IACC Strategic Plan
For Autism Spectrum Disorder Research
2009 Update
References
Abrahams BS & Geschwind DH. Advances in autism genetics: on the threshold of a new neurobiology. Nat Rev Genet. 2008 May;9:341-355.
Akshoomoff N, Pierce K, & Courchesne E. The neurobiological basis of autism from a developmental perspective. Dev Psychopath. 2002 14:613-634.
Amminger GP, Berger GE, Schäfer MR, Klier C, Friedrich MH, & Feucht M. Omega-3 fatty acids supplementation in children with autism: a double-blind randomized, placebo-controlled pilot study. Biol Psychiatry. 2007 Feb 15;61(4):551-3.
Autism and Developmental Disabilities Monitoring Network Surveillance Year 2002 Principal Investigators; Centers for Disease Control and Prevention. Prevalence of autism spectrum disorders-autism and developmental disabilities monitoring network, 14 sites, United States, 2002. MMWR Surveill Summ. 2007 Feb 9;56(1):12-28.
Bailey A, Le Couteur A, Gottesman I, Bolton P, Simonoff E, Yuzda E, & Rutter M. Autism as a strongly genetic disorder: evidence from a British twin study. Psychol Med. 1995 Jan;25(1):63-77.
Boris M, Kaiser CC, Goldblatt A, Elice MW, Edelson SM, Adams JB, & Feinstein DL. Effect of pioglitazone treatment on behavioral symptoms in autistic children. J Neuroinflammation. 2007 Jan 5;4:3.
Braunschweig D, Ashwood P, Krakowiak P, Hertz-Picciotto I, Hansen R, Croen LA, Pessah IN, & Van de Water J. Autism: Maternally derived antibodies specific for fetal brain proteins. Neurotoxicology. 2008 March;29(2):226-231.
Chez MG, Burton Q, Dowling T, Chang M, Khanna P, & Kramer C. Memantine as adjunctive therapy in children diagnosed with autistic spectrum disorders: an observation of initial clinical response and maintenance tolerability. J Child Neurol. 2007 May;22(5):574-9.
Craig MC, Zaman SH, Daly EM, Cutter WJ, Robertson DM, Hallahan B, Toal F, Reed S, Ambikapathy A, Brammer M, Murphy CM, & Murphy DG. Women with autistic-spectrum disorder: magnetic resonance imaging study of brain anatomy. Br J Psychiatry. 2007 Sep;191:224-8.
Dawson G, Munson J, Webb SJ, Nalty T, Abbott R, & Toth K. Rate of head growth decelerates and symptoms worsen in the second year of life in autism. Biol Psychiatry. 2007 Feb 15;61(4):458-64.
Esch BE & Carr JE. Secretin as a treatment for autism: a review of the evidence. J Autism Dev Disord. 2004 Oct; 34(5):543-56.
Fujiura GT, Roccoforte JA, & Braddock D. Costs of family care for adults with mental retardation and related developmental disabilities. Am J Ment Retard. 1994 99(3): 250.
Ganz ML. The lifetime distribution of the incremental societal costs of autism. Arch Pediatr Adolesc Med . 2007 Apr;161(4):343-9.
Hazlett HC, Poe M, Gerig G, Smith RG, Provenzale J, Ross A, Gilmore J, & Piven J. Magnetic resonance imaging and head circumference study of brain size in autism. Arch Gen Psychiatry. 2005 Dec;62(12):1366-1376.
Hollander E, Bartz J, Chaplin W, Phillips A, Sumner J, Soorya L, Anagnostou E, & Wasserman S. Oxytocin increases retention of social cognition in autism. Biol Psychiatry. 2007 Feb 15;61(4):498-503.
Immunization Safety Review Committee. Immunization Safety Review: Vaccines and Autism. Washington, DC: The National Academies Press; 2004.
Institute of Medicine of the National Academies. Forum on neuroscience and nervous system disorders autism and the environment: challenges and opportunities for research, workshop proceedings. Washington, DC: The National Academies Press; 2007.
Järbrink K & Knapp M. The economic impact of autism in Britain. Autism. 2001 Mar;5(1):7-22.
Järbrink K, Fombonne E, & Knapp M. Measuring the parental, service and cost impacts of children with autistic spectrum disorder: A pilot study. J Autism Dev Disord. 2003 33(4), 395-402.
