IACC 2016 Strategic Plan Update Working Groups
Purpose
The IACC formed seven working groups, corresponding to the 7 questions of the IACC Strategic Plan, to help develop the new 2016 IACC Strategic Plan update.
Meetings
Question 1 Working Group
- Conference Call #1: September 15, 2016
- Conference Call #2: September 27, 2016
- Conference Call #3: November 8, 2016
Question 2 Working Group
- Conference Call #1: September 7, 2016
- Conference Call #2: October 4, 2016
- Conference Call #3: November 28, 2016
Question 3 Working Group
- Conference Call #1: September 12, 2016
- Conference Call #2: October 12, 2016
- Conference Call #3: December 7, 2016
Question 4 Working Group
- Conference Call #1: September 23, 2016
- Conference Call #2: September 30, 2016
- Conference Call #3: December 12, 2016
Question 5 Working Group
- Conference Call #1: September 15, 2016
- Conference Call #2: September 26, 2016
- Conference Call #3: November 1, 2016
Question 6 Working Group
- Conference Call #1: September 20, 2016
- Conference Call #2: October 3, 2016
- Conference Call #3: November 1, 2016
Question 7 Working Group
- Conference Call #1: September 20, 2016
- Conference Call #2: October 6, 2016
- Conference Call #3: November 2, 2016
Working Group Rosters
- Question 1: When Should I Be Concerned?
- Question 2: How Can I Understand What Is Happening?
- Question 3: What Caused This to Happen and Can It Be Prevented?
- Question 4: Which Treatments and Interventions Will Help?
- Question 5: Where Can I Turn for Services?
- Question 6: What Does the Future Hold, Particularly for Adults?
- Question 7: What Other Infrastructure and Surveillance Needs Must Be Met?
Question 1 Working Group
Chair/Co-Chair
-
Dr. Alice Kau, Ph.D., Co-Chair
Health Scientist Administrator
Eunice Kennedy Shriver National Institute of Child Health and Human Development
National Institutes of Health
Bethesda, MD -
Dr. Ann Wagner, Ph.D., Co-Chair
Chief, Neurobehavioral Mechanisms of Mental Disorders Branch
Division of Developmental Translational Research
National Institute of Mental Health
National Institutes of Health
Bethesda, MD
IACC Members
-
Ms. Shannon Haworth, M.A.
Senior Program Specialist
Association of University Centers on Disabilities
Silver Spring, MD -
Dr. Jennifer Johnson, Ed.D.
Deputy Director, Administration on Intellectual and Developmental Disabilities
Administration for Community Living
Washington, DC -
Dr. Nicole Williams, Ph.D.
Program Manager
Congressionally Directed Medical Research Programs
U.S. Department of Defense
Frederick, MD
External Participants
-
Dr. Daniel Coury, MD
Section Chief, Behavioral Health Services
Section Chief, Child Development Center
Childrens Hospital Behavioral
Columbus, OH
-
Dr. Ami Klin, Ph.D.
Director, Marcus Autism Center, Children's Healthcare of Atlanta
Georgia Research Alliance Eminent Scholar
Professor & Chief, Division of Autism and Related Disorders
Department of Pediatrics, Emory University School of Medicine
Center for Translational Social Neuroscience, Emory University
Atlanta, GA -
Dr. Catherine Lord, Ph.D.
Professor of Psychology
Psychiatry and Founding Director
Center for Autism and Developing Brain
New York-Presbyterian Hospital
Weill Cornell Medicine
New York, NY -
Dr. Sandy Magana, Ph.D., MSW
Professor
University of Illinois at Chicago
Department of Disability and Human Development
Chicago, IL -
Dr. Karen Pierce, Ph.D.
Associate Professor
Department of Neurosciences Co-Director, Autism Center
University of California - San Diego
La Jolla, CA -
Dr. Diana L. Robins, Ph.D.
Associate Professor
Program Area Leader in Early Detection & Intervention
AJ Drexel Autism Institute
Drexel University
Philadelphia, PA -
Dr. Angela Scarpa, Ph.D.
Founder and Co-Director, VT Autism Clinic
Director, VT Center for Autism Research
Associate Professor, Department of Psychology
Virginia Tech
Blacksburg, VA -
Dr. Audrey Thurm, Ph.D.
