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Portfolio Analysis Cover 2017-2018

Portfolio Analysis Report

IACC Autism Spectrum Disorder Research

2017-2018

ASD Research Funders and Funding in 2017 and 2018


Who funded ASD research in 2017 and 2018?

Nine federal agencies and fourteen private funders provided their autism research funding information for the 2017-2018 ASD Research Portfolio Analysis Report. These 23 agencies and organizations are listed in Table 1. The IACC and OARC routinely review the funding landscape and offer opportunities to new funders to join the IACC portfolio analysis effort in order to provide a more comprehensive depiction of federal and private contributions to ASD research in the U.S. For the present report, five new private organizations were identified and added to the analysis. These new additions are as follows: the Escher Fund for Autism/Escher Family Fund, the FRAXA Research Foundation, the Geisinger Autism & Developmental Medicine Institute, the New Jersey Governor’s Council for Medical Research and Treatment of Autism, and the Tuberous Sclerosis Alliance. Within the portfolios of funders who focus on rare genetic disorders with strong links to autism, only projects that directly study aspects of autism were counted as autism projects and included in the present report analyses. The five new funders contributed 1.5% ($5.6 million) and 1.3% ($4.95 million) of total funding in 2017 and 2018, respectively. The research projects that are included by these new funders are important in understanding the ASD research landscape but do not dramatically change the portfolio’s trends. Some agencies and organizations included in previous years’ analyses did not have projects to report in 2017 or 2018 or chose not to participate in the present analysis. Brief summaries of the mission areas for each agency and organization that contributed to the 2017-2018 Portfolio Analysis can be found in Appendix A of this report.

Federal Agencies Private Organizations

Federal Agencies

  • Administration for Community Living (ACL)
  • Agency for Healthcare Research and Quality (AHRQ)
  • Centers for Disease Control and Prevention (CDC)
  • Department of Defense – Army (DoD – Army)
  • Department of Education (ED)
  • Environmental Protection Agency (EPA)
  • Health Resources and Services Administration (HRSA)
  • National Institutes of Health (NIH)
  • National Science Foundation (NSF)

Private Organizations

  • Autism Research Institute (ARI)
  • Autism Science Foundation (ASF)
  • Autism Speaks (AS)
  • Brain & Behavior Research Foundation (BBRF)
  • Center for Autism and Related Disorders (CARD)
  • Escher Fund for Autism/Escher Family Fund (EFA)
  • FRAXA Research Foundation (FRAXA)
  • Geisinger Autism & Developmental Medicine Institute (GADMI)
  • New England Center for Children (NECC)
  • Organization for Autism Research (OAR)
  • Patient-Centered Outcomes Research Institute (PCORI)
  • Simons Foundation (SF)
  • The New Jersey Governor’s Council for Medical Research and Treatment of Autism (NJMRTA)
  • Tuberous Sclerosis Alliance (TSA)

Table 1. Projects from nine federal agencies and fourteen private organizations were included in the 2017-2018 IACC ASD Research Portfolio Analysis Report.


How much ASD research was funded in 2017 and 2018?

Combined, the estimated federal and private investment in ASD research was $373,080,604 in 2017 and $387,680,492 in 2018. Overall funding for autism research increased by $8.6 million from 2016 to 2017 and by $14.6 million from 2017 to 2018. The addition of the five new private funders to the portfolio analysis accounted for 65% ($5.6 million) of the increase from 2016 to 2017, and 34% ($4.95 million) of the increase from 2017 to 2018. Without including the contributions of the five new funders, the funding increase from 2016 to 2017 was $3 million, and the increase from 2017 to 2018 was $9.6 million.

The relative proportions contributed by federal and private funders during this period remained relatively unchanged from year to year. In 2017, the federal government provided $299 million in ASD research funding and accounted for 80% of overall funding. Private organizations provided $74.1 million in funding, which accounted for 20% of the total funding in 2017 (Figure 3). In 2018, the federal government provided $317.1 million in ASD research funding and accounted for 82% of overall funding. Private organizations provided $70.6 million, which accounted for 18% of the total funding in 2018 (Figure 4).

Figure 3. In 2017, 80% of ASD research was provided by federal sources, while 20% of funding was provided by private organizations.

Figure 4. In 2018, 82% of ASD research was provided by federal sources, while 18% of funding was provided by private organizations.


What funding trends were observed?

