress, U.S. government agencies, private research funders, and the broader autism community to understand trends in research funding and progress on the IACC Strategic Plan
- The IACC/OARC Autism Research Database, a searchable database of federally and privately funded autism research projects, is available at https://iacc.hhs.gov/funding/data/
- View our archives at: https://iacc.hhs.gov/publications/portfolio-analysis/archives/
Summary of Advances in Autism Research
- Annual publication highlighting top 20 research articles of the previous year that are selected by the IACC
- Includes short, lay-friendly summaries of each article
- Now features easy-read summaries to increase accessibility
- Research articles are grouped according to the seven Strategic Plan topic areas
- View our archives at: https://iacc.hhs.gov/publications/summary-of-advances/archives/
The Interagency Autism Coordinating Committee Stprategic Plan: Guiding Research, Services, and Policy Activities across the Autism Community
- Objectives: OARC will present background information about the IACC and a description of the latest updates to the IACC Strategic Plan, which serves as a guide for federal agencies and partner organizations on autism-related activities in the U.S.
- Methods: The IACC Strategic Plan is developed through a consensus process by the IACC, with input from the public in the form of public comments and a special Request for Information. The IACC considers the current autism research, services, and policy landscape, and discusses what topics should be prioritized to maximize positive outcomes for individuals on the autism spectrum. The Strategic Plan is approved by the IACC through a majority vote, and the document is published and used by federal agencies and other community members.
- Results: The 2021-2022 IACC Strategic Plan for Autism Research, Services, and Policy is organized around seven topic areas, each of which is associated with a community-based Question and has a dedicated chapter. The seven topic areas are: Screening and Diagnosis (Question 1), Biology (Question 2), Genetic and Environmental Factors (Question 3), Interventions (Question 4), Services and Supports (Question 5), Lifespan (Question 6), and Research Infrastructure and Prevalence (Question 7). Each Question area includes three Recommendations; there are also two Cross-Cutting Recommendations, one focused on sex and gender differences in autism and one on disparities and equity in autism. The Strategic Plan also includes a section on the impact of the COVID-19 pandemic on the autism community and key lessons to be learned. Also included is a budget recommendation and high priority topics for research identified by the IACC. The full Strategic Plan will be free to download and available to the public on the IACC website: https://iacc.hhs.gov/publications/strategic-plan/2022
- Conclusions: The 2021-2022 IACC Strategic Plan for Autism Research, Services, and Policy provides advice and recommendations to the HHS Secretary on autism-related issues related and provides a framework to guide the autism research, services, and policy efforts of U.S. federal agencies and partner organizations.
|Dates:||May 3-6, 2023|
|Agenda:||The aims of the INSAR 2023 Annual Meeting meeting are:
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