Kolevzon A, Mathewson KA, & Hollander E. Selective serotonin reuptake inhibitors in autism: a review of efficacy and tolerability. J Clin Psychiatry. 2006 Mar; 67(3):407-14.
Krauss M, Gulley S, Sciegaj M, & Wells N. Access to specialty medical care for children with mental retardation, autism and other special health care needs. Ment Retard. 2003 41(5), 329-339.
Landa RJ, Holman KC, & Garrett-Mayer E. Social and communication development in toddlers with early and later diagnosis of autism spectrum disorders. Arch Gen Psychiatry. 2007 Jul;64(7):853-64.
Levy SE & Hyman SL. Use of complementary and alternative treatments for children with autistic spectrum disorders is increasing. Pediatr Ann. 2003 Oct;32(10):685-91.
Lord C & McGee J (Eds.). Educating Children with Autism. Washington, DC: The National Academies Press; 2001.
Mandel DS, Ittenbach RF, Levy SE, & Pinto-Martin JA. Disparities in diagnosis received prior to a diagnosis of autism spectrum disorder. J Autism Dev Disord. 2007 Oct; 37(9):1795-1802.
Mandell D, Morales K, Marcus S, Stahmer A, Doshi J, & Polsky D. Psychotropic medication use among children with autism spectrum disorders. Pediatrics. 2008 121(3): e441-448.
Mandell D & Palmer R. Differences among states in the identification of autistic spectrum disorders. Arch Pediatr Adolesc Med. 2005 159(3): 266-269.
Marshall CR, Noor A, Vincent JB, Lionel AC, Feuk L, Skaug J, Shago M, Moessner R, Pinto D, Ren Y, Thiruvahindrapduram B, Fiebig A, Schreiber S, Friedman J, Ketelaars CEJ, Vos YJ, Ficicioglu C, Kirkpatrick S, Nicolson R, Sloman L, Summers A, Gibbons CA, Teebi A, Chitayat D, Weksberg R, Thompson A, Vardy C, Crosbie V, Luscombe S, Baatjes R, Zwaigenbaum L, Roberts W, Fernandez B, Szatmari P, & Scherer SW. Structural variation of chromosomes in autism spectrum disorder. Am J Hum Genet. 2008 Feb;82(2):477-488.
McClannahan LE, MacDuff GS, & Krantz PJ. Behavior analysis and intervention for adults with autism. Behav Modif. 2002 Jan;26(1):9-26.
Montes G & Halterman JS. Association of childhood autism spectrum disorders and loss of family income. Pediatrics. 2008 Apr;121(4):e821-6.
Palmer R, Blanchard S, Jean C, & Mandell D. School district resources and identification of children with autistic disorder. Am J Public Health. 2005 95(1):125-130.
Pardo CA, Vargas DL, & Zimmerman AW. Immunity, neuroglia and neuroinflammation in autism. Int Rev Psychiatry. 2005 Dec;17(6):485-95.
Ruble L, Heflinger C, Renfrew J, & Saunders R. Access and service use by children with autism spectrum disorders in Medicaid managed care. J Autism Dev Disord. 2005 35(1):3-13.
Sebat J, Lakshmi B, Malhotra D, Troge J, Lese-Martin C, Walsh T, Yamrom B, Yoon S, Krasnitz A, Kendall J, Leotta A, Pai D, Zhang R, Lee YH, Hicks J, Spence SJ, Lee AT, Puura K, Lehtimäki T, Ledbetter D, Gregersen PK, Bregman J, Sutcliffe JS, Jobanputra V, Chung W, Warburton D, King MC, Skuse D, Geschwind DH, Gilliam TC, Ye K, & Wigler M. Strong association of de novo copy number mutations with autism. Science. 2007 Apr 20;316(5823):445-9.
Shattuck P & Grosse S. Issues related to the diagnosis and treatment of autism spectrum disorders. Ment Retard Dev Disabil Res Rev. 2007 13(2):129-135.
Spezio ML, Adolphs R, Hurley RS, & Piven J. Analysis of face gaze in autism using "Bubbles". Neuropsychologia. 2007 Jan;45(1):144-51.
Stahmer A & Mandell D. State infant/toddler program policies for eligibility and services provision for young children with autism. Adm Policy Ment Health. 2007 34(1):29-37.
