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IACC Scientific Workshop - September 30 - October 1, 2009

meeting videocast Webcast
meeting announcement Announcement
Topic Topic Description
Date: September 30 - October 1, 2009
Time: 9:00 a.m. to 5:30 p.m. Eastern - September 30, 2009
9:00 a.m. to 5:00 p.m. Eastern - October 1, 2009
Agenda: The workshop will cover the six questions in the strategic plan, focusing on noted research gaps, new opportunities for advancing research and knowledge about ASD, and the prioritization of short-term and long-term objectives in the plan. The format of the meeting will include presentations by invited panelists (clinicians, researchers and people with ASD or family members of people with ASD), as well as discussions by panelists, the public and members of the IACC.
Place: The Bethesda North Marriott Hotel and Conference Center
5701 Marinelli Road
Bethesda, Maryland 20852
Webcast Live: http://videocast.nih.gov/
Conference Call Access: Dial: (888) 455-2920
Access code: 4173827
Cost: The meeting is free and open to the public.
Pre-Registration: Pre-registration is strongly recommended, but PRE-REGISTRATION DOES NOT GUARANTEE YOU A SEAT. Seating is first come, first served, with expedited check-in for those pre-registered. Seating is limited to room capacity. Limited overflow seating with videocast viewing will be available.
Access: Metro accessible - Red Line - White Flint Metro Station
Onsite parking available - $4.00 hourly, $12.00 daily
Contact Person: Ms. Lina Perez
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard
Room 8185A
Rockville, Maryland 20892-9669
Phone: 301-443-6040
Email: IACCPublicInquiries@mail.nih.gov
Please Note:

Pre-registration is strongly recommended. Seating will be limited to the room capacity and seats will be on a first come, first serve basis, with expedited check-in for those who are pre-registered. As part of security procedures, attendees should be prepared to present a photo ID at the meeting registration desk during the check-in process.

The meeting will be open to the public through a conference call phone number and webcast live on the Internet. Members of the public who participate using the conference call phone number will be able to listen to the meeting but will not be heard. Individuals who participate in person or by using these electronic services and who need special assistance, such as captioning of the converence call or other reasonable accommodations, should submit a request at least 7 days prior to the meeting.

To access the webcast live on the Internet the following computer capabilities are required: A) Internet Explorer 5.0 or later, Netscape Navigator 6.0 or later or Mozilla Firefox 1.0 or later; B) Windows® 2000, XP Home, XP Pro, 2003 Server or Vista; C) Stable 56k, cable modem, ISDN, DSL or better Internet connection; D) Minimum of Pentium 400 with 256 MB of RAM (Recommended); E) Java Virtual Machine enabled (Recommended).

Schedule subject to change.


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meeting agenda Agenda

This meeting will also be available to the public by videocast.

Day 1: September 30, 2009

Time Event
9:00 a.m. Welcome, Introductions and Background
9:30 a.m. Panel 1: When should I be concerned?

9:30 a.m - 10:00 a.m   Joint presentation by:
Clinical Experts: Geraldine Dawson, Rebecca Landa
Research Experts: Deborah Fein, Catherine Lord
Family/Personal Experts: Paula Durbin-Westby, Nancy Wiseman
Coordinated by IACC Liaisons: Yvette Janvier, Jennifer Johnson

10:00 a.m - 10:45 a.m   Workshop Panelist Discussion (discussion with all workshop panelists)

10:45 a.m - 11:30 a.m   Public Discussion
11:30 a.m. Lunch (on your own)
1:00 p.m. Panel 2: How can I understand what is happening?

1:00 p.m. - 1:30 p.m.   Joint presentation by:
Clinical Experts: Pauline Filipek, Sarah Spence
Research Experts: David Amaral, Emanuel DiCicco-Bloom
Family/Personal Experts: Ashura Buckley, Denise Resnick
Coordinated by IACC Liaisons: Alison Singer, Edwin Trevathan

1:30 p.m. - 2:15 p.m.   Workshop Panelist Discussion (discussion with all workshop panelists)

2:15 p.m. - 3:00 p.m.   Public Discussion
3:00 p.m. Break
3:30 p.m. Panel 3: What caused this to happen and can this be prevented?

3:30 p.m. - 4:00 p.m.   Joint presentation by:
Clinical Experts: Robin Hansen, Susan Swedo
Research Experts: Craig Newschaffer, Matthew State
Family/Personal Experts: Lars Perner, Jeffrey Sell
Coordinated by IACC Liaisons: Lee Grossman, Story Landis

4:00 p.m. - 4:45 p.m.   Workshop Panelist Discussion (discussion with all workshop panelists)

4:45 p.m. - 5:30 p.m.   Public Discussion
5:30 p.m. Adjourn

Day 2: October 1, 2009

Time Event
 9:00 a.m. Panel 4: Which treatments and interventions will help?