  • ASD research funding increased from 2016 to 2018. In 2016, combined federal and private investment in ASD research was $364.4 million. In 2017, the combined federal and private funding was $373.1 million, an increase of 2.4% from the previous year. In 2018, the combined federal and private funding was $387.7 million, an increase of 3.8% from 2017 (Figure 5). The addition of five new private funders to the Portfolio Analysis Report accounted for a portion of these yearly increases but not all (see previous section for details).
  • The amount of federal investment in ASD research increased 2.5% in 2017 ($299 million) from 2016 ($291.7 million). It increased 6.1% in 2018 ($317.1 million) from 2017.
  • The amount of private investment in ASD research increased 2% in 2017 ($74.1 million) from 2016 ($72.7 million). It decreased 4.8% in 2018 ($70.6 million) from 2017.
  • As stated in previous IACC Portfolio Analysis Reports, the American Recovery and Reinvestment Act (ARRA), which provided an additional $63.9 million in 2009 and $59.9 million in 2010 to support autism research projects, created a temporary increase in total autism research funding levels during those years, resulting in a high of $408.6 million in reported funding in 2010. In 2011, levels significantly decreased in comparison to 2010 but have been slowly increasing in recent years.

Figure 5. This figure illustrates levels of autism research funding from combined federal and private sources during 2008-2018 based on data collected for the IACC Portfolio Analysis of those years.


Where is research being funded in the U.S.?

Figure 6 shows the distribution of autism research projects across the U.S. funded by both federal agencies and private organizations in 2018. The map shows that research is concentrated along the east and west coasts of the U.S. and in major metropolitan areas or areas with large universities in the middle portion of he country.

The U.S. institutions that received the largest amounts of funding in 2017 and 2018 are the University of California, Davis and Yale University. In 2018, in addition to these institutions, the University of California, San Francisco was a top funded institution. The University of California at Davis has many investigators collaborating on major research initiatives such as the Baby Siblings Consortium and SPARK. It is also the site of the UC Davis Mind Institute, UC Davis Center for Children’s Environmental Health and Disease Prevention (CCEH), and the new Center for the Development of Phenotype-Based Treatments of Autism Spectrum Disorder. Yale University is similar in that researchers at the institution are collaborating on several large multisite research projects, such as the Simons Simplex Collection (SSC) and the Autism Biomarkers Consortium for Clinical Trials. The University of California at San Francisco includes researchers also involved in the SSC and the Autism Sequencing Consortium (ASC), two major research initiatives investigating the genetic composition of ASD.

Many of the other institutions with significant amounts of funding are involved in large genetic, biological, and environmental research networks in an effort to increase the study size and quality of the research being conducted. Tables 2 and 3 provide additional information about the institutions and states that had the largest number of projects in 2017 and 2018.

Figure 6. A map of the United States displaying the geographic distribution of autism-related research projects in 2018 funded by federal agencies and private organizations.


Which U.S. institutions had the highest levels of funding in 2017 and 2018?

2017
Institution Funding Amount Project Count

Institution

Yale University

Funding Amount

$21,222,531

Project Count

47

Institution

University of California, Davis

Funding Amount

$20,790,859

Project Count

61

Institution

University of California, Los Angeles

Funding Amount

$12,949,918

Project Count

42

Institution

University of North Carolina, Chapel Hill

Funding Amount

$10,193,081

Project Count

33

Institution

University of California, San Diego

Funding Amount

$9,778,953

Project Count

34

Institution

National Institutes of Health - Intramural

Funding Amount

$9,263,100

Project Count

12

Institution

University of Rochester

Funding Amount

$8,801,038

Project Count

11

Institution

Stanford University

Funding Amount

$8,614,935

Project Count

31

Institution

Drexel University

Funding Amount

$7,329,527

Project Count

20

Institution

Vanderbilt University

Funding Amount

$7,233,063

Project Count

45

2018
Institution Funding Amount Project Count

Institution

University of California, San Francisco

Funding Amount

$23,532,985

Project Count

84

Institution

Yale University

Funding Amount

$20,661,013

Project Count

55

Institution

University of California, Davis

Funding Amount

$18,774,068

Project Count

55

Institution

University of California, Los Angeles

Funding Amount

$12,665,795

Project Count

42

Institution

University of North Carolina, Chapel Hill

Funding Amount

$10,193,081

Project Count

33

Institution

University of California, San Diego

Funding Amount

$10,961,836

Project Count

33

Institution

National Institutes of Health - Intramural

Funding Amount

$9,886,842

Project Count

9

Institution

Stanford University

Funding Amount

$9,726,935

Project Count

31

Institution

Drexel University

Funding Amount

$8,086,635

Project Count

20

Institution

Washington University, St. Louis

Funding Amount

$7,435,650

Project Count

23

Institution

Massachusetts General Hospital

Funding Amount

$7,350,538

Project Count

20

Table 2 Institutions with the most ASD-related research funding from federal and private sources in 2017 and 2018.


