Full Committee Meeting - January 17, 2018

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Announcement

Topic	Topic Description
Date:	Wednesday, January 17, 2018
Time:	9:00 a.m. to 5:00 p.m. Eastern
Place:	Bethesda Marriot Hotel 5151 Pooks Hill Road Bethesda, MD 20814 Self Parking is $16 daily with in/out privileges
Metro Stop:	Medical Center (Red Line) in combination with a 26 minute walk or short taxi ride; parking available at the hotel.
Registration:	Online Registration Pre-registration is recommended to expedite check-in. Seating in the meeting room is limited to room capacity and on a first come, first served basis. Onsite registration will also be available. For questions or problems with registration, please contact Celeste Pleasant from The Bizzell Group at 240-668-0302 or cpleasant@thebizzellgroup.com.
Remote Access:	Conference Call: Dial: 888-928-9527 Access code: 6435114 Webcast: https://videocast.nih.gov/ If you experience technical problems with the webcast or conference call, please call 240-668-0302 or e-mail IACCPublicInquiries@mail.nih.gov.
Agenda:	To discuss business, updates, and issues related to ASD research and services activities.
Cost:	The meeting is free and open to the public.
Deadlines:	Notification of intent to present oral comments: Friday, January 5, 2018 by 5:00 p.m. ET Submission of written/electronic statement for oral comments: Tuesday, January 9, 2018 by 5:00 p.m. ET Submission of written comments: Tuesday, January 9, 2018 by 5:00 p.m. ET Please note: Written public comments and statements accompanying oral public comments should be sent to IACCPublicInquiries@mail.nih.gov. For IACC Public Comment guidelines please see:http://iacc.hhs.gov/meetings/public-comments/guidelines/
Public Comment:	Any member of the public interested in presenting oral comments to the Committee must notify the Contact Person listed on this notice by 5:00 p.m. ET on Friday, January 5, 2018 with their request to present oral comments at the meeting, and a written/electronic copy of the oral presentation/statement must be submitted by 5:00 p.m. ET on Tuesday, January 9, 2018. A limited number of slots for oral comment are available, and in order to ensure that as many different individuals are able to present throughout the year as possible, any given individual only will be permitted to present oral comments once per calendar year (2018). Only one representative of an organization will be allowed to present oral comments in any given meeting; other representatives of the same group may provide written comments. If the oral comment session is full, individuals who could not be accommodated are welcome to provide written comments instead. Comments to be read or presented in the meeting will be assigned a 3-5 minute time slot depending on the number of comments, but a longer version may be submitted in writing for the record. Commenters going beyond their allotted time in the meeting may be asked to conclude immediately in order to allow other comments and presentations to proceed on schedule. Any interested person may submit written public comments to the IACC prior to the meeting by e-mailing the comments to IACCPublicInquiries@mail.nih.gov or by submitting comments at the web link: https://iacc.hhs.gov/meetings/public-comments/submit/index.jsp by 5:00 p.m. ET on Tuesday, January 9, 2018. The comments should include the name, address, telephone number, and when applicable, the business or professional affiliation of the interested person. NIMH anticipates written public comments received by 5:00 p.m. ET on Tuesday, January 9, 2018 will be presented to the Committee prior to the meeting for the Committee’s consideration. Any written comments received after the 5:00 p.m. ET, January 9, 2018 deadline through January 16, 2018 will be provided to the Committee either before or after the meeting, depending on the volume of comments received and the time required to process them in accordance with privacy regulations and other applicable Federal policies. All written public comments and oral public comment statements received by the deadlines for both oral and written public comments will be provided to the IACC for their consideration and will become part of the public record. Attachments of copyrighted publications are not permitted, but web links or citations for any copyrighted works cited may be provided. Core Values: In the 2009 IACC Strategic Plan, the IACC listed the “Spirit of Collaboration” as one of its core values, stating that, “We will treat others with respect, listen to diverse views with open minds, discuss submitted public comments, and foster discussions where participants can comfortably offer opposing opinions.” In keeping with this core value, the IACC and the NIMH Office of Autism Research Coordination (OARC) ask that members of the public who provide public comments or participate in meetings of the IACC also seek to treat others with respect and consideration in their communications and actions, even when discussing issues of genuine concern or disagreement.
Please Note:	Remote Access: The meeting will be open to the public through a conference call phone number and webcast live on the Internet. Members of the public who participate using the conference call phone number will be able to listen to the meeting but will not be heard. If you experience any technical problems with the webcast or conference call, please call 240-668-0302 or e-mail IACCPublicInquiries@mail.nih.gov. Individuals wishing to participate in person or by using these electronic services and who need special assistance, such as captioning of the conference call or other reasonable accommodations, should submit a request to the Contact Person listed on this notice at least five days prior to the meeting. Security: Visitors will be asked to sign in and show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) at the meeting registration desk during the check-in process. Pre-registration is recommended. Seating will be limited to the room capacity and seats will be on a first come, first served basis, with expedited check-in for those who are pre-registered. Meeting schedule subject to change. Information about the IACC is available on the website: https://iacc.hhs.gov.
Contact Person:	Ms. Angelice Mitrakas Office of Autism Research Coordination National Institute of Mental Health, NIH 6001 Executive Boulevard, NSC, Room 6183A Rockville, Maryland 20852 Phone: 301-435-9269 E-mail: IACCPublicInquiries@mail.nih.gov