Staff Scientist
Pediatrics and Developmental Neuroscience
National Institute of Mental Health
10 Center Drive, Rm 1C250, MSC 1255
Bethesda, MD
-
Ms. Debra Wagler, M.A., MComm
Public Health Analyst, Region VIII
Maternal and Child Health Bureau
Health Resources and Services Administration
Rockville, MD -
Dr. Amy M. Wetherby, Ph.D.
Dept. of Clinical Sciences, College of Medicine
Distinguished Research Professor
L.L. Schendel Professor of Communication Science & Disorders
Florida State University
Tallahassee, FL -
Dr. Lisa D. Wiggins, Ph.D.
Epidemiologist
Centers for Disease Control and Prevention
National Center on Birth Defects and Developmental Disabilities
Atlanta, GA
Question 2 Working Group
Chair/Co-Chair
-
Dr. Walter Koroshetz , M.D., Co-Chair
Director
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD -
Dr. Louis Reichardt, Ph.D., Co-Chair
Director
Simons Foundation Autism Research Initiative
New York, NY
IACC Members
-
Dr. David Amaral, Ph.D.
Distinguished Professor
Department of Psychiatry & Behavioral Sciences
Research Director, M.I.N.D. Institute
University of California - Davis
Sacramento, CA -
Dr. James F. Battey, M.D., Ph.D.
Director
National Institute on Deafness and Other Communication Disorders
National Institutes of Health
Bethesda, MD
-
Dr. Kevin Pelphrey, Ph.D.
Carbonell Family Professor in Autism and Neurodevelopmental Disorders
Professor, Department of Pharmacology and Physiology and Department of Pediatrics
Director, Autism and Neurodevelopmental Disorders Institute
George Washington University and Children's National Medical Center
Washington, DC - Dr. Robert H. Ring, Ph.D. Princeton, NJ
-
Dr. Nicole Williams, Ph.D.
Program Manager
Congressionally Directed Medical Research Programs
U.S. Department of Defense
Frederick, MD
External Participants
-
Dr. Katarzyna Chawarska, Ph.D.
Associate Professor
Child Study Center and of Pediatrics
Temple Medical Center
New Haven, CT -
Dr. Graeme Davis, Ph.D.
Professor
Neuroscience Graduate Program
University of California - San Francisco
San Francisco, CA -
Dr. Guoping Feng, Ph.D.
Poitras Professor of Neuroscience
McGovern Institute for Brain Research
Department of Brain and Cognitive Sciences
Massachusetts Institute of Technology Director of Model Systems and Neurobiology
Stanley Center for Psychiatric Research
Broad Institute of MIT and Harvard
Cambridge, MA -
Dr. Heather Cody Hazlett, Ph.D.
Assistant Professor
The University of North Carolina, Chapel Hill
Chapel Hill, NC -
Dr. Shafali Spurling Jeste, M.D.
Associate Professor in Psychiatry and Neurology
University of California - Los Angeles
Geffen School of Medicine
Los Angeles, CA -
Dr. Eric Klann, Ph.D.
Professor
Center for Neural Science
New York University
New York, NY -
Dr. James McPartland, Ph.D.
Associate Professor of Child Psychiatry and Psychology
Director, Yale Developmental Disabilities Clinic
Yale Child Study Center
New Haven, CT -
Dr. Christine Nordhal, Ph.D.
Assistant Professor
Department of Psychiatry and Behavioral Sciences
University of California - MIND Institute
Sacramento, CA -
Dr. Elizabeth Redcay, Ph.D.
Assistant Professor, Psychology
Director
Developmental Social Neuroscience Lab
University of Maryland
College Park, MD -
Dr. Flora Vaccarino, M.D.
Harris Professor, Child Study Center and Department of Neurobiology
Yale University
New Haven, CT
Question 3 Working Group
Chair/Co-Chair
-
Dr. David Amaral, Ph.D., Co-Chair
Distinguished Professor
Department of Psychiatry & Behavioral Sciences
Research Director, M.I.N.D. Institute
University of California - Davis
Sacramento, CA -
Dr. Cindy Lawler, Ph.D., Co-Chair
Chief
Genes, Environment and Health Branch
National Institute of Environmental Health Sciences
National Institutes of Health
Research Triangle Park, NC
IACC Members
-
Dr. Ruth Etzel, M.D., Ph.D./Tina Badahori
Director
Office of Children’s Health Protection
Office of Environmental Protection Agency
Environmental Protection Agency
Washington, DC -
Ms. Alison Tepper Singer, M.B.A.
