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Report to Congress Cover 2017
2017 Report to Congress
Young Adults and Transitioning Youth with Autism Spectrum Disorder

Appendices

References

1Wilens TE, Rosenbaum JF. Transitional age youth:A new frontier in child and adolescent psychiatry.J Amer Acad Psych. 2013 Sept;52(9):887–90. DOI:http://dx.doi.org/10.1016/j.jaac.2013.04.020.

2American Psychiatric Association. (2013). Diagnosticand statistical manual of mental disorders (5th ed.).

3Christensen DL, Baio J, Braun KV, et al. Prevalenceand characteristics of autism spectrum disorderamong children aged 8 years — Autism andDevelopmental Disabilities Monitoring Network,11 Sites, United States, 2012. MMWR Surveill Summ2016;65(No. SS-3)(No. SS-3):1–23. DOI:http://dx.doi.org/10.15585/mmwr.ss6503a1.

4Government Accountability Office. Youth with Autism:Roundtable Views of Services Needed During theTransition into Adulthood. GAO-17–109.

5Kogan MD, Blumberg SJ, Schieve LA, Boyle CA,Perrin JM, Ghandour RM, Singh GK, Strickland BB,Trevathan E, van Dyck PC. Prevalence of parent-reported diagnosis of autism spectrum disorderamong children in the US, 2007. Pediatrics. 2009Nov;124(5):1395–403. doi: 10.1542/peds.2009–1522.Epub 2009 Oct 5.

6The Child and Adolescent Health MeasurementInitiative, Johns Hopkins Bloomberg School ofPublic Health. (2016.) Experience Matters: A Viewinto the Health and Well-being of US Children andFamilies with Autism Spectrum Disorder (ASD).Retrieved 11/15/2016 from http://childhealthdata.org/docs/default-source/cahmi/asdchartbookfinal.pdf?sfvrsn=2

7Zablotsky B, Black LI, Maenner MJ, et al. Estimatedprevalence of autism and other developmentaldisabilities following questionnaire changes in the2014 National Health Interview Survey. NationalHealth Statistics Reports; no 87. Hyattsville, MD:National Center for Health Statistics. 2015.

8Lipscomb S, Haimson J, Liu AY, Burghard, J, JohnsonDR, & Thurlow ML. Preparing for life after high school:The characteristics and experiences of youth in specialeducation. Findings from the National LongitudinalTransition Study 2012. Volume 2: Comparisonsacross disability groups: Executive summary (NCEE2017–4019). Washington, DC: U.S. Department of Education, 2017. This report is available at https://ies.ed.gov/ncee/projects/evaluation/disabilities_nlts2012.asp

9Van Wijngaarden-Cremers PJ, van Eeten E,Groen WB, Van Deurzen PA, Oosterling IJ, & Vander Gaag RJ. Gender and age differences in thecore triad of impairments in autism spectrumdisorders: a systematic review and meta-analysis.Journal of Autism and Developmental Disorders.2014;44(3):627–35.

10Yurkiewicz, I. (2010). Overlooked andUnderdiagnosed: Distinct Expression of AspergersSyndrome in Females. The Yale Review ofUndergraduate Research in Psychology, 80

11Personal communication, Nov 8, 2016. Drexel AutismInstitute, Drexel University, PA.

12Parker JG, Rubin KH, Erath SA, Wojslawowicz JC,Buskirk AA. Peer relationships, child development,and adjustment: a developmental psychopathologyperspective. In Developmental psychopathology, 2nd ed.(Eds Cicchetti D & Cohen DJ). 2015. Wiley: HobokenNJ. doi: 10.1002/9780470939383.ch12

13Sterzing PR, Shattuck PT, Narendorf SC, WagnerM, Cooper BP. Bullying involvement and AutismSpectrum Disorders: prevalence and correlates ofbullying involvement among adolescents with anAutism Spectrum Disorder. Arch Pediatr AdolescMed. 2012;166(11):1058–1064. doi:10.1001/archpediatrics.2012.790

14Roux AM, Rast JE, Anderson KA, and Shattuck PT.2017 National Autism Indicators Report: DevelopmentalDisability Services and Outcomes in Adulthood.Philadelphia, PA: Life Course Outcomes Program, A.J.Drexel Autism Institute, Drexel University, 2017.