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Agenda

Time	Event
9:00 a.m.	Welcome, Introductions, Roll Call, and Approval of Minutes Joshua Gordon, M.D., Ph.D. Director, National Institute of Mental Health (NIMH) and Chair, IACC Susan Daniels, Ph.D. Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
9:10	Advancing Behavioral Health in the Indian Health System Marcella Ronyak, Ph.D. Deputy Director, Division of Behavioral Health, Indian Health Service (IHS) Headquarters, HHS
10:00	Summary of Advances Discussion Susan Daniels, Ph.D. Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC Joshua Gordon, M.D., Ph.D. Director, National Institute of Mental Health (NIMH) and Chair, IACC
11:00	Morning Break
11:15	Committee Business Susan Daniels, Ph.D. Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC Joshua Gordon, M.D., Ph.D. Director, National Institute of Mental Health (NIMH) and Chair, IACC
12:00 p.m.	Lunch
1:00	Public Comment Session Joshua Gordon, M.D., Ph.D. Director, National Institute of Mental Health (NIMH) and Chair, IACC Julianna Rava, M.P.H. Science Policy Analyst, Office of Autism Research Coordination, NIMH
2:00	Autism Screening Panel Presentation Introduction to the ASD PEDS Network Denise Pintello, Ph.D., M.S.W. Chief, Child and Adolescent Research Program, NIMH Acting Chief, Dissemination and Implementation Research Program, NIMH Mobilizing Community Systems to Engage Families in Early Autism Detection & Services Amy Wetherby, Ph.D., C.C.C.-S.L.P. Distinguished Research Professor, Department of Clinical Sciences, Florida State University Director, Autism Institute, Florida State University Multi-stage screening in Part C early intervention to address health disparities in age of ASD diagnosis and service receipt Alice Carter, Ph.D. Professor, College of Liberal Arts, University of Massachusetts, Boston Leveraging Urban Primary Care Systems to Improve Early Identification of Low-Income Children with Autism Spectrum Disorder Emily Feinberg, Sc.D. C.P.N.P. Associate Professor, Department of Community Health Sciences, Boston University School of Public Health Associate Professor of Pediatrics, Division of General Pediatrics, Boston University School of Medicine
3:30	Committee Discussion
4:00	Afternoon Break
4:15	Round Robin
5:00	Closing Remarks and Adjournment

Schedule is subject to change. Meeting may end prior to or later than 5:00 PM depending on the needs of the committee. For more information on upcoming events, please see http://iacc.hhs.gov/meetings/

Next IACC Full Committee Meeting:

• Thursday, April 19, 2018 – Location TBD

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• January Meeting Minutes (PDF 643KB)

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Speakers

Marcella Ronyak, Ph.D., L.C.S.W., C.D.P.

Deputy Director
Division of Behavioral Health
Indian Health Service (IHS) Headquarters

Dr. Marcella Ronyak is the Deputy Director for the Division of Behavioral Health at Indian Health Service (IHS) Headquarters and a member of IACC. She is responsible for providing leadership and direction to programs and activities designed to improve the health services to 2.2 million American Indians and Alaska Natives (AI/AN) through a system of IHS, Tribal, and Urban (I/T/U) operated facilities and programs. Prior to re-joining IHS, she was the Director of the Office of Indian Alcohol and Substance Abuse at the Substance Abuse and Mental Health Services Administration (SAMHSA) and served as the IHS Alcohol and Substance Abuse Lead. Preceding her federal career, she worked for the Confederated Tribes of the Colville Reservation as the Tribal Psychologist and as an independent contractor providing clinical services to children and families within the community. Dr. Ronyak is a member of the Confederated Tribes of the Colville Reservation in Nespelem, Washington.

Denise Pintello, Ph.D., M.S.W.