President
Autism Science Foundation
New York, NY
External Participants
-
Dr. Raphael Bernier, PhD
Associate Professor, Department of Psychiatry & Behavioral Sciences
Clinical Director, Seattle Children's Autism Center Associate Director, Center on Human Development and Disability
University of Washington
Seattle, WA -
Dr. Evan Eichler, Ph.D.
Professor and HHMI Investigator
University of Washington
Seattle, WA -
Dr. Dani Fallin, Ph.D.
Professor
John Hopkins
Bloomberg School of Public Health
Baltimore, MD -
Dr. Daniel Geschwind, Ph.D.
Senior Associate Dean
Associate Vice Chancellor
Precision Medicine
University of California – Los Angeles
Los Angeles, CA -
Dr. Alycia Halladay, PhD
Chief Science Officer
Autism Science Foundation
New York, NY -
Dr. Irva Hertz-Picciotto, Ph.D.
Director, UC Davis Environmental Health Sciences Core Center
Professor & Vice Chair for Research, Department of Public Health Sciences
Director, MIND Institute Program in Environmental Epidemiology of Autism and Neurodevelopment
Co-Executive Director, Project TENDR (Targeting Environmental NeuroDevelopment Risks)
University of California - Davis
Davis, CA -
Dr. Elaine Hsiao, Ph.D.
Professor
Life Science, Integrative Biology And Physiology
University of California - Los Angeles
Los Angeles, CA -
Dr. Craig Newschaffer, Ph.D.
Professor
Director
The AJ Drexel Autism Institute
Philadelphia, PA -
Dr. Elise Robinson, Ph.D.
Affiliated Scientist
Broad Institute
Cambridge, MA -
Dr. Stephan Sanders, Ph.D.
Assistant Professor
Psychiatry
UCSF School of Medicine
San Francisco, CA -
Stephen Scherer, Ph.D., F.R.S.C.
Director, The Centre for Applied Genomics
Senior Scientist, Genetics & Genomic Biology
The Hospital for Sick Children Director, McLaughlin Centre for Molecular Medicine
Professor, Department of Molecular Genetics
University of Toronto Toronto, Canada -
Laura A. Schieve, Ph.D.
Team Lead, Epidemiology Team, Developmental Disabilities Branch
Division of Congenital and Developmental Disorders
National Center on Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention -
Ms. Joan A. Scott, M.S., C.G.C.
Deputy Director
Division of Services for Children with Special Health Needs Health Resources and Services Administration
Maternal and Child Health Bureau
Rockville, MD
Question 4 Working Group
Chair/Co-Chair
-
Dr. Kevin Pelphrey, Ph.D., Chair
Carbonell Family Professor in Autism and Neurodevelopmental Disorders
Professor, Department of Pharmacology and Physiology and Department of Pediatrics
Director, Autism and Neurodevelopmental Disorders Institute
George Washington University and Children's National Medical Center
Washington, DC
IACC Members
-
Dr. James Ball, Ed.D.
President and CEO
JB Autism Consulting
Cranbury, NJ -
Ms. Samantha Crane, J.D.
Director of Public Policy
Autistic Self Advocacy Network
Washington, DC -
Dr. Geraldine Dawson, Ph.D.
Professor
Department of Psychiatry and Behavioral Science
Duke University School of Medicine
Durham, NC -
Dr. Tiffany R. Farchione, M.D.
US Food and Drug Administration
Center for Drug Evaluation and Research
Division of Psychiatry Products
Washington, DC -
Ms. Melissa L. Harris
Centers for Medicare & Medicaid Services
Disabled and Elderly Health Programs Group
Center for Medicare and Medicaid Services
U.S. Department of Health and Services
Baltimore, MD -
Dr. Elisabeth Kato, Ph.D.
Medical Officer
Agency for Healthcare Research and Quality
Rockville, MD -
Dr. Alice Kau, Ph.D.