Which states had the highest levels of funding in 2017 and 2018?

2017
Institution Funding Amount Project Count

Institution

California

Funding Amount

$77,559,616.92

Project Count

290

Institution

New York

Funding Amount

$42,554,181.07

Project Count

140

Institution

Massachusetts

Funding Amount

$38,357,050.61

Project Count

229

Institution

Maryland

Funding Amount

$29,190,996.00

Project Count

58

Institution

Pennsylvania

Funding Amount

$21,617,332.37

Project Count

87

Institution

Connecticut

Funding Amount

$21,300,031.48

Project Count

51

Institution

North Carolina

Funding Amount

$16,998,820.03

Project Count

64

Institution

Georgia

Funding Amount

$10,417,396.00

Project Count

44

Institution

Florida

Funding Amount

$9,052,043.00

Project Count

33

Institution

Texas

Funding Amount

$7,776,659.33

Project Count

47

2018
Institution Funding Amount Project Count

Institution

California

Funding Amount

$80,277,817

Project Count

281

Institution

Massachusetts

Funding Amount

$38,794,089

Project Count

230

Institution

New York

Funding Amount

$37,783,449

Project Count

141

Institution

Maryland

Funding Amount

$28,936,874

Project Count

45

Institution

Pennsylvania

Funding Amount

$22,113,779

Project Count

89

Institution

Connecticut

Funding Amount

$22,106,428

Project Count

61

Institution

North Carolina

Funding Amount

$16,740,739

Project Count

61

Institution

Florida

Funding Amount

$10,354,383

Project Count

39

Institution

Georgia

Funding Amount

$9,916,057

Project Count

42

Institution

Washington

Funding Amount

$8,840,550

Project Count

32

Table 3. States with the most ASD-related research funding from federal and private sources in 2017 and 2018.


Which countries received ASD research funding from U.S. funders?

While the majority of U.S. ASD research funding is awarded to investigators at U.S. institutions, several of the agencies and organizations from which the IACC/OARC collects information invest in ASD research internationally. While a few federal agencies funded projects at international institutions, most of the international research was supported by private organizations (Table 4). In 2017, 20 countries outside the U.S. received support for ASD research from U.S. agencies and organizations represented in the Portfolio Analysis, with total funding of international projects amounting to $9.3 million and 72 projects (Table 5). Overall in 2017, 2.5% of total funding went towards institutions outside of the U.S., and 4.8% of all projects were at international institutions. The countries that received the largest portion of international funding in 2017 were the United Kingdom and Canada.

In 2018, 17 countries outside the U.S. received support for ASD research from agencies and organizations represented in the Portfolio Analysis, with total funding of international projects amounting to $11.8 million and 75 projects (Table 5). Overall in 2018, 3% of total funding went towards institutions outside of the U.S., and 4.9% of all projects were at international institutions. As in previous years, most of this international research was supported by private organizations. As in 2017, the countries that received the largest portion of international funding in 2018 were Canada and the United Kingdom.

U.S. Funders Supporting International ASD Research in 2017 and 2018
Funder Funder

Funder

New England Center for Children

Funder

Brain & Behavior Research Foundation

Funder

Simons Foundation

Funder

Autism Speaks

Funder

FRAXA Research Foundation

Funder

National Institutes of Health

Funder

Escher Fund for Autism/Escher Family Fund

Funder

Autism Science Foundation

Funder

Autism Research Institute

Funder

Table 4. List of U.S. funders of international ASD research in 2017 and 2018.


Countries Receiving U.S. Funding for ASD Research in 2017 & 2018
Country 2017 Funding Amount 2017 Project Count 2018 Funding Amount 2018 Project Count