15Newman L, Wagner M, Knokey A-M, Marder C, Nagle K, Shaver D, Wei X, with Cameto R, Contreras E, Ferguson K, Greene S, Schwarting M. The Post- High School Outcomes of Young Adults with Disabilities up to 8 Years After High School. A Report from the National Longitudinal Transition Study-2 (NLTS2) (NCSER 2011–3005). 2011. Menlo Park, CA: SRI International. Available at https://nlts2.sri.com/reports/2011_09_02/index.html

16Roux AM, Shattuck PT, Rast JE, Rava JA, Anderson KA. 2015 National Autism Indicators Report: Transition into Young Adulthood. Philadelphia, PA: Life Course Outcomes Research Program, A.J. Drexel Autism Institute, Drexel University, 2015.

17Schendel DE, Overgaard M, Christensen J. Association of Psychiatric and Neurologic Comorbidity with mortality among persons with autism spectrum disorder in a Danish population. JAMA Pediatr. 2016;170(3):243–250. doi:10.1001/ jamapediatrics.2015.3935.

18Hirvikoski T, Mittendorfer-Rutz E, Boman M, Larsson H, Lichtenstein P, Bölte S. Premature mortality in autism spectrum disorder. The British Journal of Psychiatry, Nov 2015. DOI: 10.1192/bjp.bp.114.160192

19Croen LA, Zerbo O, Qian Y, Massolo ML, Rich S, Sidney S, Kripke C. The health status of adults on the autism spectrum. Autism. 2015 Oct;19(7):814–23. doi: 10.1177/1362361315577517. Epub 2015 Apr 24.

20Cusack J, Shaw S, Spiers J, Sterry R. Personal tragedies, public crisis: The urgent need for a national response to early death in autism. March 2016. Retrieved 11/7/2016 from https://www.sciencemag.org/sites/default/files/documents/AUTISTICA%20REPORT%20-%20Personal%20Tragedies,%20Public%20Crisis.pdf.

21Jacob A, Scott M, Falkmer M, Falkmer T. The costs and benefits of employing an adult with Autism Spectrum Disorder: a systematic review. PLoS ONE. 2015;10(10): e0139896. https://doi.org/1http0.1371/journal.pone.0139896

22Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee (IACC). 2014–2015 IACC Autism Spectrum Disorder Research Portfolio Analysis Report. October 2017. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website: https://iacc.hhs.gov/portfolio-analysis/2015/index.shtml

23Eseigbe E, Taju N, Lateef S. Challenges in care of the child with special health care needs in a resource limited environment. J Neurosci Rural Pract. 2013 Apr-Jun;4(2):204–206. doi: 10.4103/0976–3147.112770

24Cappadocia MC, Weiss JA, Pepler DJ. Bullying experiences among children and youth with Autism Spectrum Disorders. Autism Dev Disord. 2012;42:266. doi:10.1007/s10803–011–1241-x

25Autism CARES Act of 2014. Retrieved 11/10/2016 from https://www.congresshttp.gov/bill/113th-congress/house-bill/4631/

26Interagency Autism Coordinating Committee (IACC). 2015 IACC Summary of Advances in Autism Spectrum Disorder Research. April 2016. Retrieved December 30, 2016, from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website: https://iacc.hhs.gov/publications/summary-of-advances/2015/.

27Government Accountability Office. Students with Disabilities: Better Federal Coordination Could Lessen Challenges in the Transition from High School. GAO- 12–594: Published: Jul 12, 2012. Publicly Released: Aug 7, 2012. Retrieved 2/12/14 from http://www. gao.gov/products/GAO-12–594

28Federal Partners in Transition Workgroup. The 2020 Federal Youth Transition Plan: A Federal Interagency Strategy. February 2015. Retrieved 2/1/17 from https://www.pcpcc.org/about/medical-home

29American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians- American Society of Internal Medicine. A Consensus Statement on Health Care Transitions for Young Adults With Special Health Care Needs. Pediatrics. December 2002, VOLUME 110 / ISSUE Supplement 3.

