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Full Committee Meeting - January 13, 2017

meeting announcement Announcement
Topic Topic Description
Date: Friday, January 13, 2017
Time: 9:00 a.m. to 4:30 p.m. Eastern
Place: National Institute of Mental Health
6001 Executive Boulevard, NSC, Conference Rooms C and D
Rockville, MD 20850
Registration: Pre-registration is recommended to expedite check-in. Seating in the meeting room is limited to room capacity and on a first come, first served basis. Onsite registration will also be available.
Online pre-registration Go to website disclaimer
Webcast: https:videocast.nih.gov
Conference Call Access: Dial: 888-989-9784
Access code: 5757026
Agenda: To discuss business, updates, and issues related to ASD research and services activities. The Committee will discuss updates of the IACC Strategic Plan.
Cost: The meeting is free and open to the public.
Access: White Flint Metro Station (Red Line)
Deadlines: Notification of intent to present oral comments: Monday, January 2, 2017 by 5:00 p.m. ET

Submission of written/electronic statement for oral comments: Thursday, January 5, 2017 by 5:00 p.m. ET

Submission of written comments: Thursday, January 5, 2017 by 5:00 p.m. ET

Please note: Written public comments and statements accompanying oral public comments should be sent to IACCPublicInquiries@mail.nih.gov. For IACC Public Comment guidelines please see:http://iacc.hhs.gov//meetings/public-comments/guidelines/
Contact Person: Ms. Angelice Mitrakas
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC, Room 6182A
Rockville, Maryland 20852
Phone: (301) 435-9269
E-mail: IACCPublicInquiries@mail.nih.gov
Public Comment: Any member of the public interested in presenting oral comments to the Committee must notify the Contact Person listed on this notice by 5:00 p.m. ET on Monday, January 2, 2017, with their request to present oral comments at the meeting, and a written/electronic copy of the oral presentation/statement must be submitted by 5:00 p.m. ET on Thursday, January 5th.

A limited number of slots for oral comment are available, and in order to ensure that as many different individuals are able to present throughout the year as possible, any given individual only will be permitted to present oral comments once per calendar year (2017). Only one representative of an organization will be allowed to present oral comments in any given meeting; other representatives of the same group may provide written comments. If the oral comment session is full, individuals who could not be accommodated are welcome to provide written comments instead. Comments to be read or presented in the meeting must not exceed 250 words or 3 minutes, but a longer version may be submitted in writing for the record. Commenters going beyond the 250 word or 3 minute time limit in the meeting may be asked to conclude immediately in order to allow other comments and presentations to proceed on schedule.

Any interested person may submit written public comments to the IACC prior to the meeting by e-mailing the comments to IACCPublicInquiries@mail.nih.gov or by submitting comments at the web link: https://iacc.hhs.gov/meetings/public-comments/submit/index.jsp by 5:00 p.m. ET on Thursday, January 5, 2017. The comments should include the name, address, telephone number, and when applicable, the business or professional affiliation of the interested person. NIMH anticipates written public comments received by 5:00 p.m. ET on Thursday, January 5, 2017 will be presented to the Committee prior to the meeting for the Committee’s consideration. Any written comments received after the 5:00 p.m. ET, January 5, 2017 deadline through January 12, 2017 will be provided to the Committee either before or after the meeting, depending on the volume of comments received and the time required to process them in accordance with privacy regulations and other applicable Federal policies. All written public comments and oral public comment statements received by the deadlines for both oral and written public comments will be provided to the IACC for their consideration and will become part of the public record. Attachments of copyrighted publications are not permitted, but web links or citations for any copyrighted works cited may be provided.

