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Summary of Advances Cover 2011
Summary of Advance
In Autism Spectrum Disorder Research
2011
Appendices

Citation List – Articles Selected for the 2011 Summary of Advances

Question 1: When Should I Be Concerned?

Dinstein I, Pierce K, Eyler L, Solso S, Malach R, Behrmann M, Courchesne E. Disrupted neural synchronization in toddlers with autism. Neuron. 2011 Jun 23;70(6):1218-25. [PMID: 21689606]

Pierce K, Carter C, Weinfeld M, Desmond J, Hazin R, Bjork R, Gallagher N. Detecting, studying, and treating autism early: the one-year well-baby check-up approach. J Pediatr. 2011 Sep;159(3):458-465.e1-6. [PMID: 21524759]

Question 2: How Can I Understand What Is Happening?

Auerbach BD, Osterweil EK, Bear MF. Mutations causing syndromic autism define an axis of synaptic pathophysiology. Nature. 2011 Nov 23;480(7375):63-8. [PMID: 22113615]

Peñagarikano O, Abrahams BS, Herman EI, Winden KD, Gdalyahu A, Dong H, Sonnenblick LI, Gruver R, Almajano J, Bragin A, Golshani P, Trachtenberg JT, Peles E, Geschwind DH. Absence of CNTNAP2 leads to epilepsy, neuronal migration abnormalities, and core autism-related deficits. Cell. 2011 Sep 30;147(1):235-46. [PMID: 21962519]

Sakai Y, Shaw CA, Dawson BC, Dugas DV, Al-Mohtaseb Z, Hill DE, Zoghbi HY. Protein interactome reveals converging molecular pathways among autism disorders. Sci. Transl. Med. 2011 Jun 8;3(86):86ra49. [PMID: 21653829]

Voineagu I, Wang X, Johnston P, Lowe JK, Tian Y, Horvath S, Mill J, Cantor RM, Blencowe BJ, Geschwind DH. Transcriptomic analysis of autistic brain reveals convergent molecular pathology. Nature. 2011 May 25;474(7351):380-4. [PMID: 21614001]

Question 3: What Caused This To Happen and Can It Be Prevented?

Hallmayer J, Cleveland S, Torres A, Phillips J, Cohen B, Torigoe T, Miller J, Fedele A, Collins J, Smith K, Lotspeich L, Croen LA, Ozonoff S, Lajonchere C, Grether JK, Risch N. Genetic heritability and shared environmental factors among twin pairs with autism. Arch Gen Psychiatry. 2011 Nov;68(11):1095-102. [PMID: 21727249]

Levy D, Ronemus M, Yamrom B, Lee YH, Leotta A, Kendall J, Marks S, Lakshmi B, Pai D, Ye K, Buja A, Krieger A, Yoon S, Troge J, Rodgers L, Iossifov I, Wigler M. Rare de novo and transmitted copy-number variation in autistic spectrum disorders. Neuron. 2011 Jun 9;70(5):886-97. [PMID: 21658582]

O'Roak BJ, Deriziotis P, Lee C, Vives L, Schwartz JJ, Girirajan S, Karakoc E, Mackenzie AP, Ng SB, Baker C, Rieder MJ, Nickerson DA, Bernier R, Fisher SE, Shendure J, Eichler EE. Exome sequencing in sporadic autism spectrum disorders identifies severe de novo mutations. Nat Genet. 2011 Jun;43(6):585-9. [PMID: 21572417]

Ozonoff S, Young GS, Carter A, Messinger D, Yirmiya N, Zwaigenbaum L, Bryson S, Carver LJ, Constantino JN, Dobkins K, Hutman T, Iverson JM, Landa R, Rogers SJ, Sigman M, Stone WL. Recurrence risk for autism spectrum disorders: A Baby Siblings Research Consortium study. Pediatrics. 2011 Sep;128(3):e488-95. [PMID: 21844053]

Sanders SJ, Ercan-Sencicek AG, Hus V, Luo R, Murtha MT, Moreno-De-Luca D, Chu SH, Moreau MP, Gupta AR, Thomson SA, Mason CE, Bilguvar K, Celestino-Soper PB, Choi M, Crawford EL, Davis L, Davis Wright NR, Dhodapkar RM, Dicola M, Dilullo NM, Fernandez TV, Fielding-Singh V, Fishman DO, Frahm S, Garagaloyan R, Goh GS,Kammela S, Klei L, Lowe JK, Lund SC, McGrew AD, Meyer KA, Moffat WJ, Murdoch JD, O'Roak BJ, Ober GT, Pottenger RS, Raubeson MJ, Song Y, Wang Q, Yaspan BL, Yu TW, Yurkiewicz IR, Beaudet AL, Cantor RM, Curland M, Grice DE, Günel M, Lifton RP, Mane SM, Martin DM, Shaw CA, Sheldon M, Tischfield JA, Walsh CA, Morrow EM, Ledbetter DH, Fombonne E, Lord C, Martin CL, Brooks AI, Sutcliffe JS, Cook EH Jr, Geschwind D, Roeder K, Devlin B, State MW. Multiple recurrent de novo CNVs, including duplications of the 7q11.23 Williams syndrome region, are strongly associated with autism. Neuron. 2011 Jun 9;70(5):863-85. [PMID: 21658581]

Question 4: Which Treatments and Interventions Will Help?