Health Scientist Administrator
Eunice Kennedy Shriver National Institute of Child Health and Human Development
National Institutes of Health
Bethesda, MD -
Dr. David S. Mandell, Sc.D.
Associate Professor
Department of Psychiatry and Pediatrics
Center for Mental Health Policy and Services Res.
University of Pennsylvania, School of Medicine
Philadelphia, PA -
Dr. Louis Reichardt, Ph.D.
Director
Simons Foundation Autism Research Initiative
New York, NY - Dr. Robert H. Ring, Ph.D. Princeton, NJ
External Participants
-
Dr. Timothy Buie, M.D.
Director
Gastroenterology and Nutrition at the Laure Center for Autism
Massachusetts General Hospital
Boston, MA -
Dr. Connie Kasari, Ph.D.
Professor
Psychological Studies
Education and Psychiatry
University of California - Los Angeles
Los Angeles, CA -
Ms. Christy Kavulic
Associate Division Director
Early Childhood Team
Office of Special Education and Rehabilitative Services
U.S. Department of Education -
Dr. Alex Kolevzon, MD
Professor of Psychiatry and Pediatrics
Director, Child and Adolescent Psychiatry
Clinical Director, Seaver Autism Center
Icahn School of Medicine at Mount Sinai
Mount Sinai Health System
New York, NY -
Dr. Elizabeth Laugeson, Ph.D.
Director, Early Childhood Clubhouse Program
Clinical Instructor, Center for Autism Research Treatment
David Geffen School of Medicine
Los Angeles, CA - Mr. Alexander Leonessa National Science Foundation
-
Dr. Beth Malow, M.D.
Professor
Vanderbilt Department of Neurology
Vanderbilt University Medical Center
Nashville, TN -
Dr. Nancy Minshew, M.D.
University of Pittsburgh Endowed Chair in Autism Research
Professor, Psychiatry and Neurology
Department of Psychiatry
University Pittsburgh
Pittsburgh, PA -
Dr. Samuel L. Odom, Ph.D.
Director, Frank Porter Graham Child Development Institute
University of North Carolina at Chapel Hill
Chapel Hill, NC -
Dr. Mustafa Sahin, M.D., Ph.D.
Associate Professor, Neurology
Harvard Medical School
Assistant in Neurology
Boston Children’s Hospital
Boston, MA -
Dr. Frederick Shic, Ph.D.
Assistant Professor, Child Study Center and Computer Science
Director, Technology and Innovation Laboratory
Associate Director, Yale Early Social Cognition Lab
New Haven, CT -
Dr. Phillip S. Strain, Ph.D.
Director
PELE Center/Professor, ED. Psych & Early Childhood SPED
University of Colorado - Denver
Denver, CO -
Dr. Denis G. Sukhodolsky, Ph.D.
Assistant Professor
Yale Child Study Center
Yale School of Medicine
New Haven, CT -
Dr. Zachary Warren, Ph.D.
Associate Professor, Pediatrics, Psychiatry, & Special Education
Executive Director, Treatment and Research Institute for Autism Spectrum Disorders
Director of Autism Research, Department of Pediatrics and Vanderbilt Kennedy Center
Nashville, TN
Question 5 Working Group
Chair/Co-Chair
-
Ms. Shannon Haworth, M.A., Co-Chair
Senior Program Specialist
Association of University Centers on Disabilities
Silver Spring, MD -
Dr. David S. Mandell, Sc.D., Co-Chair
Associate Professor
Department of Psychiatry and Pediatrics
Center for Mental Health Policy and Services Res.
University of Pennsylvania, School of Medicine
Philadelphia, PA
IACC Members
-
Ms. Samantha Crane, J.D.
Director of Public Policy
Autistic Self Advocacy Network
Washington, DC -
Ms. Melissa L. Harris
Centers for Medicare & Medicaid Services
Disabled and Elderly Health Programs Group
Center for Medicare and Medicaid Services
U.S. Department of Health and Services
Baltimore, MD -
Ms. Laura Kavanagh, MPP
Deputy Administrator
Maternal and Child Health Bureau
Health Resources and Services Administration
Rockville, MD -
Mr. Brian Parnell, M.S.W.