Country

Australia

2017 Funding Amount

$216,833

2017 Project Count

5

2018 Funding Amount

$199,649

2018 Project Count

5

Country

Austria

2017 Funding Amount

$99,559

2017 Project Count

1

2018 Funding Amount

$99,789

2018 Project Count

1

Country

Belgium

2017 Funding Amount

$151,600

2017 Project Count

2

2018 Funding Amount

$0

2018 Project Count

1

Country

Canada

2017 Funding Amount

$3,344,472

2017 Project Count

25

2018 Funding Amount

$4,114,706

2018 Project Count

26

Country

France

2017 Funding Amount

$250,000

2017 Project Count

6

2018 Funding Amount

$394,433

2018 Project Count

8

Country

Germany

2017 Funding Amount

$0

2017 Project Count

1

2018 Funding Amount

$0

2018 Project Count

0

Country

Hong Kong

2017 Funding Amount

$120,000

2017 Project Count

1

2018 Funding Amount

$240,000

2018 Project Count

1

Country

Ireland

2017 Funding Amount

$290,750

2017 Project Count

3

2018 Funding Amount

$217,700

2018 Project Count

3

Country

Israel

2017 Funding Amount

$91,997

2017 Project Count

2

2018 Funding Amount

$0

2018 Project Count

3

Country

Italy

2017 Funding Amount

$150,504

2017 Project Count

2

2018 Funding Amount

$208,068

2018 Project Count

5

Country

Netherlands

2017 Funding Amount

$17,500

2017 Project Count

2

2018 Funding Amount

$88,796

2018 Project Count

4

Country

Portugal

2017 Funding Amount

$5,000

2017 Project Count

2

2018 Funding Amount

$0

2018 Project Count

0

Country

Pakistan

2017 Funding Amount

$0

2017 Project Count

1

2018 Funding Amount

$0

2018 Project Count

0

Country

Singapore

2017 Funding Amount

$67,500

2017 Project Count

1

2018 Funding Amount

$0

2018 Project Count

1

Country

Spain

2017 Funding Amount

$16,079

2017 Project Count

1

2018 Funding Amount

$16,079

2018 Project Count

1

Country

Sweden

2017 Funding Amount

$0

2017 Project Count

0

2018 Funding Amount

$35,000

2018 Project Count

1

Country

Switzerland

2017 Funding Amount

$34,892

2017 Project Count

1

2018 Funding Amount

$149,525

2018 Project Count

2

Country

Taiwan

2017 Funding Amount

$0

2017 Project Count

1

2018 Funding Amount

$0

2018 Project Count

1

Country

Turkey

2017 Funding Amount

$0

2017 Project Count

1

2018 Funding Amount

$0

2018 Project Count

1

Country

United Arab Emirates

2017 Funding Amount

$2,100

2017 Project Count

1

2018 Funding Amount

$2,200

2018 Project Count

1

Country

United Kingdom

2017 Funding Amount

$4,362,001

2017 Project Count

13

2018 Funding Amount

$6,026,179

2018 Project Count

11

Country

Total

2017 Funding Amount

$9,265,786

2017 Project Count

72

2018 Funding Amount

$11,792,123

2018 Project Count

75

Table 5. Countries outside of the U.S. that received funding from U.S. federal agencies or private organizations to support ASD research in 2017 and 2018.


How much ASD research funding did each funder provide in 2017?

In 2017, the 23 agencies and organizations that participated in the portfolio analysis supported 1,495 ASD research projects, totaling $373,080,604 (Table 6). The National Institutes of Health (NIH) was the leading federal (and overall) funder of ASD research in 2017 with a total of $240.8 million, funding 538 projects. NIH funding for autism research increased by $6.4 million from 2016 to 2017. The next largest federal funder was the Department of Education (ED), with $17.4 million, followed by the Centers for Disease Control and Prevention (CDC), with $15.3 million. ED’s research funding decreased slightly from 2016, by $2.2 million. The CDC’s funding stayed relatively constant from 2016 to 2017. As in previous years, the Simons Foundation (SF) and Autism Speaks (AS) were the largest private funders of ASD research in 2017, with investments of $55.3 million and $9 million, respectively. The percentage of overall ASD research funding provided by each agency and organization in 2017 is depicted in Figure 7.

2017 ASD Research Funding by Agency/Organization
Funding Agency/Organization 2017 Funding Project Count

Funding Agency/Organization

National Institutes of Health (NIH)

2017 Funding

$240,768,248

Project Count

538*

Funding Agency/Organization

Simons Foundation (SF)

2017 Funding

$55,319,669

Project Count

308

Funding Agency/Organization

Department of Education (ED)

2017 Funding

$17,380,036

Project Count

84

Funding Agency/Organization

Centers for Disease Control and Prevention (CDC)

2017 Funding

$15,337,228

Project Count

28

Funding Agency/Organization

Department of Defense - Army (DoD-Army)

2017 Funding

$13,648,386

Project Count

41

Funding Agency/Organization

Autism Speaks (AS)