McPheeters ML, Warren Z, Sathe N, Bruzek JL, Krishnaswami S, Jerome RN, Veenstra-Vanderweele J. A systematic review of medical treatments for children with autism spectrum disorders. Pediatrics. 2011 May;127(5):e1312-21. [PMID: 21464191]

Landa RJ, Holman KC, O'Neill AH, Stuart EA. Intervention targeting development of socially synchronous engagement in toddlers with autism spectrum disorder: a randomized controlled trial. J Child Psychol Psychiatry. 2011 Jan;52(1):13-21. [PMID: 21126245]

Strain PS, Bovey EH. Randomized, controlled trial of the LEAP model of early intervention for young children with autism spectrum disorders. Topics in Early Childhood Special Education. 2011 Nov;31(3):133-154. [Link]

Question 5: Where Can I Turn For Services?

Shattuck PT, Wagner M, Narendorf S, Sterzing P, Hensley M. Post-high school service use among young adults with an autism spectrum disorder. Arch Pediatr Adolesc Med. 2011 Feb;165(2):141-6. [PMID: 21300654]

Question 6: What Does the Future Hold, Particularly for Adults?

Brugha TS, McManus S, Bankart J, Scott F, Purdon S, Smith J, Bettington P, Jenkins R, Meltzer, H. Epidemiology of autism spectrum disorders in adults in the community in England. Arch Gen Psychiatry. 2011 May; Vol 68 (5), pp. 459-65. [PMID: 21536975]

Piven J, Rabins P; Autism in Older Adults Working Group. Autism spectrum disorders in older adults: Toward defining a research agenda. J Am Geriatr Soc. 2011 Nov;59(11):2151-55. [PMID: 22091837]

Stock SE, Davies DK, Wehmeyer ML, Lachapelle Y. Emerging new practices in technology to support independent community access for people with intellectual and cognitive disabilities. NeuroRehabilitation. 2011;28(3):261-9. [PMID: 21558631]

Question 7: What Other Infrastructure and Surveillance Needs Must Be Met?

Boyle CA, Boulet S, Schieve LA, Cohen RA, Blumberg SJ, Yeargin-Allsopp M, Visser S, Kogan MD. Trends in the prevalence of developmental disabilities in US children 1997-2008. Pediatrics. 2011 Jun;127(6):1034-42. [PMID: 21606152]

Kim YS, Leventhal BL, Koh YJ, Fombonne E, Laska E, Lim EC, Cheon KA, Kim SJ, Kim YK, Lee H, Song DH, Grinker RR. Prevalence of autism spectrum disorders in a total population sample. Am J Psychiatry. 2011 Sep;168(9):904-12. [PMID: 21558103]

Full Listing of Nominated Articles

Question 1: When Should I Be Concerned?

Bosl W, Tierney A, Tager-Flusberg H, Nelson C. EEG complexity as a biomarker for autism spectrum disorder risk. BMC Med. 2011 Feb 22;9:18. [PMID: 21342500]

Constantino JN. The quantitative nature of autistic social impairment. Pediatr Res. 2011 May;69(5 Pt 2):55R-62R. [PMID: 21289537]

Selected Article
Dinstein I, Pierce K, Eyler L, Solso S, Malach R, Behrmann M, Courchesne E. Disrupted neural synchronization in toddlers with autism. Neuron. 2011 Jun 23;70(6):1218-25. [PMID: 21689606]

Libertus K, Needham A. Reaching experience increases face preference in 3-month-old infants. Dev Sci. 2011 Nov;14(6):1355-64. [PMID: 22010895]

Mattila ML, Kielinen M, Linna SL, Jussila K, Ebeling H, Bloigu R, Joseph RM, Moilanen I. Autism spectrum disorders according to DSM-IV-TR and comparison with DSM-5 draft criteria: an epidemiological study. J Am Acad Child Adolesc Psychiatry. 2011 Jun;50(6):583-592. [PMID: 21621142]

Miller JS, Gabrielsen T, Villalobos M, Alleman R, Wahmhoff N, Carbone PS, Segura B. The each child study: systematic screening for autism spectrum disorders in a pediatric setting. Pediatrics. 2011 May;127(5):866-71. [PMID: 21482605]

Selected Article
Pierce K, Carter C, Weinfeld M, Desmond J, Hazin R, Bjork R, Gallagher N. Detecting, studying, and treating autism early: the one-year well-baby check-up approach. J Pediatr. 2011 Sep;159(3):458-465.e1-6. [PMID: 21524759]

Sasson NJ, Elison JT, Turner-Brown LM, Dichter GS, Bodfish JW. Brief report: circumscribed attention in young children with autism. J Autism Dev Disord. 2011 Feb;41(2):242-7. [PMID: 20499147]

Question 2: How Can I Understand What Is Happening?

