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Conference Call #3 of the IACC’s Strategic Plan Update - Working Group 6

Question 6: What Does the Future Hold, Particularly for Adults?

meeting announcement Meeting Information
Topic Topic Description
Date: Tuesday, November 1, 2016              
Time: 11:30 a.m.
Conference Call Access: Phone: 800-857-5081
Access code: 5216716
Cost: The meeting is free and open to the public.
Members Working Group 6 Biographies

meeting agenda Agenda
Time Event
11:30 a.m. Welcome and Introductions

Susan Daniels, Ph.D., Director, Office of Autism Research Coordination, NIMH and Executive Secretary, IACC

Mr. Brian Parnell, M.S.W., Medicaid Autism Waiver Administrator, Utah Department of Human Services, Div. of Services for People w/Disabilities and Co-Chair IACC Strategic Plan Question 6 Working Group

Dr. Julie Lounds Taylor, Ph.D., Assistant Professor of Pediatrics and Special Education, Vanderbilt Kennedy Center Investigator, Vanderbilt University and Co-Chair IACC Strategic Plan Question 6 Working Group
11:40 Discussion of Chapter Outline
12:00 Discussion of Proposed Strategic Plan Objectives for Question 6

Areas highlighted on previous calls for possible consideration:
  • Development and coordination of services to help youth make a successful transition to adulthood
  • Improvement of health, safety and well-being of individuals on the autism spectrum across the lifespan (can include issues like wandering, premature mortality, chronic health issues, comorbidities, adult diagnosis, the need for healthcare providers who are trained in addressing needs of people on the autism spectrum across the lifespan, etc.)
  • Increase acceptance, accommodation, inclusion, independence and integration of people on the autism spectrum (can address this in terms of employment, housing, recreational, social/relationship needs, development of better accommodations, etc.)
12:45 Discussion of Aspirational Goal and Title

All people with ASD will have the opportunity to lead self-determined lives in the community of their choice through school, work, community participation, meaningful relationships, and access to necessary and individualized services and supports.
  • The group discussed changing the word “necessary” to appropriate. Could also consider deleting word.
What Does the Future Hold, Particularly for Adults?
  • Does the group want to consider changing the latter portion to be more inclusive of the whole lifespan? (i.e. “as individuals on the autism spectrum progress through the full lifespan?”)
12:55 Wrap up and next steps
1:00 Adjourn

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