30Patient Centered Primary Care Collaborative. Retrieved 2/28/17 from https://www.pcpcc.org/about/medical-home


Appendix 1

Autism CARES Act of 2014, amending Sec. 399DD(b) of the Public Health Service Act

  1. REPORT ON YOUNG ADULTS AND TRANSITIONING YOUTH.—
    1. IN GENERAL.—Not later than 2 years after the date of enactment of the Autism CARES Act of 2014, the Secretary of Health and Human Services, in coordination with the Secretary of Education and in collaboration with the Secretary of Transportation, the Secretary of Labor, the Secretary of Housing and Urban Development, and the Attorney General, shall prepare and submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, a report concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood.
    2. CONTENTS.—The report submitted under paragraph (1) shall contain—
      1. demographic characteristics of youth transitioning from school-based to community-based supports;
      2. an overview of policies and programs relevant to young adults with autism spectrum disorder relating to post-secondary school transitional services, including an identification of existing Federal laws, regulations, policies, research, and programs;
      3. proposals on establishing best practices guidelines to ensure—
        1. interdisciplinary coordination between all relevant service providers receiving Federal funding;
        2. coordination with transitioning youth and the family of such transitioning youth; and
        3. inclusion of the individualized education program for the transitioning youth, as prescribed in section 614 of the Individuals with Disabilities Education Act (20 U.S.C. 1414);
      4. comprehensive approaches to transitioning from existing school-based services to services available during adulthood, including—
        1. services that increase access to, and improve integration and completion of, post-secondary education, peer support, vocational training (as defined in section 103 of the Rehabilitation Act of 1973 (29 U.S.C. 723)), rehabilitation, self-advocacy skills, and competitive, integrated employment;
        2. community-based behavioral supports and interventions;
        3. community-based integrated residential services, housing, and transportation;
        4. nutrition, health and wellness, recreational, and social activities;
        5. personal safety services for individuals with autism spectrum disorder related to public safety agencies or the criminal justice system; and
        6. evidence-based approaches for coordination of resources and services once individuals have aged out of post-secondary education; and
      5. proposals that seek to improve outcomes for adults with autism spectrum disorder making the transition from a school-based support system to adulthood by—
        1. increasing the effectiveness of programs that provide transition services;
        2. increasing the ability of the relevant service providers described in subparagraph(C) to provide supports and services to underserved populations and regions;
        3. increasing the efficiency of service delivery to maximize resources and outcomes, including with respect to the integration of and collaboration among services for transitioning youth;
        4. ensuring access to all services necessary to transitioning youth of all capabilities; and
        5. encouraging transitioning youth to utilize all available transition services to maximize independence, equal opportunity, full participation, and self-sufficiency.”

Appendix 2

Authorizing Legislation by Agency and Program

Agency Program Name
(FY 2013 to FY 2016)
Legislative Authority

Agency

U.S. Department of Health and Human Services (HHS)

Program Name

Interagency Autism Coordinating Committee (IACC)

Legislative Authority

Section 399CC of the Public Health Service Act (42 USC 280i-2), as amended by the Autism CARES Act of 2014 (P.L.113–157)

Agency

HHS/Administration for Children and Families (ACF)

Program Name

Adoption and Foster Care Analysis and Reporting System (AFCARS)

Legislative Authority

Title IV-E of the Social Security Act (42 USC §679); 45 CFR 1355.40 et seq.

Program Name

National Child Abuse and Neglect Data System (NCANDS)

Legislative Authority

The 1988 Child Abuse Prevention and Treatment Act (CAPTA), (42 USC §5104) as amended by the CAPTA Reauthorization Act of 2010 (P.L. 111–320)

Program Name

National Youth in Transition Database (NYTD)

Legislative Authority

Section 477 of the Social Security Act (42 USC §677) as amended by the Foster Care Independence Act of 1999 (P.L. 106–169); 45 CFR 1356.80 et seq.

Program Name

Longitudinal Studies of Child Abuse and Neglect (LONGSCAN)

Legislative Authority

The 1988 Child Abuse Prevention and Treatment Act (CAPTA), (42 USC §5101 et seq.) as amended by the CAPTA Reauthorization Act of 2010 (P.L. 111–320)

Program Name

National Incidence Study of Child Abuse and Neglect (NIS)

Legislative Authority

P.L. 93–247; P.L. 98–457 (1984); Child Abuse Prevention, Adoption, and Family Services Act of 1988 (P.L. 100–294); The Child Abuse, Domestic Violence, Adoption and Family Services Act of 1992 (P.L. 102–295); The Keeping Children and Families Safe Act of 2003 (P.L. 108–36)

Program Name

National Survey of Child and Adolescent Wellbeing (NSCAW)

Legislative Authority

The Personal Responsibility and Work Opportunity Reconciliation Act of 1996 (P.L. 104–193)

Agency

HHS/Administration for Community Living (ACL)

Program Name

Administration on Intellectual and Developmental Disabilities (AIDD)