Steffenburg S, Gillberg C, Hellgren L, Andersson L, Gillberg IC, Jakobsson G, & Bohman M. A twin study of autism in Denmark, Finland, Iceland, Norway and Sweden. J Child Psychol Psychiatry. 1989 May;30(3):405-16.
Weiss LA, Shen Y, Korn JM, Arking DE, Miller DT, Fossdal R, Saemundsen E, Stefansson H, Ferreira MA, Green T, Platt OS, Ruderfer DM, Walsh CA, Altshuler D, Chakravarti A, Tanzi RE, Stefansson K, Santangelo SL, Gusella JF, Sklar P, Wu BL, & Daly MJ. Association between microdeletion and microduplication at 16p11.2 and autism. N Engl J Med. 2008 Feb 14;358(7):667-75.
Weiss MJ, & Harris SL. Teaching social skills to people with autism. Behav Modif. 2001 Oct;25(5):785-802.
Wetherby AM, Watt N, Morgan L, & Shumway S. Social communication profiles of children with autism spectrum disorders late in the second year of life. J Autism Dev Disord. 2007 May;37(5):960-75.
IACC Member Roster
Chair
- Thomas R. Insel, M.D.
Director
National Institute of Mental Health
National Institutes of Health
Bethesda, Maryland
Federal Members
- Duane F. Alexander, M.D.
Director
Eunice Kennedy Shriver National Institute
of Child Health and Human Development
National Institutes of Health
Bethesda, Maryland - James F. Battey, M.D., Ph.D.
Director
National Institute on Deafness and
Other Communication Disorders
National Institutes of Health
Bethesda, Maryland - Ellen W. Blackwell, M.S.W.
Division of Community and Institutional
Services
Disabled and Elderly Health Programs
Group
Center for Medicaid and State Operations
Centers for Medicare and Medicaid Services
Baltimore, Maryland - Margaret Giannini, M.D., F.A.A.P.
Office on Disability
U.S. Department of Health and Human
Services
Washington, DC - Gail R. Houle, Ph.D.
Associate Division Director
Research-to-Practice Division
Early Childhood Programs
Office of Special Education Programs
U.S. Department of Education
Washington, DC - Larke N. Huang, Ph.D.
Senior Advisor on Children
Office of the Administrator
Substance Abuse and Mental Health
Services Administration
Rockville, Maryland - Story C. Landis, Ph.D.
Director
National Institute of Neurological Disorders
and Stroke
National Institutes of Health
Bethesda, Maryland - Cindy Lawler, Ph.D.
Scientific Program Director
Cellular, Organs and Systems Pathobiology
Branch
Division of Extramural Research and Training
National Institute of Environmental Health
Sciences
National Institutes of Health
Research Triangle Park, North Carolina - Patricia A. Morrissey, Ph.D.
Administration on Developmental
Disabilities
Administration for Children and Families
Washington, DC - Edwin Trevathan, M.D., M.P.H.
Director
National Center on Birth Defects and
Developmental Disabilities
Centers for Disease Control and Prevention
Atlanta, Georgia - Peter van Dyck, M.D., M.P.H.
Associate Administrator
Maternal and Child Health
Health Resources and Services
Administration
Rockville, Maryland
Public Members
- Lee Grossman
President and CEO
Autism Society of America
Bethesda, Maryland - Yvette M. Janvier, M.D.
Medical Director
Children’s Specialized Hospital
Toms River, New Jersey - Christine M. McKee, J.D.
Rockville, Maryland - Lyn Redwood, R.N., M.S.N.
Co-Founder and President
Coalition for Safe Minds
Tyrone, Georgia - Stephen M. Shore, Ed.D.
Executive Director
Autism Spectrum Consulting
Newton, Massachusetts - Alison Tepper Singer, M.B.A.
Scarsdale, New York
Office of Autism Research Coordination (OARC) Staff List
- Della Hann, Ph.D.
Acting Director - Diane Buckley, M.A.
Senior Science Policy Advisor - Erin Bryant, M.J.
Science Writer - Susan Daniels, Ph.D.
Deputy Director - Azik Schwechter, Ph.D.
Health Policy Analyst - Miguelina Perez
Program Specialist
Copyright Information
All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows.
Suggested Citation
Interagency Autism Coordinating Committee (IACC). IACC Strategic Plan for Autism Spectrum Disorder (ASD) Research —2012 Update. December 2012. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website: http://iacc.hhs.gov/strategic-plan/2012/index.shtml.
