IACC Full Committee Meeting (Virtual)

The purpose of the IACC meeting is to discuss business, agency updates, and issues related to autism spectrum disorder (ASD) research and services activities. The meeting will be held virtually and is open to the public.

Topic	Topic Description
Date:	Wednesday, January 19, 2022
Time:	10:00 a.m. to 5:00 p.m. ET
Cost:	The event is free and open to the public.
Access:	This was a virtual event. The NIH VideoCast will be posted soon.
Public Comments:	The IACC welcomes public comment from members of the autism community. Submission, Deadlines and Guidelines.

Time

Event

10:00 a.m.

Welcome, Roll Call, and Approval of Minutes

Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

10:15

The Social Security Administration and the Autism Spectrum: Disability Insurance, Supplemental Security Income, and Work

Jeffrey Hemmeter, Ph.D.
Acting Deputy Associate Commissioner; Office of Research, Demonstration, and Employment Support; U.S. Social Security Administration

10:45

National Autism Coordinator Update

Susan Daniels, Ph.D.
Acting National Autism Coordinator
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC

2021 HHS Report to Congress on Health and Well-Being
Federal Workgroup and Community Updates

11:00

Break

11:10

IACC Committee Business

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

Autism Research Database (ARD) Demonstration
Strategic Plan Update

12:30 p.m.

Lunch Break

1:00

Public Comment Session

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

1:00	Oral Comments Russell Lehmann Nicole Corrado Karen Heffler Alison Singer Michael Ha
1:25	Summary of Written Comments and Committee Discussion

1:45

Findings and Update from the Autism and Developmental Disabilities Monitoring Network

Matthew Maenner, Ph.D.
Surveillance Team Lead, Child Development and Disability Branch, Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention

2:30

Break

2:45

The Lancet Commission: An International Multi-Disciplinary Group's Perspective on the Future of Healthcare and Clinical Research in Autism

Catherine Lord, Ph.D.
George Tarjan Distinguished Professor of Child and Adolescent Psychiatry, UCLA David Geffen School of Medicine, Semel Institute of Neuroscience and Human Behavior

4:00

IACC Committee Business (continued)

Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

IACC Summary of Advances
- Discussion of 2020 Summary of Advances Nominations
- Plan for 2021 Summary of Advances

4:40

Round Robin Updates

4:50

Closing Remarks and Adjournment

Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
Acting National Autism Coordinator

Schedule is subject to change. For more information on upcoming events, please see https://iacc.hhs.gov/meetings/iacc-meetings/

Next IACC Full Committee Meeting:
Wednesday, April 13, 2022, 1:00 p.m. – 5:00 p.m. (Virtual)
Thursday, April 14, 2022, 1:00 p.m. – 5:00 p.m. (Virtual)

January Meeting Minutes (PDF 401 KB)

Jeffrey Hemmeter, Ph.D.

Acting Deputy Associate Commissioner; Office of Research, Demonstration, and Employment Support; U.S. Social Security Administration

Dr. Jeffrey Hemmeter is the Acting Deputy Associate Commissioner in the Office of Research, Demonstration, and Employment Support at the U.S. Social Security Administration (SSA) where he helps design, conduct, and oversee research, evaluation, and policies related to disability and return-to-work. Dr. Hemmeter’s research focuses on transition-age youth and Supplemental Security Income (SSI). He has worked on several SSA demonstrations, evaluations, and studies, including as the lead on the Promoting Readiness of Minors in SSI evaluation (PROMISE). Dr. Hemmeter received his Ph.D. in Economics from the University of Illinois, Urbana-Champaign.

Matthew Maenner, Ph.D.

Surveillance Team Lead, Child Development and Disability Branch, Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention

Dr. Matthew Maenner is an epidemiologist and Surveillance Team lead in the Child Development and Disability Branch at the National Center on Birth Defects and Developmental Disabilities. He leads CDC’s Autism and Developmental Disabilities Monitoring Network, which currently tracks the prevalence of autism among children, progress in early identification, and needs of adolescents in multiple U.S. communities. Dr. Maenner received the Presidential Early Career Award in Science and Engineering for advancing developmental disabilities research and surveillance. He joined CDC in 2013 as an Epidemic Intelligence Service Officer assigned to the Developmental Disabilities Branch. He received his Ph.D. in Population Health at the University of Wisconsin and completed a postdoctoral fellowship at the Waisman Center, University of Wisconsin-Madison, focused on intellectual and developmental disabilities research.

Catherine Lord, Ph.D.

Co-Chair, Scientific Research Council, Child Mind Institute; George Tarjan Distinguished Professor of Psychiatry, David Geffen School of Medicine, University of California, Los Angeles (UCLA)

Dr. Catherine Lord is Co-Chair of the Scientific Research Council at the Child Mind Institute, the George Tarjan Distinguished Professor of Psychiatry at the David Geffen School of Medicine at UCLA, and a Senior Research Scientist in the Semel Institute for Neuroscience and Human Behavior. Dr. Lord is a licensed clinical psychologist whose primary focus is autism and related disorders across the lifespan from toddlers through adulthood. Her research interests are aimed at improving methods of identifying strengths and difficulties in individuals with possible ASD and working with families and individuals to maximize independence and wellbeing for all concerned. Dr. Lord is renowned for her work on the development of the Autism Diagnostic Observation Schedule (ADOS), the Autism Diagnostic Interview – Revised (ADI-R), and the Social Communication Questionnaire (SCQ). A current priority of hers is to develop better ways of measuring changes in social behavior and communication over short periods of time that can used to monitor progress without bias. Dr. Lord is a member of DSM-5 Neurodevelopmental Disorders Committee and was previously the Chair of the National Research Council’s Committee on the Effectiveness of Early Intervention in Autism. She is the recipient of numerous awards including the Lifetime Achievement Award from the International Society for Autism Research (INSAR). Dr. Lord received her Ph.D. from Harvard University and her B.A. from UCLA.