Legislative Authority

Developmental Disabilities Assistance and Bill of Rights Act of 2000 (P.L. 106–402)

Program Name

Independent Living Services (ILS) Program

Legislative Authority

Title VII, Chapter I, Part B of the Rehab Act, as amended by the Workforce Innovation and Opportunity Act of 2014, 29 USC §§796e-796e-3

Program Name

Centers for Independent Living (CILs) Program

Legislative Authority

Title VII, Chapter I, Part C of the Rehab Act, as amended by the Workforce Innovation and Opportunity Act of 2014, 29 USC §§ 796f-796-f-6

Program Name

National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)

Legislative Authority

29 USC §§ 760–766

Program Name

State Grants for Assistive Technology Program

Legislative Authority

Assistive Technology Act of 1998, as amended by the Assistive Technology Act of 2004 (P.L. 108–364).

Program Name

State Protection and Advocacy Systems for Assistive Technology (PAAT) program

Legislative Authority

Assistive Technology Act of 1998, as amen

Agency

HHS/Agency for Healthcare Research and Quality (AHRQ)

Program Name

Project: “A Deliberative Approach to Develop Autism Data Collection in Massachusetts”

Legislative Authority

Title IX of the Public Health Service Act (42 USC 299–299c-7) as amended by P.L. 106–129

Agency

HHS/Centers for Disease Control and Prevention (CDC)

Program Name

Autism and Developmental Disabilities Monitoring Network (ADDM)

Legislative Authority

Section 399AA of the Public Health Service Act (42 USC 280i), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

Study to Explore Early Development (SEED)

Legislative Authority

Section 399AA of the Public Health Service Act (42 USC 280i), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

National Health Interview Survey (NHIS)

Legislative Authority

Section 399AA of the Public Health Service Act (42 USC 280i), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Agency

HHS/Centers for Medicare & Medicaid Services (CMS)

Program Name

Federal Medicaid program

Legislative Authority

Title XIX of the Social Security Act

Program Name

Early and Periodic Screening, Diagnostic and Treatment (EPSDT) benefit

Legislative Authority

Title XIX of the Social Security Act

Agency

HHS/Health Resources and Services Administration (HRSA)

Program Name

Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND)

Legislative Authority

Section 399BB of the Public Health Service Act (42 USC 280i-1), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

Leadership Education in Developmental-Behavioral Pediatrics (DBP)

Legislative Authority

Section 399BB of the Public Health Service Act (42 USC 280i-1), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

Interdisciplinary Technical Assistance Center (ITAC)

Legislative Authority

Section 399BB(e)(2) of the Public Health Service Act (42 USC 280i-1(e)(2)), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

Autism Research Networks Program

Legislative Authority

Section 399BB(f) of the Public Health Service Act (42 USC 280i-1(f)), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

R40 Autism Research Program

Legislative Authority

Section 399BB(f) of the Public Health Service Act (42 USC 280i-1(f)), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

National Survey of Children's Health (NSCH)/ National Survey of Children with Special Health Care Needs (NS-CSHCN)

Legislative Authority

Section 501(a) of Title V of the Social Security Act

Program Name

State Systems Grants

Legislative Authority

Section 399BB(b)(6) of the Public Health Service Act (42 USC 280i-1(b)(6)), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

State Public Health Autism Resource Center (SPHARC)

Legislative Authority

Section 399BB of the Public Health Service Act (42 USC § 280i- 1), as amended by the Autism CARES Act of 2014 (P.L. 113–157)

Program Name

Title V Maternal and Child Health (MCH) Services Block Grant Program

Legislative Authority

Section 501(a) of Title V of the Social Security Act

Program Name

Got Transition/Center for Health Care Transition

Legislative Authority

Section 502(a)(1) of Title V of the Social Security Act

Agency

HHS/Indian Health Service (IHS)

Program Name

IHS Telebehavioral Health Center of Excellence (TBHCE)

Legislative Authority

Snyder Act, 25 USC § 13, and 25 USC § 1665a

Agency

HHS/National Institutes of Health (NIH)

Program Name

NIMH Services Research for Autism Spectrum Disorder across the Lifespan (ServASD) Initiative

Legislative Authority

Sections 301 and 405 of the Public Health Service Act as amended (42 USC 241 and 284) and under Federal Regulations 42 CFR Part 52 and 45 CFR Part 75