Chief
Child and Adolescent Research Program
Acting Chief
Dissemination and Implementation Research Program
National Institute of Mental Health

Dr. Denise Pintello currently serves as the Chief of the Child and Adolescent Services Research Program and as the Acting Chief of the Dissemination and Implementation Research Program at the National Institute of Mental Health (NIMH). Dr. Pintello oversees the ASD PEDS Network program. Before coming to NIMH, she served as the Special Assistant for the Director and the Deputy Director of the National Institute on Drug Abuse (NIDA) and oversaw the implementation of innovative scientific initiatives and special research dissemination projects. As a social worker, Dr. Pintello worked extensively in child welfare, mental health and substance abuse and provided clinical, case management and supervisory services. She has also conducted research studies within the fields of child welfare, domestic violence, juvenile justice, mental health and substance abuse. Dr. Pintello’s publications have focused on the clinical treatment of intrafamilial child sexual abuse, behavioral factors associated with post-traumatic stress in women, predictors of child maltreatment recurrence, health services research and research dissemination.

Amy Wetherby, Ph.D., C.C.C.-S.L.P.

Distinguished Research Professor
Department of Clinical Sciences
Director
Autism Institute
Florida State University

Dr. Amy Wetherby is a professor in the Department of Clinical Sciences and Director of the Autism Institute in the College of Medicine and the Laurel Schendel Professor of Communication Disorders at Florida State University. She is also a fellow of the American Speech-Language-Hearing Association and the project director of a Doctoral Leadership Training Grant specializing in autism. She served on the National Academy of Sciences Committee for Educational Interventions for Children with Autism. Dr. Wetherby is the project director of the FIRST WORDS Project, a longitudinal research investigation on early detection of autism spectrum and other communication disorders. She is also the principal investigator of the Early Social Interaction Project, an early treatment study teaching parents of toddlers with autism spectrum disorders how to support social communication and play in everyday activities.

Alice Carter, Ph.D.

Professor
College of Liberal Arts
University of Massachusetts Boston

Dr. Alice Carter researches the identification of infants and toddlers at risk for problems in social, behavioral, and emotional functioning and the role of family functioning in the development of children who are at risk for disorders such as autism, Tourette's Disorder, and Obsessive Compulsive Disorder. She is also studying young children with autism spectrum disorders and their families as part of the Boston University Studies To Advance Autism Research (STAART). Dr. Carter is also a visiting research scientist in the Department of Psychology and Child Study Center at Yale University in New Haven, CT and a research associate in the Department of Anatomy and Neurobiology, Boston University School of Medicine, Boston, MA.

Emily Feinberg, Sc.D. C.P.N.P.

Associate Professor
Department of Community Health Sciences
Boston University School of Public Health
Associate Professor of Pediatrics
Division of General Pediatrics
Boston University School of Medicine

Dr. Emily Feinberg is an Associate Professor at Boston University School of Public Health in the department of Community Health Sciences and an Associate Professor of Pediatrics at Boston University School of Medicine. Her research focuses on developing new models of service delivery for children with autism and expanding the scope of early intervention programs to address family mental health. Dr. Feinberg is a Pediatric Nurse Practitioner at Dorchester Multi-Service Center in Boston, MA. She also serves as a consultant to the Boston Public Health Commission (BPHC) and is Principal Investigator on a pilot collaboration between the BPHC and the Boston Housing Authority to provide housing and intensive case management to women with medical risk experiencing homelessness. Currently, she is also co-director of Project Solve, a set of research projects dedicated to preventing depression among mothers of vulnerable children.

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Materials

Materials related to Indian Health Service Presentation:

• Indian Health Services Telebehavioral Health Centers of Excellence
• Indian Health Service, TBHCE, Indian Children's Program (ICP)
• Indian Health Service, TBHCE, ICP, Autism

2017 Summary of Advances Nominations:

• Vetted Nominations, January - October (PDF – 491 KB)
• New Nominations, October - December (PDF – 524 KB)
• All 2017 Nominations (PDF – 719 KB)

Materials related to ASD PEDS Network Presentation:

