IACC Strategic Plan
For Autism Spectrum Disorder Research
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Immunization Safety Review Committee. Immunization Safety Review: Vaccines and Autism. Washington, DC: The National Academies Press; 2004.
Jamain S, Quach H, Betancur C, Råstam M, Colineaux C, Gillberg IC, Soderstrom H, Giros B, Leboyer M, Gillberg C, & Bourgeron T. Mutations of the X-linked genes encoding neuroligins NLGN3 and NLGN4 are associated with autism. Nat Genet. 2003 May;34(1):27-9.
Järbrink K & Knapp M. The economic impact of autism in Britain. Autism. 2001 Mar;5(1):7-22.
Järbrink K, Fombonne E, & Knapp M. Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study. J Autism Dev Disord. 2003 33(4), 395-402.
King BH, Hollander E, Sikich L, McCracken JT, Scahill L, Bregman JD, Donnelly CL, Anagnostou E, Dukes K, Sullivan L, Hirtz D, Wagner A, & Ritz L. Lack of efficacy of citalopram in children with autism spectrum disorders and high levels of repetitive behavior: citalopram ineffective in children with autism. Arch Gen Psychiatry. 2009 Jun;66(6):583-90.
Kogan MD, Blumberg SJ, Schieve LA, Boyle CA, Perrin JM, Ghandour RM, Singh GK, Strickland BB, Trevathan E, van Dyck PC. Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics. 2009 Nov;124(5):1395-403.
Kolevzon A, Mathewson KA, & Hollander E. Selective serotonin reuptake inhibitors in autism: a review of efficacy and tolerability. J Clin Psychiatry. 2006 Mar; 67(3):407-14.
Krauss M, Gulley S, Sciegaj M, & Wells N. Access to specialty medical care for children with mental retardation, autism and other special health care needs. Ment Retard. 2003 41(5), 329-339.
Kumar RA, KaraMohamed S, Sudi J, Conrad DF, Brune C, Badner JA, Gilliam TC, Nowak NJ, Cook EH Jr, Dobyns WB, & Christian SL. Recurrent 16p11.2 microdeletions in autism. Hum Mol Genet. 2008 Feb 15;17(4):628-38.
Landa RJ, Holman KC, & Garrett-Mayer E. Social and communication development in toddlers with early and later diagnosis of autism spectrum disorders. Arch Gen Psychiatry. 2007 Jul;64(7):853-64.
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Levy SE & Hyman SL. Use of complementary and alternative treatments for children with autistic spectrum disorders is increasing. Pediatr Ann. 2003 Oct;32(10):685-91.
Lister R, Pelizzola M, Dowen RH, Hawkins RD, Hon G, Tonti-Filippini J, Nery JR, Lee L, Ye Z, Ngo QM, Edsall L, Antosiewicz-Bourget J, Stewart R, Ruotti V, Millar AH, Thomson JA, Ren B, Ecker JR. Human DNA methylomes at base resolution show widespread epigenomic differences. Nature. 2009 Nov 19;462(7271):315-22.
Lord C & McGee J (Eds.). Educating Children with Autism. Washington, DC: The National Academies Press; 2001.
Mandel DS, Ittenbach RF, Levy SE, & Pinto-Martin JA. Disparities in diagnosis received prior to a diagnosis of autism spectrum disorder. J Autism Dev Disord. 2007 Oct; 37(9):1795-1802.
Mandell D, Morales K, Marcus S, Stahmer A, Doshi J, & Polsky D. Psychotropic medication use among children with autism spectrum disorders. Pediatrics. 2008 121(3): e441-448.
Mandell D & Palmer R. Differences among states in the identification of autistic spectrum disorders. Arch Pediatr Adolesc Med. 2005 159(3): 266-269.
Marshall CR, Noor A, Vincent JB, Lionel AC, Feuk L, Skaug J, Shago M, Moessner R, Pinto D, Ren Y, Thiruvahindrapduram B, Fiebig A, Schreiber S, Friedman J, Ketelaars CEJ, Vos YJ, Ficicioglu C, Kirkpatrick S, Nicolson R, Sloman L, Summers A, Gibbons CA, Teebi A, Chitayat D, Weksberg R, Thompson A, Vardy C, Crosbie V, Luscombe S, Baatjes R, Zwaigenbaum L, Roberts W, Fernandez B, Szatmari P, & Scherer SW. Structural variation of chromosomes in autism spectrum disorder. Am J Hum Genet. 2008 Feb;82(2):477-488.
McClannahan LE, MacDuff GS, & Krantz PJ. Behavior analysis and intervention for adults with autism. Behav Modif. 2002 Jan;26(1):9-26.
McVicar KA, Ballaban-Gil K, Rapin I, Moshé SL, & Shinnar S. Epileptiform EEG abnormalities in children with language regression. Neurology. 2005 Jul 12;65(1):129-31.
