IACC Strategic Planning Workgroup - April 21, 2008

Time	Event
11:00 a.m.	Introductions
11:20 a.m.	Purpose of Meeting: Review Agenda Steve Hyman Chair, Strategic Plan Workgroup
11:30 a.m.	Overview of IACC Strategic Planning Process Joyce Chung National Institute of Mental Health (NIMH) Autism Team
11:45 a.m.	Review of ASD Funding Portfolio Information Diane Buckley NIMH Autism Team
12:30 p.m.	Break and Return for Working Lunch
1:00 p.m.	Review of Research Initiatives David Amaral Workshop Chair
1:30 p.m.	Prioritization of Initiatives Steve Foote NIMH Autism Team
3:30 p.m.	Break
4:00 p.m.	Discussion of Budgetary Requirements Steve Hyman Chair, Strategic Plan Workgroup
5:00 p.m.	IACC Member Comment Period
5:15 p.m.	Review of Recommendations Joyce Chung NIMH Autism Team
5:30 p.m.	Adjournment

Back to Top

• Meeting Transcript (PDF - 415 KB)

Back to Top

• IACC Meeting Slide Set (PDF – 143 KB)
• IACC Meeting Presentation (PPTX – 472 KB)

Back to Top

At its March 2008 meeting, the IACC formed a new SP workgroup to broaden workgroup representation. IACC members had the option to nominate a workgroup participant or to participate themselves. The workgroup members included scientific experts, representatives from private ASD research funding organizations and advocacy groups, professional societies, program officials, workshop chairs, and a subset of IACC members.

The main goals for the second SP workgroup meeting were to review 2007 ASD research funding, prioritize research opportunities within the six question framework, and discuss budgetary requirements for the Strategic Plan. To facilitate broader stakeholder participation in the strategic planning process, members of the public were able to listen to the meeting via teleconference link and view slides on the Internet. Nearly 200 individuals registered.

Before the workgroup met, the NIMH Autism Team coordinated the compilation of ASD research funding portfolio information for FY 2007 from major funding sources: National Institutes of Health; Centers for Disease Control and Prevention; Department of Defense; The Simons Foundation; and Autism Speaks. The Autism Team also solicited feedback from the scientific workshop participants about the degree to which ideas from the stakeholder Request for Information (RFI) were included within the 41 research opportunities

The strategic planning workgroup prioritized the 41 research opportunities. This prioritization, along with recommendations that overlapping opportunities be consolidated and that an overall mission, vision, and goals for the strategic plan be developed, was forwarded to the IACC.

Regarding budgetary requirements, workgroup members discussed various topics including the need for fast track funding for high risk, high yield studies; the demand for more clinical trials infrastructure; and the relatively smaller percentage investment in treatment research reflected in the 2007 funding data. Finally, the workgroup members emphasized the role of the strategic plan in stimulating quality research to attract excellent researchers to ASD research.

Members
CHAIR Steven E. Hyman, M.D. Provost Harvard University
David Amaral, Ph.D. (Workshop Chair) Professor MIND Institute University of California, Davis	David Mandell, Sc.D. Assistant Professor of Psychiatry Center for Mental Health Policy and Services Research University of Pennsylvania
Peter Bell Executive Vice President Autism Speaks	Prisca Chen Marvin, J.D. Advisory Council Member National Institute of Neurological Disorders and Stroke
Mark F. Blaxill, MBA Vice President Coalition for Safe Minds	Sam Odom, Ph.D. Director, FPG Child Development Institute University of North Carolina
Judith Cooper, Ph.D. Deputy Director National Institute on Deafness and Other Communication Disorders Director, Division of Scientific Programs	Isaac Pessah, Ph.D. Professor and Chair VM: Molecular Biosciences Director, Center for Childrens Environmental Health Univerity of California, Davis
Geraldine Dawson, Ph.D. (Workshop Chair) Chief Science Officer Autism Speaks	Denise D. Resnick Co-Founder and Board Chairman Southwest Autism Research and Resource Center
Steve Eiken, M.A. Senior Analyst, Chronic Care and Disability Research Division Thomson Healthcare	Stephen Shore, Ed.D AutismAsperger.net IACC Public Member
Daniel Geschwind, M.D., Ph.D. (Workshop Chair) Professor of Neurology and Psychiatry University of California, Los Angeles School of Medicine	V. Fan Tait, M.D. Associate Executive Director and Director Department of Community and Speciality Pediatrics American Academy of Pediatrics
Martha Herbert, M.D., Ph.D. Assistant Professor, Pediatric Neurology Director, Transcend Research Program Harvard Medical School	Edwin Trevathan, M.D., M.P.H. Director, National Center on Birth Defects and Developmental Disabilities Center for Disease Control and Prevention
Alice Kau, Ph.D. Program Official, Mental Retardation and Developmental Disability Branch Eunice Kennedy Shriver National Insitute of Child Health and Human Development	Lucille Zeph, Ed. D. Director, Center for Community Inclusion & Disability Studies Associate Professor of Education University of Maine
Catherine Lord, Ph.D. (Workshop Chair) Director, University of Michigan Autism and Communication Disorders Center University of Michigan	Andrew Zimmerman, M.D. Associate Professor and Director of Medical Neuroscience Kennedy Krieger Institute

Back to Top