2017 Funding

$8,997,408

Project Count

84

Funding Agency/Organization

Health Resources and Services Administration (HRSA)

2017 Funding

$7,714,518**

Project Count

52

Funding Agency/Organization

The NJ Governor's Council for Medical Research and Treatment of Autism (NJMRTA)

2017 Funding

$2,798,035

Project Count

7

Funding Agency/Organization

FRAXA Research Foundation (FRAXA)

2017 Funding

$2,303,714

Project Count

23

Funding Agency/Organization

National Science Foundation (NSF)

2017 Funding

$1,926,563

Project Count

39

Funding Agency/Organization

Brain & Behavior Research Foundation (BBRF)

2017 Funding

$1,693,792

Project Count

80

Funding Agency/Organization

Administration for Community Living (ACL)

2017 Funding

$1,122,986

Project Count

3

Funding Agency/Organization

Autism Science Foundation (ASF)

2017 Funding

$905,373

Project Count

50

Funding Agency/Organization

Center for Autism and Related Disorders (CARD)

2017 Funding

$765,000

Project Count

10

Funding Agency/Organization

Environmental Protection Agency (EPA)

2017 Funding

$764,214

Project Count

1

Funding Agency/Organization

New England Center for Children (NECC)

2017 Funding

$301,540

Project Count

86

Funding Agency/Organization

Agency for Healthcare Research and Quality (AHRQ)

2017 Funding

$292,404

Project Count

4

Funding Agency/Organization

Tuberous Sclerosis Alliance (TSA)

2017 Funding

$231,818

Project Count

4

Funding Agency/Organization

Geisinger Autism & Developmental Medicine Institute (GADMI)

2017 Funding

$222,858

Project Count

4

Funding Agency/Organization

Autism Research Institute (ARI)

2017 Funding

$220,517

Project Count

17

Funding Agency/Organization

Organization for Autism Research (OAR)

2017 Funding

$189,301

Project Count

19

Funding Agency/Organization

Patient-Centered Outcomes Research Institute (PCORI)

2017 Funding

$124,997

Project Count

9

Funding Agency/Organization

Escher Fund for Autism/Escher Family Fund (EFA)

2017 Funding

$52,000

Project Count

4

Funding Agency/Organization

Grand Total

2017 Funding

$373,080,604

Project Count

1,495

*The NIH project number shown reflects unique NIH projects. Portions of a project funded by more than one NIH institute (“co-funds”) were combined and only counted as a single project. This approach differs from that used in the NIH RePORT database, where each co-fund portion is counted as a separate project.
**The annual funding amount for some projects reported by HRSA are prorated estimates for the autism-related portion of a larger project.

Table 6. The table lists the total funding and number of projects provided by the 23 federal agencies and private organizations included in the portfolio analysis for 2017. Together, the agencies and organizations funded 1,495 projects, representing an overall investment of $373 million.


Figure 7. Percentage of total ASD research funding contributed by the 23 federal agencies and private organizations included in the 2017 portfolio. NIH provided the largest proportion of funding (64.5%), while Simons Foundation provided the largest private investment (14.8%).


How much ASD research funding did each funder provide in 2018?

In 2018, the agencies and organizations that participated in the portfolio analysis supported 1,526 ASD research projects totaling $387,680,492 (Table 7). The National Institutes of Health (NIH) continued to lead federal and overall ASD research funding, with a total of $263.9 million, funding 604 projects. NIH funding for autism research increased by $23.1 million from 2017 to 2018. The next largest federal funder was the Department of Education (ED), with $18.6 million, followed by the Centers for Disease Control and Prevention (CDC), with $14.4 million. ED’s research funding increased by $1.2 million from 2017, while the CDC’s funding stayed relatively the same. As in previous years, the Simons Foundation (SF) and Autism Speaks (AS) were the largest private funders of ASD research in 2018, with investments of $57.6 million and $5.7 million, respectively. SF increased ASD research funding by $2.3 million from 2017, and AS saw a decrease of $3 million. The percentage of overall ASD research funding provided by each agency and organization in 2018 is depicted in Figure 8.