Program Name

Grants funded through NIMH and NICHD extramural research programs

Legislative Authority

Sections 301 and 405 of the Public Health Service Act as amended (42 USC 241 and 284) and under Federal Regulations 42 CFR Part 52 and 45 CFR Part 75

Program Name

Project SEARCH

Legislative Authority

A public-private partnership program in which NIH participates; there is no legislative authority for this program, but some of the partner agencies are authorized to deliver services under various legislative authorities

Agency

HHS/Substance Abuse and Mental Health Services Administration (SAMHSA)

Program Name

Child Mental Health Initiative (CMHI)

Legislative Authority

Sections 561- 565 of the Public Health Service Act, as amended

Program Name

“Now Is The Time” Healthy Transitions Program (NITT-HT)

Legislative Authority

Section 520A of the Public Health Service Act, as amended

Program Name

Now Is the Time Technical Assistance (NITT-TA) Center

Legislative Authority

Section 520A of the Public Health Service Act, as amended

Agency

U.S. Department of Defense (DOD)

Program Name

Autism Research Program (ARP) within the Congressionally Directed Medical Research Programs (CDMRP)

Legislative Authority

Consolidated Appropriations Act of 2016 (P.L. 114–113)

Agency

U.S. Department of Education (ED)/Office of Special Education and Rehabilitative Services (OSERS)

Program Name

IDEA Formula Grant Program

Legislative Authority

Part B of the Individuals with Disabilities Education Act (IDEA), 20 USC §§1401, 1411–1419

Agency

ED/Office of Special Education and Rehabilitative Services (OSERS)

Program Name

IDEA Discretionary Grant Program

Legislative Authority

Part D of the Individuals with Disabilities Education Act (IDEA), 20 USC §§ 1450–1482

Program Name

Promoting the Readiness of Minors in Supplemental Security Income (PROMISE)

Legislative Authority

Fiscal Year 2012 Consolidated Appropriations Act (P.L. 112–74); the Department of Defense Military Construction and Veterans Affairs and Full-Year Continuing Appropriations Act 2013 (P.L. 113–6); and, the Appropriations Act of 2014.

Program Name

Vocational Rehabilitation State Grants

Legislative Authority

Title I of the Rehabilitation Act of 1973, as amended by Workforce Innovation and Opportunity Act of 2014, 29 USC §§ 701 - 733

Program Name

American Indian Vocational Rehabilitation Services Program

Legislative Authority

Part C of Title I of the Rehabilitation Act of 1973, as amended by Workforce Innovation and Opportunity Act of 2014, 29 USC § 741

Program Name

State Supported Employment Services Program

Legislative Authority

Title VI of the Rehabilitation Act of 1973, as amended by Workforce Innovation and Opportunity Act of 2014, 29 USC §§ 795g – 795m

Program Name

Rehabilitation Training Program

Legislative Authority

Section 302 of the Rehabilitation Act of 1973, as amended by Workforce Innovation and Opportunity Act of 2014, 29 USC § 772

Program Name

Demonstration and Training Programs

Legislative Authority

Section 303 of the Rehabilitation Act of 1973, as amended by Workforce Innovation and Opportunity Act of 2014, 29 USC § 773

Program Name

Parent Information and Training Program

Legislative Authority

Section 303 of the Rehabilitation Act of 1973, as amended by Workforce Innovation and Opportunity Act of 2014, 29 USC § 773

Agency

ED/Office for Civil Rights (OCR)

Program Name

Enforcement of Section 504 which prohibits discrimination on the basis of disability in programs or activities that receive federal financial assistance from ED

Legislative Authority

Section 504 of the Rehabilitation Act of 1973, 29 USC § 794

Program Name

Enforcement of Title II of the ADA non-discrimination on the basis of disability in public elementary, secondary and postsecondary schools

Legislative Authority

The Americans with Disabilities Act of 1990, as amended, 42 U.S.C. §§ 12131–12134

Agency

ED/Institution of Education Sciences (IES)/National Center for Special Education Research (NCSER)

Program Name

IES-NCSER Special Education Research Grants/Transition Outcomes for Secondary Students with Disabilities

Legislative Authority

Part E of the Education Sciences Reform Act of 2002, 20 U.S.C. 9567 -9567b

Agency

ED/IES/National Center for Education Evaluation and Regional Assistance (NCEE)

Program Name

IES-NCEE Special Education Studies and Evaluations

Legislative Authority

Section 664 of the Individuals with Disabilities Education Act (IDEA), 20 U.S.C. 1464

Agency

ED/IES/National Center for Education Statistics (NCES)

Program Name

IES-NCES Middle Grades Longitudinal Study

Legislative Authority

Part C of the Education Sciences Reform Act of 2002, 20 U.S.C. 9541–9545

Agency

ED/Office of Postsecondary Education (OPE)

Program Name

Model Transition Programs for Students with Intellectual Disabilities into Higher Education (TPSID)

Legislative Authority

Section 767 of the Higher Education Act (HEA) of 1965, as amended, 20 USC 1140g

Agency

U.S. Department of Housing and Urban Development (HUD)

Program Name

Accessibility for and rights of persons with disabilities with regard to housing

Legislative Authority

Americans with Disabilities Act
Fair Housing Act
Section 504 of the Rehabilitation Act of 1973
Section 811 Supportive Housing for Persons with Disabilities

Agency

U.S. Department of Labor (DOL)

Program Name

Guideposts for Success

Legislative Authority

 

Program Name

Pathways to Careers Demonstration Grants

Legislative Authority

Section 169(c) of the Workforce Innovation and Opportunity Act (P.L. 113–128)

Program Name

Employment First

Legislative Authority

Section 609 of the Rehabilitation Act of 1973, as amended by section 461 of Workforce Innovation Opportunity Act (WIOA)

Program Name

Disability Employment Initiative (DEI)

Legislative Authority

Section 169, subsection (b), of the Workforce Innovation and Opportunity Act (P.L. 113–129)

Program Name

2016 Final Report from the Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities

Legislative Authority

Section 609 of the Rehabilitation Act of 1973, as amended by Section 461 of the Workforce Innovation and Opportunity Act (WIOA)

Agency

U.S. Department of Transportation (DOT)

Program Name

Accessible Transportation Technologies Research Initiative (ATTRI)

Legislative Authority

Section 6002(a) of the Fixing America's Surface Transportation Act of 2015 (FAST Act), (23 USC §516(a)), (P.L. 114–94)

Agency

U.S. Social Security Administration (SSA)

Program Name

Supplemental Security Income (SSI)

Legislative Authority

42 USC 401–434 and 1381–1383

Program Name

Social Security Disability Insurance (SSDI)

Legislative Authority

42 USC 401–434 and 1381–1383


Other Federal Policies that May Apply To Young Adults with ASD

The following were also identified by IWG members as federal policies and programs that, as programs targeted to the general population or across disabilities, may also be potentially relevant to youth and young adults with ASD; however, they were not expanded upon in the Report. None of these programs specifically target youth and young adults with ASD but are available to those who meet eligibility criteria.

  1. The Higher Education Opportunity Act
  2. Section 1915(i) home and community-based services (HCBS) under the Social Security Act, as amended by the Affordable Care Act (ACA)
  3. The following parts of the ACA
    1. Section 2402(a)
    2. Section 4302 of the ACA on population surveys and data collection by federally funded health and health care programs
    3. Section 5401 to increase funding to the Centers of Excellence to support health disparities research
    4. Medicaid expansion
    5. Denying insurance coverage to people who have pre-existing conditions or charging higher premiums to individuals
  4. Reauthorization of HHS Office of Minority Health
  5. No Wrong Door/ADRC (ACL grant program)
  6. CMS SMDL on Habilitation Services in the State
    1. Ticket to work
    2. Medicaid buy-in
  7. Workforce Innovation and Opportunity Act (WIOA)
    1. Title I of WIOA authorizes the provision of career planning for eligible individuals. Career planning offers a person-centered approach to coordinate necessary support services before and after job placement.
    2. Title VII of WIOA (CILS) includes a new core service for Independent Living for Youth with Disabilities not in school. It facilitates the transition of youth who are individuals with significant disabilities, who were eligible for individualized education programs under section 614(d) of the Individuals with Disabilities Education Act (20 U.S.C. 1414(d)), and who have completed their secondary education or otherwise left school, to postsecondary life. (Sec. 7(17)(E) of the Act, 29 U.S.C. 705(17)(E)). Some youth transition activities not covered under the new core services (i.e., for those in school/ not eligible for IEPs, etc.) may be included within the other four core services, Sec. 7 (17) (A-D) of the Act, 29 U.S.C. 705(17)(A-D), as well as within the Independent Living Services in Sec. 7(18), 29 U.S.C. 705(18).
Appendices

 
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