Core Values:
In the 2009 IACC Strategic Plan, the IACC listed the “Spirit of Collaboration” as one of its core values, stating that, “We will treat others with respect, listen to diverse views with open minds, discuss submitted public comments, and foster discussions where participants can comfortably offer opposing opinions.” In keeping with this core value, the IACC and the NIMH Office of Autism Research Coordination (OARC) ask that members of the public who provide public comments or participate in meetings of the IACC also seek to treat others with respect and consideration in their communications and actions, even when discussing issues of genuine concern or disagreement.
Please Note: Remote Access:
The meeting will be open to the public through a conference call phone number and webcast live on the Internet. Members of the public who participate using the conference call phone number will be able to listen to the meeting but will not be heard. If you experience any technical problems with the webcast or conference call, please send an e-mail to IACCPublicInquiries@mail.nih.gov.

Special Accommodations:
Individuals wishing to participate in person or by using these electronic services and who need special assistance, such as captioning of the conference call or other reasonable accommodations, should submit a request to the Contact Person listed on this notice at least five days prior to the meeting.

Security:
Visitors will be asked to show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) and to state the purpose of their visit. Also as a part of security procedures, attendees should be prepared to present a photo ID at the meeting registration desk during the check-in process. Pre-registration is recommended. Seating will be limited to the room capacity and seats will be on a first come, first served basis, with expedited check-in for those who are pre-registered.

Meeting schedule subject to change.

Information about the IACC is available on the website: https://iacc.hhs.gov.

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meeting agenda Agenda
Time Event
 9:00 a.m.
Welcome, Introductions, Roll Call, and Approval of Minutes
Joshua Gordon, M.D., Ph.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC
 9:15
Update from the HHS Office of the National Autism Coordinator
Thomas Novotny, M.D.
Deputy Assistant Secretary for Health and National Autism Coordinator
Department of Health and Human Services
 9:25
Update from Autism Speaks
Angela Geiger
Chief Executive Officer of Autism Speaks
10:10
Translating Science into Practices: Autism Focused Intervention Resources and Modules
Sam Odom, Ph.D.
Director
Frank Porter Graham Child Development Institute
University of North Carolina-Chapel Hill
10:55
Morning Break
11:10
Committee Business
Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC

IACC Strategic Plan Update
  • Discussion of chapters and objectives
  • Discussion of duplication of effort statement
  • Discussion of budgetary requirements
12:00 p.m.
Lunch
 1:00
Oral Public Comment Session
 1:10
Summary of Written Public Comments
 1:20
IACC Committee Member Discussion of Public Comments
 1:40
Committee Business
Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination, NIMH, and Executive Secretary, IACC

  • IACC Strategic Plan Update (continued)
  • IACC Summary of Advances
 3:20
Afternoon Break
 3:30
NDAR Update
Greg Farber, Ph.D.
Director, Office of Technology Development and Coordination
NIMH
 4:00
Round Robin
 4:30
Closing Remarks and Adjournment

Schedule is subject to change. Meeting may end prior to or later than 4:30 PM depending on the needs of the committee. For more information on upcoming events, please see http://iacc.hhs.gov/meetings/iacc-meetings/

Next IACC Full Committee Meeting:

  • April 26, 2017 – NIH Main Campus, Bethesda, MD

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meeting speakers Speakers

Angela Geiger

President and CEO
Autism Speaks

Angela Timashenka Geiger joined Autism Speaks as president and CEO in February 2016. She brings to the role a record of accomplishment, leading efforts to expand and strengthen family services, field support, revenue development, strategic marketing, science, and advocacy. Most recently, Geiger was the chief strategy officer for the Alzheimer’s Association, a leading organization with global, national, and local impact. As part of the senior management team, Geiger worked day-to-day across all divisions and with the chapters to coordinate and execute strategy and to accelerate organizational growth. She has had accountability for more than $280 million in annual fundraising, programs and services reaching three million people a year, as well as branding and marketing, corporate initiatives, and diversity and inclusion. She successfully led efforts to develop and expand programming, marketing, and fundraising to increase awareness and improve the lives of those affected by Alzheimer’s disease. Prior to her work with the Alzheimer’s Association, Geiger held a variety of leadership roles at the American Cancer Society. During her eight-year tenure, she developed and implemented a business-to-business sales and market strategy, expanding the mission’s reach and increasing revenue. She also worked with the American Lung Association of Western Pennsylvania and for higher-education institutions. Geiger earned a B.A. and an M.B.A. from the University of Pittsburgh, and has contributed to a variety of conferences and publications. She is based in New York City.