2018 ASD Research Funding by Agency/Organization
Funding Agency/Organization 2018 Funding Project Count

Funding Agency/Organization

National Institutes of Health (NIH)

2018 Funding

$263,931,991

Project Count

604

Funding Agency/Organization

Simons Foundation (SF)

2018 Funding

$57,638,035

Project Count

344

Funding Agency/Organization

Department of Education (ED)

2018 Funding

$18,613,583

Project Count

93

Funding Agency/Organization

Centers for Disease Control and Prevention (CDC)

2018 Funding

$14,375,460

Project Count

28

Funding Agency/Organization

Health Resources and Services Administration (HRSA)

2018 Funding

$7,561,591

Project Count

50

Funding Agency/Organization

Department of Defense - Army (DoD-Army)

2018 Funding

$6,677,362

Project Count

45

Funding Agency/Organization

Autism Speaks (AS)

2018 Funding

$5,696,282

Project Count

52

Funding Agency/Organization

The NJ Governor's Council for Medical Research and Treatment of Autism (NJMRTA)

2018 Funding

$4,000,000

Project Count

8

Funding Agency/Organization

National Science Foundation (NSF)

2018 Funding

$2,916,180

Project Count

39

Funding Agency/Organization

Administration for Community Living (ACL)

2018 Funding

$2,344,950

Project Count

9

Funding Agency/Organization

Brain & Behavior Research Foundation (BBRF)

2018 Funding

$811,911

Project Count

65

Funding Agency/Organization

Agency for Healthcare Research and Quality (AHRQ)

2018 Funding

$706,741

Project Count

3

Funding Agency/Organization

FRAXA Research Foundation (FRAXA)

2018 Funding

$665,043

Project Count

22

Funding Agency/Organization

Autism Science Foundation (ASF)

2018 Funding

$643,396

Project Count

34

Funding Agency/Organization

Patient-Centered Outcomes Research Institute (PCORI)

2018 Funding

$227,721

Project Count

10

Funding Agency/Organization

New England Center for Children (NECC)

2018 Funding

$223,525

Project Count

81

Funding Agency/Organization

Autism Research Institute (ARI)

2018 Funding

$193,157

Project Count

10

Funding Agency/Organization

Organization for Autism Research (OAR)

2018 Funding

$167,965

Project Count

13

Funding Agency/Organization

Escher Fund for Autism/Escher Family Fund (EFA)

2018 Funding

$103,500

Project Count

9

Funding Agency/Organization

Tuberous Sclerosis Alliance (TSA)

2018 Funding

$100,568

Project Count

3

Funding Agency/Organization

Geisinger Autism & Developmental Medicine Institute (GADMI)

2018 Funding

$81,532

Project Count

3

Funding Agency/Organization

Environmental Protection Agency (EPA)

2018 Funding

$0

Project Count

1

Funding Agency/Organization

Grand Total

2018 Funding

$387,680,492

Project Count

1,526

Table 7. The table lists the total funding and number of projects provided by the 22 federal agencies and private organizations included in the portfolio analysis for 2018. Together, the agencies and organizations funded 1,526 projects, representing an overall investment of $387.7 million.


Figure 8. The figure illustrates the percentage of total ASD research funding contributed by the federal agencies and private organizations included in the 2018 portfolio. NIH provided the largest proportion of funding (68%), while Simons Foundation provided the largest private investment (15%).


Summary of ASD Research Funding in 2017 and 2018

The 2016-2017 IACC Strategic Plan calls for a doubling of the 2015 ASD research budget to $685 million by 2020. To accomplish this goal, the IACC recommended a nearly 15% annual increase in ASD research funding across combined federal and private funders. The committee recognized that this was an ambitious goal, but it believed that such an increase could also have a significant impact if achieved. Since the 2016 Portfolio Analysis Report, funding for autism research increased from $364.4 million in 2016 to $387.7 million in 2018, representing a 6.2% increase in funding. While this did not meet the 2016-2017 IACC Strategic Plan recommended 15% increase, ASD research did experience a substantial growth in funding during this period (Figure 9).

From 2008-2018, funding increased by 74.2%, demonstrating a continued overall growth in support of ASD research. However, ASD funding has undergone some fluctuations from one year to the next (Figure 5). An infusion of funds from the American Recovery and Reinvestment Act (ARRA) in 2009 and 2010 took autism research funding to its highest level to date, but funding levels decreased in 2011, with gradual increases over the next few years. In 2018, the ASD research portfolio was funded at the highest level since 2010 but still well below the level that would be required to meet the 2016-2017 IACC Strategic Plan budget recommendation. In future years, funding trends will continue to be monitored to determine progress toward meeting the IACC’s budget recommendation.

Figure 9. The IACC recommends a doubling of the combined federal and private ASD research budget to $685 million by 2020. Based on 2017 and 2018 funding amounts, ASD research investment is increasing but is still is not at the level of the IACC budget recommendation.

Research Funding

 
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