Medicaid Autism Waiver Administrator
Utah Department of Human Services
Div. of Services for People w/Disabilities
Draper, UT -
Dr. Larry Wexler, Ed.D
Office of Special Education and
Rehabilitative Services
U.S. Department of Education
Washington DC
External Participants
-
Dr. Lauren Brookman-Frazee, Ph.D.
Associate Professor
Department of Psychiatry
University of California - San Diego
San Diego, CA -
Dr. Robert Cimera, Ph.D.
Professor, Lifespan Development & Educational Sciences
Kent State University
Kent, OH -
Mr. Daniel Davis
Health Insurance Specialist
Center for Integrated Programs
Administration for Community Living
U.S. Department of Health and Human Services
Washington, DC -
Dr. Peter F. Gerhardt, Ed.D.
President
Peter Gerhardt Associates, LLC
New York, NY -
Ms. Lisa Goring
Executive Vice President
Programs and Services
Autism Speaks
New York, NY -
Ms. Leticia Manning, MPH
Lieutenant Commander, United States Public Health Service
Maternal and Child Health Bureau
Division of Services for Children with Special Health Needs
Health Resources and Services Administration
Rockville, MD -
Dr. Cathy Pratt, Ph.D., BCBA-D
Director
Indiana Resource Center for Autism
Indiana University Bloomington
Bloomington, IN -
Ms. Anne Roux, MPH
Research Scientist, Life Course Outcomes Research Program
A.J. Drexel Autism Institute
Drexel University
Philadelphia, PA -
Dr. Aubyn Stahmer, Ph.D.
Associate Professor
Psychiatry and Behavioral Sciences
University of California - Davis MIND Institute
Sacramento, CA -
Ms. Jane A. Tilly
ACL/AOA
Administration for Community Living
U.S. Department of Health and Human Services
Washington, DC -
Dr. Juliann Woods, Ph.D., CCC-SLP
Professor and Associate Dean – Research
School of Communication Science and Disorders
Florida State University
Tallahassee, FL
Question 6 Working Group
Chair/Co-Chair
-
Mr. Brian Parnell, M.S.W., Co-Chair
Medicaid Autism Waiver Administrator
Utah Department of Human Services
Div. of Services for People w/Disabilities
Draper, UT -
Dr. Julie Lounds Taylor, Ph.D., Co-Chair
Assistant Professor of Pediatrics and Special Education
Vanderbilt Kennedy Center Investigator
Vanderbilt University
Nashville, TN
IACC Members
-
Ms. Samantha Crane, J.D.
Director of Public Policy
Autistic Self Advocacy Network
Washington, DC -
Ms. Amy Goodman
Self-Advocate
Charles Town, WV -
Dr. David S. Mandell, Sc.D.
Associate Professor
Department of Psychiatry and Pediatrics
Center for Mental Health Policy and Services Res.
University of Pennsylvania, School of Medicine
Philadelphia, PA -
Dr. Kevin Pelphrey, Ph.D.
Carbonell Family Professor in Autism and Neurodevelopmental Disorders
Professor, Department of Pharmacology and Physiology and Department of Pediatrics
Director, Autism and Neurodevelopmental Disorders Institute
George Washington University and Children's National Medical Center
Washington, DC -
Dr. Edlyn Peña, Ph.D.
Associate Professor
Educational Leadership
Director, Doctoral Studies
California Lutheran University
Thousand Oaks, CA -
Ms. Robyn Schulhof, M.A.
Senior Public Health Analyst
Leadership Education in Neurodevelopmental and Related Disabilities
Associate of University Centers on Disabilities Cooperative Agreement
Maternal and Child Health Bureau
Health Resources and Services Administration
Rockville, MD -
Ms. Alison Tepper Singer, M.B.A.
President
Autism Science Foundation
New York, NY
External Participants
-
Mr. Scott Badesch
President/Chief Executive Officer
Autism Society
Bethesda, MD -
Dr. Vanessa Hus Bal, Ph.D.
Postdoctoral Scholar
Department of Psychiatry
University of California - San Francisco
San Francisco, CA -
Dr. Somer L. Bishop, Ph.D.