Selected Article
Auerbach BD, Osterweil EK, Bear MF. Mutations causing syndromic autism define an axis of synaptic pathophysiology. Nature. 2011 Nov 23;480(7375):63-8. [PMID: 22113615]

Bangash MA, Park JM, Melnikova T, Wang D, Jeon SK, Lee D, Syeda S, Kim J,Kouser M, Schwartz J, Cui Y, Zhao X, Speed HE, Kee SE, Tu JC, Hu JH, Petralia RS, Linden DJ, Powell CM, Savonenko A, Xiao B, Worley PF. Enhanced polyubiquitination of Shank3 and NMDA receptor in a mouse model of autism. Cell.2011 May 27;145(5):758-72. [PMID: 21565394]

Cohen S, Gabel HW, Hemberg M, Hutchinson AN, Sadacca LA, Ebert DH, Harmin DA, Greenberg RS, Verdine VK, Zhou Z, Wetsel WC, West AE, Greenberg ME. Genome-wide activity-dependent MeCP2 phosphorylation regulates nervous system development and function. Neuron. 2011 Oct 6;72(1):72-85. [PMID: 21982370]

Courchesne E, Mouton PR, Calhoun ME, Semendeferi K, Ahrens-Barbeau C, Hallet MJ, Barnes CC, Pierce K. Neuron number and size in prefrontal cortex of children with autism. JAMA. 2011 Nov 9;306(18):2001-10. [PMID: 22068992]

Goldman S, McGrew S, Johnson K, Richdale A, Clemons T, Malow B. Sleep is associated with problem behaviors in children and adolescents with autism spectrum disorders. Res Autism Spectr Disord. Jul-Sep 2011;5(3):1223-29. [Link]

Peça J, Feliciano C, Ting JT, Wang W, Wells MF, Venkatraman TN, Lascola CD, Fu Z, Feng G. Shank3 mutant mice display autistic-like behaviours and striatal dysfunction. Nature. 2011 Apr 28;472(7344):437-42. [PMID: 21423165]

Selected Article
Peñagarikano O, Abrahams BS, Herman EI, Winden KD, Gdalyahu A, Dong H, Sonnenblick LI, Gruver R, Almajano J, Bragin A, Golshani P, Trachtenberg JT, Peles E, Geschwind DH. Absence of CNTNAP2 leads to epilepsy, neuronal migration abnormalities, and core autism-related deficits. Cell. 2011 Sep 30;147(1):235-46. [PMID: 21962519]

Selected Article
Sakai Y, Shaw CA, Dawson BC, Dugas DV, Al-Mohtaseb Z, Hill DE, Zoghbi HY. Protein interactome reveals converging molecular pathways among autism disorders. Sci. Transl. Med. 2011 Jun 8;3(86):86ra49. [PMID: 21653829]

Shriberg LD, Paul R, Black LM, van Santen JP. The hypothesis of apraxia of speech in children with autism spectrum disorder. J Autism Dev Disord. 2011 Apr;41(4):405-26. [PMID: 20972615]

Selected Article
Voineagu I, Wang X, Johnston P, Lowe JK, Tian Y, Horvath S, Mill J, Cantor RM, Blencowe BJ, Geschwind DH. Transcriptomic analysis of autistic brain reveals convergent molecular pathology. Nature. 2011 May 25;474(7351):380-4. [PMID: 21614001]

Question 3: What Caused This To Happen and Can It Be Prevented?

Adams JB, Audhva T, McDonough-Means S, Rubin RA, Quig D, Geis E, Gehn E, Lorest M, Mitchell J,
Atwood S, Barnhouse S, Lee W. Nutritional and metabolic status of children with autism vs. neurotypical children, and the association with autism severity. Nutr Metab (Lond). 2011 Jun 8;8(1):34. [PMID: 21651783]

Adams JB, Johansen LJ, Powell LD, Quig D, Rubin RA. Gastrointestinal flora and gastrointestinal status in children with autism–comparisons to typical children and correlation with autism severity. BMC Gastroenterol. 2011 Mar 16;11:22. [PMID: 21410934]

Alter MD, