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Strategic Plan Cover

IACC Strategic Plan

For Autism Spectrum Disorder Research

2011 Update



Abrahams BS & Geschwind DH. Advances in autism genetics: on the threshold of a new neurobiology. Nat Rev Genet. 2008 May;9:341-355. [PMID: 18414403]

Agenda from Autism and the Environment Meeting: New Ideas for Advancing the Science. Autism Speaks and the National Institute on Environmental Health Science (NIEHS). 2010 Sept 10; Durham, NC.

Akechi H, Senju A, Kikuchi Y, Tojo Y, Osanai H, Hasegawa T. The effect of gaze direction on the processing of facial expressions in children with autism spectrum disorder: an ERP study. Neuropsychologia. 2010 Aug;48(10):2841-51. [PMID: 20546762]

Akshoomoff N, Pierce K, Courchesne E. The neurobiological basis of autism from a developmental perspective. Dev Psychopath. 2002;14:613-634. [PMID: 12349876]

Alarcón M, Abrahams BS, Stone JL, Duvall JA, Perederiy JV, Bomar JM, Sebat J, Wigler M, Martin CL, Ledbetter DH, Nelson SF, Cantor RM, Geschwind DH. Linkage, association, and gene-expression analyses identify CNTNAP2 as an autism-susceptibility gene. Am J Hum Genet. 2008 Jan;82(1):150-9. [PMID: 18179893]

Altun C, Guven G, Akgun OM, Akkurt MD, Basak F, Akbulut E. Oral health status of disabled individuals attending special schools. Eur J Dent. 2010 Oct;4(4):361-6. [PMID: 20922154]

Altun C, Guven G, Yorbik O, Acikel C. Dental injuries in autistic patients. Pediatr Dent. 2010 Jul-Aug;32(4):343-6. [PMID: 20836955]

Amminger GP, Berger GE, Schäfer MR, Klier C, Friedrich MH, Feucht M. Omega-3 fatty acids supplementation in children with autism: a double-blind randomized, placebo-controlled pilot study. Biol Psychiatry. 2007 Feb 15;61(4):551-3. [PMID: 16920077]

Anderson JS, Lange N, Froehlich A, DuBray MB, Druzgal TJ, Froimowitz MP, Alexander AL, Bigler ED, Lainhart JE. Decreased left posterior insular activity during auditory language in autism. Am J Neuroradiol. 2010 Jan;31(1):131-9. [PMID: 19749222]

Association of University Centers on Disabilities website.

Atladóttir HO, Pedersen MG, Thorsen P, Mortensen PB, Deleuran B, Eaton WW, Parner ET. Association of family history of autoimmune diseases and autism spectrum disorders. Pediatrics. 2009 Aug;124(2):687-94. [PMID: 19581261]

Autism Speaks. Autism Treatment Network Annual Report for 2009. (PDF – 702 KB)

Baccarelli A, Bollati V. Epigenetics and environmental chemicals. Curr Opin Pediatr. 2009, 21(2):243-51. [PMID: 19663042]

Bailey A, Le Couteur A, Gottesman I, Bolton P, Simonoff E, Yuzda E, Rutter M. Autism as a strongly genetic disorder: evidence from a British twin study. Psychol Med. 1995 Jan;25(1):63-77. [PMID: 7792363]

Bakkaloglu B, O'Roak BJ, Louvi A, Gupta AR, Abelson JF, Morgan TM, Chawarska K, Klin A, Ercan-Sencicek AG, Stillman AA, Tanriover G, Abrahams BS, Duvall JA, Robbins EM, Geschwind DH, Biederer T, Gunel M, Lifton RP, State MW. Molecular cytogenetic analysis and resequencing of contactin associated protein-like 2 in autism spectrum disorders. Am J Hum Genet. 2008 Jan;82(1):165-73. [PMID: 18179895]

Barnea-Goraly N, Lotspeich LJ, Reiss AL. Similar white matter aberrations in children with autism and their unaffected siblings: a diffusion tensor imaging study using tract-based spatial statistics. Arch Gen Psychiatry.2010 Oct;67(10):1052-60. [PMID: 20921121]

Barry C, Huskamp H, Goldman H. A political history of federal mental health and addiction insurance parity. Milbank Q. 2010 Sept;88(3):404-433. [PMID: 20860577]

Boris M, Kaiser CC, Goldblatt A, Elice MW, Edelson SM, Adams JB, Feinstein DL. Effect of pioglitazone treatment on behavioral symptoms in autistic children. J Neuroinflammation. 2007 Jan 5;4(3). [PMID: 17207275]

Braunschweig D, Ashwood P, Krakowiak P, Hertz-Picciotto I, Hansen R, Croen LA, Pessah IN, Van de Water J. Autism: maternally derived antibodies specific for fetal brain proteins. Neurotoxicology. 2008 March;29(2):226-231. [PMID: 18078998]

Brieber S, Herpertz-Dahlmann B, Fink GR, Kamp-Becker I, Remschmidt H, Konrad K. Coherent motion processing in autism spectrum disorder (ASD): an fMRI study. Neuropsychologia. 2010 May;48(6):1644-51. [PMID: 20153764]

Buie T, Fuchs GJ 3rd, Furuta GT, Kooros K, Levy J, Lewis JD, Wershil BK, Winter H. Recommendations for evaluation and treatment of common gastrointestinal problems in children with ASDs. Pediatrics. 2010 Jan;125 Suppl 1:S19-29. [PMID: 20048084]

Buie T, Campbell DB, Fuchs GJ 3rd, Furuta GT, Levy J, Vandewater J, Whitaker AH, Atkins D, Bauman ML, Beaudet AL, Carr EG, Gershon MD, Hyman SL, Jirapinyo P, Jyonouchi H, Kooros K, Kushak R, Levitt P, Levy SE, Lewis JD, Murray KF, Natowicz MR, Sabra A, Wershil BK, Weston SC, Zeltzer L, Winter H. Evaluation, diagnosis, and treatment of gastrointestinal disorders in individuals with ASDs: a consensus report. Pediatrics. 2010 Jan;125 Suppl 1:S1-18. [PMID: 20048083]

Centers for Disease Control and Prevention (CDC); Autism and Developmental Disabilities Monitoring Network - Surveillance Year 2002 Principal Investigators. Prevalence of autism spectrum disorders - Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2002. MMWR Surveill Summ. 2007 Feb 9;56(1):12-28. [PMID: 17287715]

Centers for Disease Control and Prevention (CDC); Autism and Developmental Disabilities Monitoring Network Surveillance Year 2006 Principal Investigators. Prevalence of autism spectrum disorders - Autism and Developmental Disabilities Monitoring Network, United States, 2006. MMWR Surveill Summ. 2009 Dec 18;58(10):1-20. [PMID: 20023608]

Chappel SL, Somers BC. Employing persons with autism spectrum disorders: A collaborative effort. J Vocational Rehab. 2010;32(2):117-124.

Chez MG, Burton Q, Dowling T, Chang M, Khanna P, Kramer C. Memantine as adjunctive therapy in children diagnosed with autistic spectrum disorders: an observation of initial clinical response and maintenance tolerability. J Child Neurol. 2007 May;22(5):574-9. [PMID: 17690064]

Children's Health Insurance Program Reauthorization Act of 2009. (PDF – 424 KB) Government Printing Office. 2009 Feb 4.

Chowdhury M, Benson B, Hillier A. Changes in restricted repetitive behaviors with age: a study of high-functioning adults with autism spectrum disorders. Res Autism Spectr Disord. April-June 2010;4(2):210-216.

Cohen IL, Tsiouris JA, Flory MJ, Kim SY, Freedland R, Heaney G, Pettinger J, Ted-Brown W. A large-scale study of the psychometric characteristics of IBR modified overt aggression scale: findings and evidence for increased self-destructive behaviors in adult females with autism spectrum disorder. J Autism Dev Disord. 2010 May;40(5):599-609. [PMID: 19941156]

Cook EH Jr, Scherer SW. Copy-number variations association with neuropsychiatric conditions. Nature. 2008 Oct 16;455(7215):919-23. [PMID: 18923514]

Council on Children with Disabilities, Section on Developmental Behavioral Pediatrics, Bright Futures Steering Committee, Medical Home Initiatives for Children with Special Needs Project Advisory Committee. Identifying infants and young children with developmental disorders in the medical home: an algorithm for developmental surveillance and screening. Pediatrics. 2006 Jul;118(1):405-20. [PMID: 16818591]

Coury D. Medical treatment of autism spectrum disorders. Curr Opin Neurol. 2010 Apr;23(2):131-6. [PMID: 20087181]

Craig MC, Zaman SH, Daly EM, Cutter WJ, Robertson DM, Hallahan B, Toal F, Reed S, Ambikapathy A, Brammer M, Murphy CM, Murphy DG. Women with autistic-spectrum disorder: magnetic resonance imaging study of brain anatomy. Br J Psychiatry. 2007 Sep;191:224-8. [PMID: 17766762]

Danielsson S, Gillberg IC, Billstedt E, Gillberg C, Olsson I. Epilepsy in young adults with autism: a prospective population-based follow-up study of 120 individuals diagnosed in childhood. Epilepsia. 2005 Jun;46(6):918-23. [PMID: 15946331]

Dawson G, Munson J, Webb SJ, Nalty T, Abbott R, Toth K. Rate of head growth decelerates and symptoms worsen in the second year of life in autism. Biol Psychiatry. 2007 Feb 15;61(4):458-64. [PMID: 17137564]

Dawson G, Rogers S, Munson J, Smith M, Winter J, Greenson J, Donaldson A, Varley J. Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model. Pediatrics. 2010 Jan;125(1):e17-23. [PMID: 19948568]

Derosier ME, Swick DC, Davis NO, McMillen JS, Matthews R. The efficacy of a social skills group intervention for improving social behaviors in children with high functioning autism spectrum disorders. J Autism Dev Disord. 2010 Nov 2. [Epub ahead of print] [PMID: 21042870]

Dinstein I, Thomas C, Humphreys K, Minshew N, Behrmann M, Heeger DJ. Normal movement selectivity in autism. Neuron. 2010 May 13;66(3):461-9. [PMID: 20471358]

Dölen G, Osterweil E, Rao BS, Smith GB, Auerbach BD, Chattarji S, Bear MF. Correction of fragile X syndrome in mice. Neuron. 2007 Dec 20;56(6):955-62. [PMID: 18093519]

Durand CM, Betancur C, Boeckers TM, Bockmann J, Chaste P, Fauchereau F, Nygren G, Rastam M, Gillberg IC, Anckarsäter H, Sponheim E, Goubran-Botros H, Delorme R, Chabane N, Mouren-Simeoni MC, de Mas P, Bieth E, Rogé B, Héron D, Burglen L, Gillberg C, Leboyer M, Bourgeron T. Mutations in the gene encoding the synaptic scaffolding protein SHANK3 are associated with autism spectrum disorders. Nat Genet. 2007 Jan;39(1):25-7. [PMID: 17173049]

Dziobek I, Bahnemann M, Convit A, Heekeren HR. The role of the fusiform-amygdala system in the pathophysiology of autism. Arch Gen Psychiatry. 2010 Apr;67(4):397-405. [PMID: 20368515]

Ecker C, Marquand A, Mourão-Miranda J, Johnston P, Daly EM, Brammer MJ, Maltezos S, Murphy CM, Robertson D, Williams SC, Murphy DG. Describing the brain in autism in five dimensions--magnetic resonance imaging-assisted diagnosis of autism spectrum disorder using a multiparameter classification approach. J Neurosci. 2010 Aug 11;30(32):10612-23. [PMID: 20702694]

Ehninger D, Han S, Shilyansky C, Zhou Y, Li W, Kwiatkowski DJ, Ramesh V, Silva AJ. Reversal of learning deficits in a Tsc2+/- mouse model of tuberous sclerosis. Nat Med. 2008 Aug;14(8):843-8. [PMID: 18568033]

Esbensen AJ, Bishop S, Seltzer MM, Greenberg JS, Taylor JL. Comparisons between individuals with autism spectrum disorders and individuals with Down Syndrome in adulthood. Am J Intellect Dev Disabil. 2010 July;115(4):277-90. [PMID: 20563296]

Esbensen AJ, Greenberg J, Seltzer MM, Aman MG. A longitudinal investigation of psychotropic and non-psychotropic medication use among adolescents and adults with autism spectrum disorders. J Autism Dev Disord. 2009 September;39(9):1339-1349. [PMID: 19434487]

Esch BE, Carr JE. Secretin as a treatment for autism: a review of the evidence. J Autism Dev Disord. 2004 Oct; 34(5):543-56. [PMID: 15628608]

Eskenazi B, Marks AR, Bradman A, Harley K, Barr DB, Johnson C, Morga N, Jewell NP. Organophosphate pesticide exposure and neurodevelopment in young Mexican-American children. Environ Health Perspect. 2007 May;115(5):792-8. [PMID: 17520070]

Federal Register. Interim Final Rules Under the Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act of 2008; Final Rule. (PDF – 270 KB) 2010 Feb 2.

Fischbach GD, Lord C. The Simons Simplex Collection: a resource for identification of autism genetic risk factors. Neuron. 2010 Oct 21;68(2):192-5. [PMID: 20955926]

Forum on Neuroscience and Nervous System Disorders, Institute of Medicine. Autism and the Environment: Challenges and Opportunities for Research, Workshop Proceedings. Washington, DC: The National Academies Press; 2008.

Frankel F, Myatt R, Sugar C, Whitham C, Gorospe CM, Laugeson E. A randomized controlled study of parent-assisted Children's Friendship Training with children having autism spectrum disorders. J Autism Dev Disord. 2010 July;40(7):827-42. [PMID: 20058059]

Frazier TW, Youngstrom EA, Haycook T, Sinoff A, Dimitriou F, Knapp J, Sinclair L. Effectiveness of medication combined with intensive behavioral intervention for reducing aggression in youth with autism spectrum disorder. J Child Adolesc Psychopharmacol. 2010 Jun; 20(3):167-77. [PMID: 20578929]

Fujiura GT, Roccoforte JA, Braddock D. Costs of family care for adults with mental retardation and related developmental disabilities. Am J Ment Retard. 1994 Nov;99(3): 250. [PMID: 7865200]

Ganz ML. The lifetime distribution of the incremental societal costs of autism. Arch Pediatr Adolesc Med. 2007 Apr;161(4):343-9. [PMID: 17404130]

Giarelli E, Wiggins LD, Rice CE, Levy SE, Kirby RS, Pinto-Martin J, Mandell D. Sex differences in the evaluation and diagnosis of autism spectrum disorders among children. Disabil Health J. 2010 Apr;3(2):107-116. [PMID: 2122776]

Gillberg C, Billstedt E, Sundah V, Gillberg IC. Mortality in autism: a prospective longitudinal community-based study. J Autism Dev Disord. 2010 Mar;40(3):352-7. [PMID: 19838782]

Government Accountability Office. Oral health: efforts under way to improve children's access to dental services, but sustained attention needed to address ongoing concerns. (PDF – 4.55 MB) 2010 Nov.

Grether JK, Anderson MC, Croen LA, Smith D, Windham GC. Risk of autism and increasing maternal and paternal age in a large North American population. Am J Epidemiol. 2009 Nov 1; 170(9):1118-1126. [PMID: 19783586]

Groen W, Teluij M, Buitelaar J, Tendolkar I. Amygdala and hippocampus enlargement during adolescence in autism. J Am Acad Child Adolesc Psychiatry. 2010 Jun;49(6):552-60. [PMID: 20494265]

Guy J, Gan J, Selfridge J, Cobb S, Bird A. Reversal of neurological defects in a mouse model of Rett syndrome. Science. 2007 Feb 23;315(5815):1143-7. [PMID: 17289941]

Hamilton SM, Spencer CM, Harrison WR, Yuva-Paylor LA, Graham DF, Daza RA, Hevner R, Overbeek PA, Paylor R. Multiple autism-like behaviors in a novel transgenic mouse model. Behav Brain Res. 2011;218:29-41. [PMID: 21093492]

Hazlett HC, Poe M, Gerig G, Smith RG, Provenzale J, Ross A, Gilmore J, Piven J. Magnetic resonance imaging and head circumference study of brain size in autism: birth through age 2 years. Arch Gen Psychiatry. 2005 Dec;62(12):1366-1376. [PMID: 16330725]

Health and Human Services (HHS) Press Release. HHS announces new grants and programs from the Affordable Care Act to help people navigate health and long-term care options. 2010, Sep 27. 

Hertz-Picciotto I, Delwiche L. The rise of autism and the role of age at diagnosis. Epidemiology. 2009 Jan;20(1):84-90. [PMID: 19307110]

Hertz-Picciotto I, Green PG, Delwiche L, Hansen R, Walker C, Pessah IN. Blood mercury concentrations in CHARGE Study children with and without autism. Environ Health Perspect. 2010 Jan;118(1):161-6. [PMID: 20056569]

Hollander E, Bartz J, Chaplin W, Phillips A, Sumner J, Soorya L, Anagnostou E, Wasserman S. Oxytocin increases retention of social cognition in autism. Biol Psychiatry. 2007 Feb 15;61(4):498-503. [PMID: 16904652]

Hove O, Havik OE. Developmental level and other factors associated with symptoms of mental disorders and problem behaviour in adults with intellectual disabilities living in the community. Soc Psychiatry Psychiatr Epidemiol. 2010 Jan;45(1):105-13. [PMID: 19347237]

Ibrahim SH, Voigt RG, Katusic SK, Weaver AL, Barbaresi WJ. Incidence of gastrointestinal symptoms in children with autism: a population-based study. Pediatrics. 2009 Aug;124(2):680-6. [PMID: 19651585]

Immunization Safety Review Committee. Immunization Safety Review: Vaccines and Autism. Washington, DC: The National Academies Press; 2004.

Innovation Center website. Centers for Medicare & Medicaid Services.

Interagency Autism Coordinating Committee (IACC). 2008 IACC Autism Spectrum Disorder Research Portfolio Analysis Report. 2010 April 30.

Interagency Autism Coordinating Committee (IACC). 2009 IACC Autism Spectrum Disorder Research Portfolio Analysis Report (Draft). (PDF – 1.7 MB) 2010 Oct 22.

Institute of Educational Sciences, U.S. Department of Education. Early Childhood Education Intervention for Children with Disabilities: Lovaas Model of Applied Behavior Analysis, August 2010.

Jamain S, Quach H, Betancur C, Råstam M, Colineaux C, Gillberg IC, Soderstrom H, Giros B, Leboyer M, Gillberg C, Bourgeron T. Mutations of the X-linked genes encoding neuroligins NLGN3 and NLGN4 are associated with autism. Nat Genet. 2003 May;34(1):27-9. [PMID: 12669065]

Järbrink K, Fombonne E, Knapp M. Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study. J Autism Dev Disord. 2003; 33(4), 395-402. [PMID: 12959418]

Johnson N, Oliff P, Williams E. An update on state budget cuts. (PDF – 751 KB) Center on Budget and Policy Priorities. 2010 Nov 5.

Johnson S, Hollis C, Kochhar P, Hennessey E, Wolke D, Marlow N. Autism spectrum disorders in extremely preterm children. J Pediatr. 2010 Apr;156(4):525-31.e2. [PMID: 20056232]

Kaiser MD, Delmolino L, Tanaka JW, Shiffrar M. Comparison of visual sensitivity to human and object motion in autism spectrum disorder. Autism Res. 2010 Aug;3(4):191-5. [PMID: 20533450]

Kaiser MD, Hudac CM, Shultz S, Lee SM, Cheung C, Berken AM, Deen B, Pitskel NB, Sugrue DR, Voos AC, Saulnier CA, Ventola P, Wolf JM, Klin A, Vander Wyk BC, Pelphrey KA. Neural signatures of autism. Proc Natl Acad Sci U S A. 2010 Dec 7;107(49):21223-8. [PMID: 21078973]

Kasari C, Gulsrud AC, Wong C, Kwon S, Locke J. Randomized controlled caregiver mediated joint engagement intervention for toddlers with autism. J Autism Dev Disord. 2010 Sep;40(9):1045-56. [PMID: 20145986]

Kikuchi Y, Senju A, Akechi H, Tojo Y, Osanai H, Hasegawa T. Atypical disengagement from faces and its modulation by the control of eye fixation in children with autism spectrum disorder. J Autism Dev Disord. 2010 Aug 17. [Epub ahead of print] [PMID: 20714799]

King BH, Hollander E, Sikich L, McCracken JT, Scahill L, Bregman JD, Donnelly CL, Anagnostou E, Dukes K, Sullivan L, Hirtz D, Wagner A, Ritz L. Lack of efficacy of citalopram in children with autism spectrum disorders and high levels of repetitive behavior: citalopram ineffective in children with autism. Arch Gen Psychiatry. 2009 Jun;66(6):583-90. [PMID: 19487623]

King M, Bearman P. Diagnostic change and the increased prevalence of autism. Int J Epidemiol. 2009 Oct;38(5):1224-34. [PMID: 19737791]

King TM, Tandon SD, Macias MM, Healy JA, Duncan PM, Swigonski NL, Skipper SM, Lipkin PH. Implementing developmental screening and referrals: lessons learned from a national project. Pediatrics. 2010 Feb;125(2):350-60. [PMID: 20100754]

Kliemann D, Dziobek I, Hatri A, Steimke R, Heekeren HR. Atypical reflexive gaze patterns on emotional faces in autism spectrum disorders. J Neurosci. 2010 Sep 15;30(37):12281-7. [PMID: 20844124]

Klin A, Lin DJ, Gorrindo P, Ramsay G, Jones W. Two-year olds with autism orient to non-social contingencies rather than biological motion. Nature. 2009 May 14; 459(7244):257-261. [PMID: 19329996]

Knapp M, Romeo R, Beechum J. Economic cost of autism in the UK. Autism. 2009 May;13(3):317-336. [PMID: 19369391]

Kogan MD, Blumberg SJ, Schieve LA, Boyle CA, Perrin JM, Ghandour RM, Singh GK, Strickland BB, Trevathan E, van Dyck PC. Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics. 2009 Nov;124(5):1395-403. [PMID: 19805460]

Koh HC, Milne E, Dobkins K. Contrast sensitivity for motion detection and direction discrimination in adolescents with autism spectrum disorders and their siblings. Neuropsychologia. 2010 Dec;48(14):4046-56. [PMID: 20937290]

Kolevzon A, Mathewson KA, Hollander E. Selective serotonin reuptake inhibitors in autism: a review of efficacy and tolerability. J Clin Psychiatry. 2006 Mar; 67(3):407-14. [PMID: 16649827]

Krauss M, Gulley S, Sciegaj M, Wells N. Access to specialty medical care for children with mental retardation, autism and other special health care needs. Ment Retard. 2003;41(5):329-339. [PMID: 12962535]

Kumar A, Sundaram SK, Sivaswamy L, Behen ME, Makki MI, Ager J, Janisse J, Chugani HT, Chugani DC. Alterations in frontal lobe tracts and corpus callosum in young children with autism spectrum disorder. Cereb Cortex. 2010 Sep;20(9):2103-13. [PMID: 20019145]

Kumar RA, KaraMohamed S, Sudi J, Conrad DF, Brune C, Badner JA, Gilliam TC, Nowak NJ, Cook EH Jr, Dobyns WB, Christian SL. Recurrent 16p11.2 microdeletions in autism. Hum Mol Genet. 2008 Feb 15;17(4):628-38. [PMID: 18156158]

Lai MC, Lombardo MV, Chakrabarti B, Sadek SA, Pasco G, Wheelwright SJ, Bullmore ET, Baron-Cohen S; MRC AIMS Consortium, Suckling J. A shift to randomness of brain oscillations in people with autism. Biol Psychiatry. 2010 Dec 15;68(12):1092-9. [PMID: 20728872]

Landa RJ, Holman KC, Garrett-Mayer E. Social and communication development in toddlers with early and later diagnosis of autism spectrum disorders. Arch Gen Psychiatry. 2007 Jul;64(7):853-64. [PMID: 17606819]

Lang R, Regester A, Lauderdale S, Ashbaugh K, Haring A. Treatment of anxiety in autism spectrum disorders using cognitive behaviour therapy: A systematic review. Dev Neurorehabil. 2010 Feb;13(1):53-63. [PMID: 20067346]

Laumonnier F, Bonnet-Brilhault F, Gomot M, Blanc R, David A, Moizard MP, Raynaud M, Ronce N, Lemonnier E, Calvas P, Laudier B, Chelly J, Fryns JP, Ropers HH, Hamel BC, Andres C, Barthélémy C, Moraine C, Briault S. X-linked mental retardation and autism are associated with a mutation in the NLGN4 gene, a member of the neuroligin family. Am J Hum Genet. 2004 Mar;74(3):552-7. [PMID: 14963808]

Levy SE, Hyman SL. Use of complementary and alternative treatments for children with autistic spectrum disorders is increasing. Pediatr Ann. 2003 Oct;32(10):685-91. [PMID: 14606219]

Lintas C, Altieri L, Lombardi F, Sacco R, Persico AM. Association of autism with polyomavirus infection in postmortem brains. J Neurovirol. 2010 Apr;16(2):141-9. [PMID: 20345322]

Lister R, Pelizzola M, Dowen RH, Hawkins RD, Hon G, Tonti-Filippini J, Nery JR, Lee L, Ye Z, Ngo QM, Edsall L, Antosiewicz-Bourget J, Stewart R, Ruotti V, Millar AH, Thomson JA, Ren B, Ecker JR. Human DNA methylomes at base resolution show widespread epigenomic differences. Nature. 2009 Nov 19;462(7271):315-22. [PMID: 19829295]

Loo CY, Graham RM, Hughes CV. Behaviour guidance in dental treatment of patients with autism spectrum disorder. Int J Paediat Dent. 2009 Nov;19(6):390-8. [PMID: 19619200]

Lord C, McGee J (Eds.). Educating Children with Autism. Washington, DC: The National Academies Press; 2001.

Loth E, Gómez JC, Happé F. When seeing depends on knowing: adults with Autism Spectrum Conditions show diminished top-down processes in the visual perception of degraded faces but not degraded objects. Neuropsychologia. 2010 Apr;48(5):1227-36. [PMID: 20026140]

Mandell D, Palmer R. Differences among states in the identification of autistic spectrum disorders. Arch Pediatr Adolesc Med. 2005 Mar; 159(3):266-269. [PMID: 15753271]

Mandell D, Morales K, Marcus S, Stahmer A, Doshi J, Polsky D. Psychotropic medication use among Medicaid-enrolled children with autism spectrum disorders. Pediatrics. 2008 Mar; 121(3):e441-448. [PMID: 18310165]

Mandell DS, Ittenbach RF, Levy SE, Pinto-Martin JA. Disparities in diagnosis received prior to a diagnosis of autism spectrum disorder. J Autism Dev Disord. 2007 Oct; 37(9):1795-1802. [PMID: 17160456]

Marshall CR, Noor A, Vincent JB, Lionel AC, Feuk L, Skaug J, Shago M, Moessner R, Pinto D, Ren Y, Thiruvahindrapduram B, Fiebig A, Schreiber S, Friedman J, Ketelaars CEJ, Vos YJ, Ficicioglu C, Kirkpatrick S, Nicolson R, Sloman L, Summers A, Gibbons CA, Teebi A, Chitayat D, Weksberg R, Thompson A, Vardy C, Crosbie V, Luscombe S, Baatjes R, Zwaigenbaum L, Roberts W, Fernandez B, Szatmari P, Scherer SW. Structural variation of chromosomes in autism spectrum disorder. Am J Hum Genet. 2008 Feb;82(2):477-488. [PMID: 18252227]

Mazumdar S, King M, Liu KY, Zerubavel N, Bearman P. The spatial structure of autism in California, 1993-2001. Health Place. 2010 May;16(3):539-46. [PMID: 20097113]

McClannahan LE, MacDuff GS, Krantz PJ. Behavior analysis and intervention for adults with autism. Behav Modif. 2002 Jan;26(1):9-26. [PMID: 11799656]

McDonough JT, Revell G. Accessing employment supports in the adult system for transitioning youth with autism spectrum disorders. J Vocational Rehab. 2010 Apr;32:89-100.

McDougle CJ, Scahill L, Aman MG, McCracken JT, Tierney E, Davies M, Arnold LE, Posey DJ, Martin A, Ghuman JK, Shah B, Chuang SZ, Swiezy NB, Gonzalez NM, Hollway J, Koenig K, McGough JJ, Ritz L, Vitiello B. Risperidone for the core symptom domains of autism: results from the study by the autism network of the research units on pediatric psychopharmacology. Am J Psychiatry. 2005 Jun;162(6):1142-8. [PMID: 15930063]

McVicar KA, Ballaban-Gil K, Rapin I, Moshé SL, Shinnar S. Epileptiform EEG abnormalities in children with language regression. Neurology. 2005 Jul;65(1):129-31. [PMID: 16009899]

Mehler MF, Purpura DP. Autism, fever, epigenetics and the locus coeruleus. Brain Res Rev. 2009 Mar;59(2):388-92. [PMID: 19059284]

Miller DT, Adam MP, Aradhya S, Biesecker LG, Brothman AR, Carter NP, Church DM, Crolla JA, Eichler EE, Epstein CJ, Faucett WA, Feuk L, Friedman JM, Hamosh A, Jackson L, Kaminsky EB, Kok K, Krantz ID, Kuhn RM, Lee C, Ostell JM, Rosenberg C, Scherer SW, Spinner NB, Stavropoulos DJ, Tepperberg JH, Thorland EC, Vermeesch JR, Waggoner DJ, Watson MS, Martin CL, Ledbetter DH. Consensus statement: chromosomal microarray is a first-tier clinical diagnostic test for individuals with developmental disabilities or congenital anomalies. Am J Hum Genet. 2010 May 14;86(5):749-64. [PMID: 20466091]

Montes G, Halterman JS. Association of childhood autism spectrum disorders and loss of family income. Pediatrics. 2008 Apr;121(4):e821-6. [PMID: 18381511]

Morgan JT, Chana G, Pardo CA, Achim C, Semendeferi K, Buckwalter J, Courchesne E, Everall IP. Microglial activation and increased microglial density observed in the dorsolateral prefrontal cortex in autism. Biol Psychiatry. 2010 Aug 15;68(4):368-76. [PMID: 20674603]

Mostafa GA, El-Hadidi ES, Hewedi DH, Abdou MM. Oxidative stress in Egyptian children with autism: relation to autoimmunity. J Neuroimmunol. 2010 Feb 26;219(1-2):114-8. [PMID: 20036015]

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About the IACC

The Interagency Autism Coordinating Committee (IACC) was established by Congress under the Combating Autism Act of 2006 (CAA) to provide advice to the Secretary of Health and Human Services (HHS) and coordinate all efforts within HHS concerning autism spectrum disorders (ASD).

As mandated by law, the IACC has a membership composed of Federal officials from agencies involved in autism research and services and public members, including people with ASD, parents of children and adults with ASD, and members of the autism advocacy and research community. The diversity of the Committee ensures that a broad range of views and opinions is reflected and discussed in a public forum.

Under the CAA, the IACC is required to (1) develop and annually update a Strategic Plan for ASD research, (2) develop and annually update a summary of advances in ASD research, and (3) monitor federal activities related to ASD.

In developing and updating the IACC Strategic Plan for Autism Spectrum Disorder Research since it was first released in 2009, the IACC has laid out a framework for the pursuit of critical biomedical and services research. Through activities such as public meetings and workshops, publication of an annual Summary of Advances in ASD Research, dissemination of information regarding ASD research and IACC activities, gathering of public input and coordination of Federal activities related to autism, the IACC continues in its effort to provide guidance to the Department of Health and Human Services and to reach out to the broader autism community to find ways to work together to help people with autism and their families.

IACC Member Roster


  • Thomas R. Insel, M.D.
    National Institute of Mental Health
    National Institutes of Health
    Bethesda, Maryland

Federal Members

  • James F. Battey, M.D., Ph.D.
    National Institute on Deafness and Other Communication Disorders
    National Institutes of Health
    Bethesda, Maryland
  • Linda Birnbaum, Ph.D.
    National Institute of Environmental Health Sciences
    National Institutes of Health
    Research Triangle Park, North Carolina
  • Ellen W. Blackwell, M.S.W.
    Division of Community and Institutional Services
    Disabled and Elderly Health Programs Group
    Center for Medicaid and State Operations
    Centers for Medicare & Medicaid Services
    Baltimore, Maryland
  • Coleen Boyle, Ph.D.
    Acting Director
    National Center on Birth Defects and Developmental Disabilities
    Centers for Disease Control and Prevention
    Atlanta, Georgia
  • Larke N. Huang, Ph.D.
    Senior Advisor on Children
    Office of the Administrator
    Substance Abuse and Mental Health Services Administration
    Rockville, Maryland
  • Walter J. Koroshetz, M.D.
    Deputy Director
    National Institute of Neurological Disorder and Stroke
    National Institutes of Health
    Bethesda, Maryland
  • Henry Claypool
    Office on Disability
    U.S. Department of Health and Human Services
    Washington, DC
  • Francis S. Collins, M.D., Ph.D.
    National Institutes of Health
    Bethesda, Maryland
  • Alan E. Guttmacher, M.D.
    Acting Director
    Eunice Kennedy Shriver National Institute of Child Health and Human Development
    National Institutes of Health
    Bethesda, Maryland
  • Gail R. Houle, Ph.D.
    Associate Division Director
    Research-to-Practice Division
    Early Childhood Programs
    Office of Special Education Programs
    U.S. Department of Education
    Washington, DC

Public Members

  • Geraldine Dawson, Ph.D.
    Chief Science Officer
    Autism Speaks
    New York, New York
  • Gerald D. Fischbach, M.D.
    Scientific Director
    Simons Foundation Autism Research Initiative
    New York, New York
  • Lee Grossman
    President and CEO
    Autism Society of America
    Bethesda, Maryland
  • Yvette M. Janvier, M.D.
    Medical Director
    Children's Specialized Hospital
    Toms River, New Jersey
  • Christine M. McKee, J.D.
    Rockville, Maryland
  • Ari Ne'eman
    Founding President
    Autistic Self-Advocacy Network
    Washington, DC
  • Lyn Redwood, R.N., M.S.N.
    Co-Founder and Executive Director
    Coalition for Safe Minds
    Tyrone, Georgia
  • Denise D. Resnik
    Board Member and Co-Founder
    Southwest Autism Research and Resource Center
    Phoenix, Arizona
  • Stephen M. Shore, Ed.D.
    Executive Director
    Autism Spectrum Consulting and
    Assistant Professor of Special Education
    Adelphi University
    Newton, Massachusetts
  • Alison Tepper Singer, M.B.A.
    Autism Science Foundation
    New York, New York
  • Marjorie Solomon, Ph.D., M.B.A.
    Assistant Clinical Professor
    University of California, Davis
    School of Medicine and
    M.I.N.D. Institute
    Sacramento, California

Office of Autism Research Coordination (OARC) Staff List

  • Della M. Hann, Ph.D.
    Acting Director
  • Susan A. Daniels, Ph.D.
    Deputy Director
  • Elizabeth M. Baden, Ph.D.
    Policy Analyst
  • Erin H. Bryant, M.J.
    Science Writer/Editor
  • Sara E. Dodson, Ph.D.
    AAAS Science & Technology
    Policy Fellow/Health Scientist
  • Nicole Jones
    Web Developer
  • Miguelina Perez
    Management Analyst

Copyright Information
All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows.

Suggested Citation
Interagency Autism Coordinating Committee (IACC). IACC Strategic Plan for Autism Spectrum Disorder (ASD) Research —2012 Update. December 2012. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website:


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