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Strategic Plan Cover
IACC Strategic Plan
For Autism Spectrum Disorder Research
2010 Update
Appendices

References

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Guy J, Gan J, Selfridge J, Cobb S, & Bird A. Reversal of neurological defects in a mouse model of Rett syndrome. Science. 2007 Feb 23;315(5815):1143-7.

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Jamain S, Quach H, Betancur C, Råstam M, Colineaux C, Gillberg IC, Soderstrom H, Giros B, Leboyer M, Gillberg C, & Bourgeron T. Mutations of the X-linked genes encoding neuroligins NLGN3 and NLGN4 are associated with autism. Nat Genet. 2003 May;34(1):27-9.

Järbrink K & Knapp M. The economic impact of autism in Britain. Autism. 2001 Mar;5(1):7-22.

Järbrink K, Fombonne E, & Knapp M. Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study. J Autism Dev Disord. 2003 33(4), 395-402.

King BH, Hollander E, Sikich L, McCracken JT, Scahill L, Bregman JD, Donnelly CL, Anagnostou E, Dukes K, Sullivan L, Hirtz D, Wagner A, & Ritz L. Lack of efficacy of citalopram in children with autism spectrum disorders and high levels of repetitive behavior: citalopram ineffective in children with autism. Arch Gen Psychiatry. 2009 Jun;66(6):583-90.

Kogan MD, Blumberg SJ, Schieve LA, Boyle CA, Perrin JM, Ghandour RM, Singh GK, Strickland BB, Trevathan E, van Dyck PC. Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics. 2009 Nov;124(5):1395-403.

Kolevzon A, Mathewson KA, & Hollander E. Selective serotonin reuptake inhibitors in autism: a review of efficacy and tolerability. J Clin Psychiatry. 2006 Mar; 67(3):407-14.

Krauss M, Gulley S, Sciegaj M, & Wells N. Access to specialty medical care for children with mental retardation, autism and other special health care needs. Ment Retard. 2003 41(5), 329-339.

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Mandell D & Palmer R. Differences among states in the identification of autistic spectrum disorders. Arch Pediatr Adolesc Med. 2005 159(3): 266-269.

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McClannahan LE, MacDuff GS, & Krantz PJ. Behavior analysis and intervention for adults with autism. Behav Modif. 2002 Jan;26(1):9-26.

McVicar KA, Ballaban-Gil K, Rapin I, Moshé SL, & Shinnar S. Epileptiform EEG abnormalities in children with language regression. Neurology. 2005 Jul 12;65(1):129-31.

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About the IACC

The Interagency Autism Coordinating Committee (IACC) was established by Congress under the Combating Autism Act of 2006 (CAA) to provide advice to the Secretary of Health and Human Services (HHS) and coordinate all efforts within HHS concerning autism spectrum disorders (ASD).

As mandated by law, the IACC has a membership composed of federal officials from agencies involved in autism research and services and public members, including people with ASD, parents of children and adults with ASD and members of the autism advocacy and research community. The diversity of the committee ensures that a broad range of views and opinions is reflected and discussed in a public forum.

Under the CAA, the IACC is required to: (1) Develop and annually update a strategic plan for ASD research, (2) develop and annually update a summary of advances in ASD research, and (3) monitor federal activities related to ASD.

In completing the first IACC Strategic Plan for Autism Spectrum Disorder Research in 2009 and releasing this first update of the plan in 2010, the IACC has laid out a framework for the pursuit of critical biomedical and services research. Through activities such as public meetings and workshops, publication of an annual Summary of Advances in ASD Research, dissemination of information regarding ASD research and IACC activities, gathering of public input and coordination of federal activities related to autism, the IACC continues in its effort to provide guidance to the Department of Health and Human Services and to reach out to the broader autism community to find ways to work together to help people with autism and their families.

IACC Member Roster

Chair

  • Thomas R. Insel, M.D.
    Director
    National Institute of Mental Health
    National Institutes of Health
    Bethesda, Maryland

Federal Members

  • James F. Battey, M.D., Ph.D.
    Director
    National Institute on Deafness and
    Other Communication Disorders
    National Institutes of Health
    Bethesda, Maryland
  • Linda Birnbaum, Ph.D.
    Director
    National Institute of Environmental Health Sciences
    National Institutes of Health
    Research Triangle Park, North Carolina
  • Ellen W. Blackwell, M.S.W.
    Division of Community and Institutional Services
    Disabled and Elderly Health Programs Group
    Center for Medicaid and State Operations
    Centers for Medicare and Medicaid Services
    Baltimore, Maryland
  • Henry Claypool
    Director
    Office on Disability
    U.S. Department of Health and Human Services
    Washington, DC

  • Francis S. Collins, M.D., Ph.D.
    Director
    National Institutes of Health
    Bethesda, Maryland
  • Alan E. Guttmacher, M.D.
    Acting Director
    Eunice Kennedy Shriver National Institute
    of Child Health and Human Development
    National Institutes of Health
    Bethesda, Maryland
  • Gail R. Houle, Ph.D.
    Associate Division Director
    Research-to-Practice Division
    Early Childhood Programs 
    Office of Special Education Programs
    U.S. Department of Education
    Washington, DC
  • Larke N. Huang, Ph.D.
    Senior Advisor on Children
    Office of the Administrator
    Substance Abuse and Mental Health Services Administration
    Rockville, Maryland
  • Jennifer G. Johnson, Ed.D.
    Program Specialist
    Administration on Developmental Disabilities
    Administration for Children and Families
    Washington, DC
  • Walter J. Koroshetz, M.D.
    Deputy Director
    National Institute of Neurological
    Disorder and Stroke
    National Institutes of Health
    Bethesda, Maryland
  • Edwin Trevathan, M.D., M.P.H.
    Director, National Center on Birth Defects and Developmental Disabilities
    Centers for Disease Control and Prevention
    Atlanta, Georgia
  • Peter van Dyck, M.D., M.P.H.
    Associate Administrator
    Maternal and Child Health
    Health Resources and Services Administration
    Rockville, Maryland

Public Members

  • Lee Grossman
    President and CEO
    Autism Society of America
    Bethesda, Maryland
  • Yvette M. Janvier, M.D.
    Medical Director
    Children's Specialized Hospital
    Toms River, New Jersey
  • Christine M. McKee, J.D.    
    Rockville, Maryland

  • Lyn Redwood, RN, M.S.N.  
    Co-Founder and Vice President
    Coalition for Safe Minds
    Tyrone, Georgia
  • Stephen M. Shore, Ed.D.
    Executive Director
    Autism Spectrum Consulting
    Newton, Massachusetts
  • Alison Tepper Singer, M.B.A.
    President
    Autism Science Foundation
    New York, New York

Office of Autism Research Coordination (OARC) Staff List

  • Della M. Hann, Ph.D.
    Acting Director
  • Susan A. Daniels, Ph.D.
    Deputy Director
  • Erin H. Bryant, M.J.
    Science Writer/Editor
  • Nicole Jones
    Web Developer
  • Monica P. Mallampalli, Ph.D.
    Science Policy Analyst
  • Miguelina Perez
    Program Specialist
  • Sarah E.V. Rhodes, Ph.D.
    Detailee, NIMH Intramural Research Program

Copyright Information
All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows.

Suggested Citation
Interagency Autism Coordinating Committee (IACC). IACC Strategic Plan for Autism Spectrum Disorder (ASD) Research —2012 Update. December 2012. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website: http://iacc.hhs.gov/strategic-plan/2012/index.shtml.

Appendices

 
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