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2012 IACC Strategic Planning Workshop (Canceled due to Hurricane Sandy) - October 29-30, 2012

meeting announcement Announcement

Due to the likelihood of dangerous weather conditions, the IACC 2012 Stategic Planning Workshop has been canceled.

Topic Topic Description
Date: Monday – Tuesday, October 29 – 30, 2012
Time: 9:00 a.m. to 5:30 p.m. Eastern
Agenda: The workshop will focus on the seven chapters of the 2011 IACC Strategic Plan, featuring discussions between IACC members and external experts in the areas of basic and translational science, as well as services research and policy, regarding updates that may be considered for the 2012 Strategic Plan. The first day of the workshop, October 29th, will focus on services research and policy. The second day of the workshop, October 30th, will focus on basic and translational research.
Place: Omni Shoreham Hotel
2500 Calvert Street NW
Washington, DC 20008
Map and Directions
Webcast Live: Day 1 Day 2 http://videocast.nih.gov
Because we are webcasting live and do not want to interrupt filming, the breakout session taking place in the general session room will be viewable. The other breakout sessions will be videotaped for archival purposes and can be viewed at a later date. All breakout sessions will be available to the public either in-person or via conference call.
Conference Call Access: October 29, 2012
Dial: (888) 972-6896
Access code: 1954800

October 30, 2012
Dial: (888) 469-3189
Access code: 8310127
Cost: The meeting is free and open to the public.
Pre-Registration: Registration website
Pre-registration is recommended to expedite check-in. Seating in the meeting room is limited to room capacity and on a first come, first served basis.
Access: The workshop location is within two blocks of the Woodley Park/Zoo/Adams Morgan Metro station (Red Line). On-site parking is available for $38 per day; limited neighborhood parking may be available.
Contact Person: Ms. Lina Perez
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC, Room 6182a
Rockville, Maryland 20852
Phone: (301)-443-6040
Email: IACCPublicInquiries@mail.nih.gov
Please Note: Sessions for public comment on the material presented during the workshop will be held on both days. Those wishing to provide oral public comment in person at the workshop must sign up for oral comment at the check-in desk on the day of the workshop. Due to scheduling constraints, oral comments will be limited to two minutes per person and will be on a first-come, first-served basis. If slots for the oral public comment sessions are full, each individual and/or organization will only be allowed to provide oral comment during one of the workshop days in order to provide an opportunity for as many individuals/organizations as possible to participate. Those persons who are not able to make oral comments due to the time constraints, and those preferring to comment in written form, may submit their written comments pertaining to the material presented at the workshop via email to IACCPublicInquiries@mail.nih.gov through Friday, November 2nd. All written comments will become part of the public record.

This workshop will also be open to the public through a conference call number and live webcast on the Internet. Members of the public who participate using the conference call phone number will be able to listen to the discussion but will not be heard. If you experience any technical problems with the conference call or webcast, please e-mail IACCHelpDesk2012@gmail.com.

To access the live webcast on the Internet the following computer capabilities are required: A) Internet Explorer 5.0 or later, Netscape Navigator 6.0 or later or Mozilla Firefox 1.0 or later; B) Windows® 2000, XP Home, XP Pro, 2003 Server or Vista; C) Stable 56k, cable modem, ISDN, DSL or better Internet connection; D) Minimum of Pentium 400 with 256 MB of RAM (Recommended); E) Java Virtual Machine enabled (Recommended)

Individuals who participate in person or by using these electronic services and who need special assistance, such as captioning of the conference call or other reasonable accommodations, should submit a request to the contact person listed on this notice at least 5 days prior to the meeting.

As a part of security procedures, attendees should be prepared to present a photo ID at the meeting registration desk during the check-in process. Pre-registration is recommended. Seating will be limited to the room capacity and seats will be on a first come, first served basis, with expedited check-in for those who are pre-registered.

The schedule for the meeting is subject to change.