Samuel L. Odom, PH.D

Director
Frank Porter Graham Child Development Institute
University of North Carolina-Chapel Hill

Dr. Samuel L. Odom is Director of the Frank Porter Graham Child Development Institute and Professor in the School of Education at the University of North Carolina-Chapel Hill. Dr. Odom co-directs the North Carolina Autism Research Center and is Principal Investigator of the Center on Secondary Education for Students with Autism Spectrum Disorders. He is the author or co-author of over 150 journal articles and book chapters. He has edited 10 books on early childhood intervention and developmental disabilities. Dr. Odom was previously a member of the National Academy of Sciences Committee on Educating Children with Autism, which published a report on effective educational programs for young children with ASD. He also was a member of the committee that developed the 10 Year Roadmap for Autism Research coordinated by the National Institute on Mental Health and the Interagency Autism Coordinating Committee. His current research is addressing treatment efficacy for children and youth with ASD, early intervention for toddlers with disabilities and their families, and professional development for teachers of children and youth with ASD. In 2013, he received the Arnold Lucius Gesell Prize awarded for career achievement in research on social inclusion and child development by the Theordor Hellbrugge Foundation, Munich, Germany. In September 2016, he was awarded an honorary doctoral degree from Stockholm University, Sweden.

Greg Farber, Ph.D.

Director, Office of Technology Development and Coordination
National Institute of Mental Health (NIMH)

In June 2011, Dr. Farber became the Director of the Office of Technology Development and Coordination at the National Institute of Mental Health (NIMH). That office is responsible for coordinating all technology development and bioinformatics activities at NIMH including common data element activities, overseeing the NIMH Data Archive, managing the NIMH component of the BRAIN Initiative, managing the Human Connectome project on behalf of the NIH Neuroscience Blueprint, and also overseeing the NIMH small business program. Dr. Farber came to NIMH from the National Center for Research Resources (NCRR), part of NIH. At NCRR, he managed a number of centers and individual investigator awards in technology development and bioinformatics, a cohort of interdisciplinary research centers, as well as the $1B ARRA construction program. Prior to arriving at NCRR, Dr. Farber held positions at Penn State University, where he rose to the rank of Associate Professor. His research included work on structural movies of enzyme action, molecular evolution, and mechanistic enzymology and was supported by a number of private and federal agencies. Dr. Farber has a B.S. from Penn State University in chemistry (1984) and a Ph.D. from MIT in physical chemistry (1988). His research in graduate school involved determining the three dimensional structure and mechanism of the enzyme xylose isomerase in the laboratory of Dr. Gregory A. Petsko. After graduate school, Dr. Farber received a Life Sciences Research Fellowship to learn mechanistic enzymology with Dr. W. W. Cleland at the University of Wisconsin.


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meeting comments Public Comments

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meeting materials Materials
Materials related to Committee Business:
Materials related to Speaker Presentations
Materials related to Autism Speaks Presentation
Materials related to the National Database for Autism Research (NDAR) Presentation

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meeting slides Slides
Presentation Presenter(s)
Translating Science into Practices: Autism Focused Intervention Resources and Modules (PDF – 2 MB) Samuel L. Odom, Ph.D., Director, Frank Porter Graham Child Development Institute
IACC Committee Business: Strategic Plan and Summary of Advances Updates (PDF – 423 KB) Susan Daniels, Ph.D., Director, Office of Autism Research Coordination, National Institute of Mental Health (NIMH) and Executive Secretary, IACC
NDAR Update (PDF – 3 MB) Greg Farber, Ph.D., Director, Office of Technology Development and Coordination

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meeting transcript Transcript

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meeting webcast Webcast

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