IACC Full Committee Meeting (Virtual)

The purpose of the IACC meeting is to discuss business, agency updates, and issues related to autism spectrum disorder (ASD) research and services activities. The meeting will be held virtually and is open to the public.

Topic	Topic Description
Date:	Wednesday, January 18, 2023
Time:	10:00 a.m. to 5:00 p.m. ET
Cost:	The event is free and open to the public.
Access:	This was a virtual event and the video will be posted soon.
Public Comments:	The IACC welcomes public comment from members of the autism community. Please review IACC's "Spirit of Collaboration," public comment guidelines, and full instructions prior to submitting your comment. The deadline for submission of comments for the January IACC meeting is Tuesday, January 10, 2023.
Disability Accommodations:	Captioning will be available. Individuals who need sign language interpreters and/or other reasonable accommodations to participate in this event may contact Rebecca Martin at Rebecca.martin@nih.gov or 301-435-0886. Please make accommodation requests 7 business days prior to the event. The event is recommended for ages 13 and up.

Time

Event

10:00 a.m.

Welcome and Announcements

Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

10:15

National Autism Coordinator Update

Susan Daniels, Ph.D.
Acting National Autism Coordinator
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC

10:30

IACC Committee Business

Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

2021-2023 Strategic Plan discussion
2022 Summary of Advances discussion

12:15 p.m.

Lunch Break

1:00

Public Comment Session

Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

1:00	Oral Comments Finn Gardiner, M.P.P. Stacey M. Blecher Areva Martin, Esq. Joseph P. Joyce, M.B.A. Thomas W. Frazier, Ph.D.
1:30	Summary of Written Comments and Committee Discussion

1:50

Break

1:55

Supportive Services Discussion

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

3:30

Break

3:40

Advancing Engaged Research: Highlights Related to Intellectual and Developmental Disabilities

Nakela Cook, M.D., M.P.H.
Executive Director; Patient-Centered Outcomes Research Institute (PCORI)

Meghan Warren, Ph.D., M.P.H., PT
Program Officer, Science; Clinical Effectiveness and Decision Science; PCORI

4:40

Round Robin Updates

4:55

Closing Remarks and Adjournment

Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

Schedule is subject to change. For more information on upcoming events, please see https://iacc.hhs.gov/meetings/iacc-meetings/

Next IACC Full Committee Meeting:
Tuesday, April 4, 2023, 10:00 a.m. – 5:00 p.m.

January Meeting Minutes (PDF 288 KB)

Nakela Cook, M.D., M.P.H.

Executive Director, Patient-Centered Outcomes Research Institute (PCORI)

Dr. Nakela Cook is the Executive Director at the Patient-Centered Outcomes Research Institute (PCORI). She is a cardiologist and health services researcher with a distinguished career leading key scientific initiatives engaging patients, clinicians, and other healthcare stakeholders. Dr. Cook leads PCORI’s research, dissemination and implementation, and engagement work. She also provides strategic and day-to-day oversight of ongoing programs as well as new initiatives designed to create a healthcare system that is more efficient, effective, and patient centered. Prior to her current role, Dr. Cook served as Senior Scientific Officer and Chief of Staff at the National Heart, Lung, and Blood Institute (NHLBI). She spearheaded the development and implementation of NHLBI’s strategic plan and initiatives in precision medicine, data science, sickle cell disease, and women’s health with meaningful engagement of stakeholder groups. Throughout her career, Dr. Cook has worked to enhance diversity and equity in research and care delivery and been a leader in efforts to reduce disparities in health access and outcomes. She has a B.S. in materials science and engineering from the University of Alabama at Birmingham; earned her medical degree and master of public health in health care policy and management from Harvard Medical School and Harvard School of Public Health, respectively; and completed her clinical training at Massachusetts General Hospital in Boston. Dr. Cook is also an alumna of the Commonwealth Fund/Harvard University Fellowship in Minority Health Policy.

Meghan Warren, Ph.D., M.P.H., PT

Program Officer, Clinical Effectiveness and Decision Science, PCORI

Dr. Meghan Warren is a Program Officer at the Patient-Centered Outcomes Research Institute (PCORI). She manages a diverse comparative clinical effectiveness research portfolio. She also supports the development of PCORI Funding Announcements and works on the intellectual and developmental disabilities priority area. Before joining PCORI, Dr. Warren was a professor in the Physical Therapy Program and director of the Interdisciplinary Health Ph.D. Program at Northern Arizona University and a research collaborator at the Mayo Clinic. She conducted research in sports injury epidemiology and rehabilitation health services research, analyzing Medicare claims and electronic health records. Dr. Warren received her B.S. in physical therapy from Boston University, her M.P.H. in epidemiology from Tulane University School of Public Health and Tropical Medicine, and her Ph.D. in epidemiology from the University of Minnesota School of Public Health.