9:00 a.m. - 9:30 a.m.   Joint presentation by:
Clinical Experts: Robin Hendren, Eric Samstad
Research Experts: Edwin Cook, Bryan King
Family/Personal Experts: Joyce Chung, Sharisa Kochmeister
Coordinated by IACC Liaisons: Thomas Insel, Stephen Shore

9:30 a.m. - 10:15 a.m.   Workshop Panelist Discussion (discussion with all workshop panelists)

10:15 a.m. - 11:00 a.m.   Public Discussion
11:00 a.m. Lunch (on your own)
12:30 p.m. Panel 5: Where can I turn for services and What does the future hold?

12:30 p.m. - 1:15 p.m.   Joint presentation by:
Clinical Experts: Tec Chapman, Cathy Pratt
Research Experts: Peter Gerhardt, David Mandell
Family/Personal Experts: Ann Gibbons, Marjorie Solomon
Coordinated by IACC Liaisons: Ellen Blackwell, Christine McKee

1:15 p.m. - 2:00 p.m.   Workshop Panelist Discussion (discussion with all workshop panelists)

2:00 p.m. - 2:4 p.m.   Public Discussion
 2:45 p.m. Break
 3:00 p.m. Discussion and Summary by IACC Liaisons and other IACC Members
 5:00 p.m. Adjourn

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meeting speakers Speakers

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meeting transcript Transcript

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meeting slides Slides

Scientific Workshop Flyer

  Conference Call
Summaries
Workshop
Slides

 

Panel 1

When Should I Be Concerned?

Clinical Experts: Geraldine Dawson, Rebecca Landa
Research Experts: Deborah Fein, Catherine Lord
Family/Personal Experts: Paula Durbin-Westby, Nancy Wiseman
Coordinated by IACC Liaisons: Yvette Janvier, Jennifer Johnson

Conference Call Summaries

September 17, 2009
(PDF – 63 KB)
September 22, 2009
(PDF – 81 KB)


Workshop Slides

Slides
(PDF – 380 KB)

 

Panel 2

How Can I Understand What is Happening?

Clinical Experts: Pauline Filipek, Sarah Spence
Research Experts: David Amaral, Emanuel DiCicco-Bloom
Family/Personal Experts: Ashura Buckley, Denise Resnick
Coordinated by IACC Liaisons: Alison Singer, Edwin Trevathan

Conference Call Summaries

September 17, 2009
(PDF – 82 KB)
September 23, 2009
(PDF – 81 KB)

Workshop Slides

Slides
(PDF – 408 KB)

 

Panel 3

What Caused This to Happen and Can It Be Prevented?

Clinical Experts: Robin Hansen, Susan Swedo
Research Experts: Craig Newschaffer, Matthew State
Family/Personal Experts: Lars Perner, Jeffrey Sell
Coordinated by IACC Liaisons: Lee Grossman, Story Landis

Conference Call Summaries

September 16, 2009
(PDF – 83 KB)
September 23, 2009
(PDF – 84 KB)

Workshop Slides

Slides
(PDF – 716 KB)

 

Panel 4

Which Treatments and Interventions Will Help?

Clinical Experts: Robert Hendren, Eric Samstad
Research Experts: Edwin Cook, Bryan King
Family/Personal Experts: Joyce Chung, Sharisa Kochmeister
Coordinated by IACC Liaisons: Thomas Insel, Stephen Shore

Conference Call Summaries

September 18, 2009
(PDF – 79 KB)
September 22, 2009
(PDF – 83 KB)

Workshop Slides

Slides
(PDF – 330 KB)

 

Panel 5

Where Can I Turn for Services? What Does the Future Hold?

Clinical Experts: Tec Chapman, Cathy Pratt
Research Experts: Peter Gerhardt, David Mandell
Family/Personal Experts: Ann Gibbons, Marjorie Solomon
Coordinated by IACC Liaisons: Ellen Blackwell, Christine McKee

Conference Call Summaries

September 14, 2009
(PDF – 72 KB)
September 21, 2009
(PDF – 85 KB)
September 24, 2009
(PDF – 83 KB)

Workshop Slides

Slides
(PDF – 841 KB)

 

Autism and ARRA

Jumpstarting the IACC Strategic Plan

Speaker: Thomas Insel

Conference Call Summaries

None

Workshop Slides

Slides
(PDF – 7921 KB)


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