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IACC Strategic Planning Workgroup - July 8, 2008

meeting announcement Announcement
Topic Topic Description
Date: Tuesday, July 8, 2008
Time: 10:00 a.m. to 1:00 p.m. Eastern
Agenda: To Formalize Total Costs for the Short and Long Term Objectives of the IACC’s Strategic Plan for Autism Spectrum Disorder Research
Place: No in-person meeting; conference call and webinar only
Who can attend: Attendance at the meeting itself will be limited to workgroup members.
Conference Call Access: Dial: (888) 455-2920
Contact Person: Tanya Pryor
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC
Bethesda, Maryland 20892-9669
Phone: (301) 443-7153

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meeting agenda Agenda
Time Event
10:00 a.m. Welcome
10:10 a.m. Orientation to Task

Review Strategic Plan Sections
10:20 a.m. Introduction and Crosscutting Themes
10:30 a.m. Question 1: When should I be concerned?
10:50 a.m. Question 2: How can I understand what is happening?
11:10 a.m. Question 3: What caused this to happen and can this be prevented?
11:30 a.m. Break
11:40 a.m. Question 4: Which treatments or interventions will help?
12:00 p.m. Question 5: Where can I tum for services?
12:20 p.m. Question 6: What does the future hold?
12:40 p.m. Summary

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The purpose for the strategic planning workgroup meeting was to review and comment on the draft Interagency Autism Coordinating Committee (IACC) Strategic Plan for Autism Spectrum Disorder (ASD) Research. Thomas Insel, M.D., who chaired the meeting, explained that the draft SP is not a final plan because it does not include cost estimates for implementing the research objectives in the plan. He informed the workgroup that the IACC would seek additional comments on the draft plan from many ASD stakeholders, including the public at large.

Dr. Insel also clarified that although services research for ASD falls within the scope of the plan, provision of services and supports for ASD does not. In March 2008, the IACC established a Services Subcommittee to assess and improve services and supports for people with ASD and their families.

The meeting was held as a webinar. A total of 76 people participated, including workgroup and IACC members (whose comments could be heard) and members of the public (who could listen to the discussion).

The SP workgroup members commented on the draft SP. The individual comments were summarized and presented to the IACC at its July 2008 meeting. (For a copy of the slide presentation, please email and indicate in the subject line "Slide Request for Report on SPWG Meeting, IACC Meeting 7/15/08.") The IACC considered all of the comments from the workgroup and determined which should be adopted for inclusion in the draft SP.

Thomas Insel, M.D. (Chair)
National Institute of Mental Health
David Amaral, Ph.D. (Workshop Chair)
MIND Institute
University of California, Davis

Peter Bell
Executive Vice President
Autism Speaks

Mark F. Blaxill, MBA
Vice President
Coalition for Safe Minds

Judith Cooper, Ph.D.
Deputy Director
National Institute on Deafness and Other
Communication Disorders
Director, Division of Scientific Programs

Geraldine Dawson, Ph.D. (Workshop Chair)
Chief Science Officer
Autism Speaks

Steve Eiken, M.A.
Senior Analyst, Chronic Care and Disability
Research Division
Thomson Healthcare

Daniel Geschwind, M.D., Ph.D. (Workshop Chair)
Professor of Neurology and Psychiatry
University of California, Los Angeles
School of Medicine

Martha Herbert, M.D., Ph.D.
Assistant Professor, Pediatric Neurology
Director, Transcend Research Program
Harvard Medical School

Alice Kau, Ph.D.
Program Official, Mental Retardation and
Developmental Disability Branch
Eunice Kennedy Shriver
National Insitute of Child Health and Human Development

Catherine Lord, Ph.D. (Workshop Chair)
Director, University of Michigan Autism and
Communication Disorders Center
University of Michigan
David Mandell, Sc.D.
Assistant Professor of Psychiatry
Center for Mental Health Policy and
Services Research
University of Pennsylvania

Prisca Chen Marvin, J.D.
Advisory Council Member
National Institute of Neurological Disorders
and Stroke

Sam Odom, Ph.D.
Director, FPG Child Development Institute
University of North Carolina

Isaac Pessah, Ph.D.
Professor and Chair
VM: Molecular Biosciences
Director, Center for Childrens Environmental Health
Univerity of California, Davis

Denise D. Resnick
Co-Founder and Board Chairman
Southwest Autism Research and Resource Center

Stephen Shore, Ed.D
IACC Public Member

V. Fan Tait, M.D.
Associate Executive Director and Director
Department of Community and Speciality Pediatrics
American Academy of Pediatrics

Edwin Trevathan, M.D., M.P.H.
Director, National Center on Birth Defects and Developmental Disabilities
Center for Disease Control and Prevention

Lucille Zeph, Ed. D.
Director, Center for Community Inclusion & Disability Studies
Associate Professor of Education
University of Maine

Andrew Zimmerman, M.D.
Associate Professor and Director of Medical Neuroscience
Kennedy Krieger Institute

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