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meeting agenda Agenda

Agenda: Day 1 | October 29, 2012 | 9:00 a.m. – 5:30 p.m. Eastern

The registration desk opens at 8:00 a.m. Eastern for members of the public attending in person, and the meeting will also be available to the public by live VideoCast Day 1, VideoCast Day 2, and conference call

.
Time Event
9:00 a.m. Welcome and Introductions

David Mandell, Sc.D.
Associate Professor, Department of Psychiatry and Pediatrics
University of Pennsylvania
Co-Chair, Subcommittee for Services Research and Policy

Denise Dougherty, Ph.D.
Senior Advisor, Child Health and Quality Improvement
Agency for Healthcare Research and Quality
Co-Chair, Subcommittee for Services Research and Policy
9:15 a.m. Overview and Charge

Thomas Insel, M.D.
Director, National Institute of Mental Health (NIMH)
Chair, IACC

David Mandell, Sc.D.
Associate Professor, Department of Psychiatry and Pediatrics
University of Pennsylvania
Co-Chair, Subcommittee for Services Research and Policy
9:45 a.m. Presentation and Discussion – Question 5 – Key Updates

David Mandell, Sc.D.
Associate Professor, Department of Psychiatry and Pediatrics
University of Pennsylvania
Co-Chair, Subcommittee for Services Research and Policy
10:30 a.m. Break
10:45 a.m. Presentation and Discussion – Question 6 – Key Updates
11:30 a.m. Discussion – 2013 Strategic Plan

Topics include: Services and Services Research
Information Gathered by Planning Groups
12:10 p.m. Presentation and Discussion – Questions 5 and 6 – Comparative Effectiveness Research / Patient-Centered Outcomes Research
12:45 p.m. Lunch
1:45 p.m. Public Comment Session
2:15 p.m. Break
2:30 p.m. Breakout Sessions for Planning Groups
3:30 p.m. Break
3:45 p.m. Report from Planning Groups
  • 3:45 – Quality of Care
  • 4:00 – Access and Coverage
  • 4:15 – Education / Employment
  • 4:30 – Family Support
  • 4:45 – Comparative Effectiveness Research / Patient-Centered Outcomes Research
5:00 p.m. Wrap-up and Next Steps
5:30 p.m. Adjournment

Agenda: Day 2 | October 30, 2012 | 9:00 a.m. – 5:30 p.m. Eastern

The registration desk opens at 8:00 a.m. Eastern for members of the public attending in person, and the meeting will also be available to the public by live VideoCast Day 1, VideoCast Day 2, and conference call.

Time Event
9:00 a.m. Welcome and Introductions

Thomas Insel, M.D.

Director, National Institute of Mental Health (NIMH)
Chair, IACC and Co-chair, Subcommittee for Basic and Translational Research

Geraldine Dawson, Ph.D.
Chief Science Officer, Autism Speaks
Co-Chair, Subcommittee for Basic and Translational Research
9:10 a.m. Overview and Charge

Thomas Insel, M.D.
Director, NIMH
Chair, IACC
9:20 a.m. Presentation and Discussion – Question 2 – Update: Biology
10:05 a.m. Presentation and Discussion – Question 4 – Update: Treatments and Interventions
10:50 a.m. Break
11:00 a.m. Presentation and Discussion – Question 3 – Update: Risk Factors
11:45 a.m. Presentation and Discussion – Question 7 – Update: Surveillance and Infrastructure
12:30 p.m. Lunch
1:15 p.m. Presentation and Discussion – Question 1 – Update: Diagnosis
2:00 p.m. Public Comment Session
2:30 p.m. Break
2:45 p.m. Breakout Sessions for Planning Groups
3:45 p.m. Break
4:00 p.m. Report from Planning Groups
  • 4:00 – Question 1 – Diagnosis
  • 4:15 – Question 2 – Biology
  • 4:30 – Question 3 – Risk Factors
  • 4:45 – Question 4 – Treatments and Interventions
  • 5:00 – Question 7 – Surveillance and Infrastructure
5:15 p.m. Wrap-up and Next Steps
5:30 p.m. Adjournment

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