• Autism Navigator
• First Words Project
• Early Social Interaction Project
• Alakortes J, Kovaniemi S, Carter AS, Bloigu R, Moilanen IK, Ebeling HE. Do child healthcare professionals and parents recognize social-emotional and behavioral problems in 1-year-old infants? Eur Child Adolesc Psychiatry. 2017 Apr;26(4):481-495. doi: 10.1007/s00787-016-0909-3. Epub 2016 Oct 21. PMID: 27770294.
• Dow D, Guthrie W, Stronach ST, Wetherby AM. Psychometric analysis of the Systematic Observation of Red Flags for autism spectrum disorder in toddlers. Autism. 2017 Apr;21(3):301-309. doi: 10.1177/1362361316636760. Epub 2016 Jul 9. PMID:27132013
• Feinberg E, Abufhele M, Sandler J, Augustyn M, Cabral H, Chen N, Diaz Linhart Y, Cesar Levesque Z, Aebi M, Silverstein M. Reducing Disparities in Timely Autism Diagnosis Through Family Navigation: Results From a Randomized Pilot Trial. Psychiatr Serv. 2016 Aug 1;67(8):912-5. doi: 10.1176/appi.ps.201500162. Epub 2016 May 2. PMID:27133722
• Giserman Kiss I, Feldman MS, Sheldrick RC, Carter AS. Developing Autism Screening Criteria for the Brief Infant Toddler Social Emotional Assessment (BITSEA). J Autism Dev Disord. 2017 May;47(5):1269-1277. doi: 10.1007/s10803-017-3044-1. PMID: 28181053.
• Sheldrick RC, Maye MP, Carter AS. Age at First Identification of Autism Spectrum Disorder: An Analysis of Two US Surveys. J Am Acad Child Adolesc Psychiatry. 2017 Apr;56(4):313-320. doi: 10.1016/j.jaac.2017.01.012. Epub 2017 Feb 3. PMID: 28335875.
• Zwaigenbaum L, Bauman ML, Fein D, Pierce K, Buie T, Davis PA, Newschaffer C, Robins DL, Wetherby A, Choueiri R, Kasari C, Stone WL, Yirmiya N, Estes A, Hansen RL, McPartland JC, Natowicz MR, Carter A, Granpeesheh D, Mailloux Z, Smith Roley S, Wagner S. Early Screening of Autism Spectrum Disorder: Recommendations for Practice and Research. Pediatrics. 2015 Oct;136 Suppl 1:S41-59. doi: 10.1542/peds.2014-3667D. PMID: 26430169.
• Zwaigenbaum L, Bauman ML, Stone WL, Yirmiya N, Estes A, Hansen RL, McPartland JC, Natowicz MR, Choueiri R, Fein D, Kasari C, Pierce K, Buie T, Carter A, Davis PA, Granpeesheh D, Mailloux Z, Newschaffer C, Robins D, Roley SS, Wagner S, Wetherby A. Early Identification of Autism Spectrum Disorder: Recommendations for Practice and Research.Pediatrics. 2015 Oct;136 Suppl 1:S10-40. doi: 10.1542/peds.2014-3667C. PMID: 26430168.

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Presentations

Video	Slides	Presenter(s)
Video	Slides Advancing Behavioral Health in the Indian Health System (PDF – 690 KB)	Presenter(s) Marcella Ronyak, Ph.D., Deputy Director, Division of Behavioral Health, Indian Health Service (IHS) Headquarters, HHS
Video	Slides Summary of Advances Discussion (PDF – 473 KB)	Presenter(s) Susan Daniels, Ph.D., Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC Joshua Gordon, M.D., Ph.D., Director, National Institute of Mental Health (NIMH) and Chair, IACC
Video	Slides Committee Business (PDF – 191 KB)	Presenter(s) Susan Daniels, Ph.D., Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC Joshua Gordon, M.D., Ph.D., Director, National Institute of Mental Health (NIMH) and Chair, IACC
Video	Slides Introduction to the ASD PEDS Network (PDF – 658 KB)	Presenter(s) Denise Pintello, Ph.D., M.S.W., Chief, Child and Adolescent Research Program, NIMH; Acting Chief, Dissemination and Implementation Research Program, NIMH
Video	Slides Mobilizing Community Systems to Engage Families in Early Autism Detection & Services (PDF – 11 MB)	Presenter(s) Amy Wetherby, Ph.D., C.C.C.-S.L.P., Distinguished Research Professor, Department of Clinical Sciences, Florida State University; Director, Autism Institute, Florida State University
Video	Slides Multi-stage screening in Part C early intervention to address health disparities in age of ASD diagnosis and service receipt (PDF – 1 MB)	Presenter(s) Alice Carter, Ph.D., Professor, College of Liberal Arts, University of Massachusetts, Boston
Video	Slides Leveraging Urban Primary Care Systems to Improve Early Identification of Low-Income Children with Autism Spectrum Disorder (PDF – 525 KB)	Presenter(s) Emily Feinberg, Sc.D. C.P.N.P., Associate Professor, Department of Community Health Sciences, Boston University School of Public Health; Associate Professor of Pediatrics, Division of General Pediatrics, Boston University School of Medicine

• Full Webcast
• IACC Meeting Full Slide Set (PDF 15MB)

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Public Comments

• Oral Public Comments (PDF – 506 KB)
• Written Public Comments (PDF – 1 MB)

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• Meeting Transcript (PDF – 881 KB)

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