Montes G & Halterman JS. Association of childhood autism spectrum disorders and loss of family income. Pediatrics. 2008 Apr;121(4):e821-6.
Nagarajan RP, Patzel KA, Martin M, Yasui DH, Swanberg SE, Hertz-Picciotto I, Hansen RL, Van de Water J, Pessah IN, Jiang R, Robinson WP, & LaSalle JM. A MECP2 promoter methylation and X chromosome inactivation in autism. Autism Res. 2008, 1(3):169-78.
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Palmer RF, Blanchard S, Stein Z, Mandell D, & Miller C. Environmental mercury release, special education rates, and autism disorder: an ecological study of Texas. Health Place. 2006 Jun;12(2):203-9.
Palmer RF, Blanchard S, & Wood R. Proximity to point sources of environmental mercury release as a predictor of autism prevalence. Health Place. 2009 Mar;15(1):18-24.
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About the IACC
The Interagency Autism Coordinating Committee (IACC) was established by Congress under the Combating Autism Act of 2006 (CAA) to provide advice to the Secretary of Health and Human Services (HHS) and coordinate all efforts within HHS concerning autism spectrum disorders (ASD).
As mandated by law, the IACC has a membership composed of federal officials from agencies involved in autism research and services and public members, including people with ASD, parents of children and adults with ASD and members of the autism advocacy and research community. The diversity of the committee ensures that a broad range of views and opinions is reflected and discussed in a public forum.
Under the CAA, the IACC is required to: (1) Develop and annually update a strategic plan for ASD research, (2) develop and annually update a summary of advances in ASD research, and (3) monitor federal activities related to ASD.
In completing the first IACC Strategic Plan for Autism Spectrum Disorder Research in 2009 and releasing this first update of the plan in 2010, the IACC has laid out a framework for the pursuit of critical biomedical and services research. Through activities such as public meetings and workshops, publication of an annual Summary of Advances in ASD Research, dissemination of information regarding ASD research and IACC activities, gathering of public input and coordination of federal activities related to autism, the IACC continues in its effort to provide guidance to the Department of Health and Human Services and to reach out to the broader autism community to find ways to work together to help people with autism and their families.
IACC Member Roster
- Thomas R. Insel, M.D.
National Institute of Mental Health
National Institutes of Health
- James F. Battey, M.D., Ph.D.
National Institute on Deafness and
Other Communication Disorders
National Institutes of Health
- Linda Birnbaum, Ph.D.
National Institute of Environmental Health Sciences
National Institutes of Health
Research Triangle Park, North Carolina
- Ellen W. Blackwell, M.S.W.
Division of Community and Institutional Services
Disabled and Elderly Health Programs Group
Center for Medicaid and State Operations
Centers for Medicare and Medicaid Services
- Henry Claypool
Office on Disability
U.S. Department of Health and Human Services
- Francis S. Collins, M.D., Ph.D.
National Institutes of Health
- Alan E. Guttmacher, M.D.
Eunice Kennedy Shriver National Institute
of Child Health and Human Development
National Institutes of Health
- Gail R. Houle, Ph.D.
Associate Division Director
Early Childhood Programs
Office of Special Education Programs
U.S. Department of Education
- Larke N. Huang, Ph.D.
Senior Advisor on Children
Office of the Administrator
Substance Abuse and Mental Health Services Administration
- Jennifer G. Johnson, Ed.D.
Administration on Developmental Disabilities
Administration for Children and Families
- Walter J. Koroshetz, M.D.
National Institute of Neurological
Disorder and Stroke
National Institutes of Health
- Edwin Trevathan, M.D., M.P.H.
Director, National Center on Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention
- Peter van Dyck, M.D., M.P.H.
Maternal and Child Health
Health Resources and Services Administration
- Lee Grossman
President and CEO
Autism Society of America
- Yvette M. Janvier, M.D.
Children's Specialized Hospital
Toms River, New Jersey
- Christine M. McKee, J.D.
- Lyn Redwood, RN, M.S.N.
Co-Founder and Vice President
Coalition for Safe Minds
- Stephen M. Shore, Ed.D.
Autism Spectrum Consulting
- Alison Tepper Singer, M.B.A.
Autism Science Foundation
New York, New York
Office of Autism Research Coordination (OARC) Staff List
- Della M. Hann, Ph.D.
- Susan A. Daniels, Ph.D.
- Erin H. Bryant, M.J.
- Nicole Jones
- Monica P. Mallampalli, Ph.D.
Science Policy Analyst
- Miguelina Perez
- Sarah E.V. Rhodes, Ph.D.
Detailee, NIMH Intramural Research Program
All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows.
Interagency Autism Coordinating Committee (IACC). IACC Strategic Plan for Autism Spectrum Disorder (ASD) Research —2012 Update. December 2012. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website: http://iacc.hhs.gov/strategic-plan/2012/index.shtml.