Assistant Professor
Department of Psychiatry
University of California - San Francisco
San Francisco, CA -
Dr. Leslie J. Caplan, Ph.D.
Rehabilitation Program Specialist
National Institute on Disability, Independent Living, and Rehabilitation Research
Administration for Community Living
U.S. Department of Health and Human Services
Washington, DC -
Dr. Nancy Cheak-Zamora, Ph.D.
Assistant Professor, Department of Health Science
University of Missouri School of Health Professions
Columbia, MO -
Dr. Laura Grofer Klinger, Ph.D.
Director, TEACCH Autism Program
Associate Professor, Psychiatry
University of North Carolina
Chapel Hill, NC -
Ms. Ophelia M. McLain
Administration on Intellectual and Developmental Disabilities
Administration for Community Living
U.S. Department of Health and Human Services
Washington, DC -
Ms. JaLynn Prince
President and Founder
Madison House Autism Foundation
Rockville, MD -
Dr. Paul Shattuck, Ph.D.
Associate Professor
Leader – Life Course Outcomes Research Program
A.J. Drexel Autism Institute
Philadelphia, PA -
Ms. Nancy Spencer
Nurse Specialist Research
Office of the Clinical Director
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
Bethesda, MD -
Dr. Susan White, Ph.D.
Faculty, Department of Psychology
Core Faculty, Clinical Science
Co-Director, VT Autism Clinic
Psychology Department (0436)
Blacksburg VA
Question 7 Working Group
Chair/Co-Chair
-
Ms. Alison Tepper Singer, M.B.A., Chair
President
Autism Science Foundation
New York, NY
IACC Members
-
Dr. Deborah (Daisy) Christensen, Ph.D.
Epidemiologist
Surveillance Team Lead
Developmental Disabilities Branch
National Center on Birth Defects and Developmental Disabilities
Centers for Disease Control and Prevention
Atlanta, GA -
Ms. Samantha Crane, J.D.
Director of Public Policy
Autistic Self Advocacy Network
Washington, DC -
Dr. David S. Mandell, Sc.D.
Associate Professor
Department of Psychiatry and Pediatrics
Center for Mental Health Policy and Services Res.
University of Pennsylvania, School of Medicine
Philadelphia, PA - Dr. Robert H. Ring, Ph.D. Princeton, NJ
External Participants
-
Dr. Adriana DiMartino, Ph.D.
Assistant Professor
Department of Child and Adolescent Psychiatry
New York University School of Medicine
New York, NY -
Dr. Maureen Durkin, Ph.D, DrPH
Professor, Population Health Sciences and Pediatrics
Vice-Chair, Department of Population Health Sciences
Director, Population Health Graduate Program
University of Wisconsin School of Medicine and Public Health
Madison, WI -
Dr. Michelle Freund, Ph.D.
Program Officer
National Institute of Mental Health
National Institutes of Health
Rockville, MD -
Mr. Dan Hall
Manager
National Database for Autism Research
National Institute of Mental Health
National Institutes of Health
Rockville, MD -
Dr. Robin L. Harwood, Ph.D.
Health Scientist
Division of Research
Office of Epidemiology and Research
Health Resources and Services Administration
Maternal and Child Health Bureau
Rockville, MD -
Dr. Paul Lipkin, M.D.
Director, Medical Informatics, Kennedy Krieger Institute
Director, Interactive Autism Network at Kennedy Krieger Institute
Associate Professor of Pediatrics
Johns Hopkins Medicine
Baltimore, MD -
Ms. Gretchen Navidi
Program Coordination Manager | NIMH Data Archive (NDA)
Office of Technology Development and Coordination
Office of the NIMH Director
National Institute of Mental Health
National Institutes of Health
Rockville, MD -
Ms. Jessica Rast, MPH
Research Associate
Life Course Outcomes Research Program
A.J. Drexel Autism Institute
Philadelphia, PA -
Dr. Catherine E. Rice, Ph.D.
Professor, Psychiatry and Behavioral Sciences
Director, Emory Autism Center
Emory University School of Medicine
Atlanta, GA
-
Michael Rosanoff, MPH
Director, Public Health Research
Autism Speaks
New York, NY -
Dr. Andy Shih, Ph.D.
Senior VP, Scientific Affairs
Autism Speaks
New York, NY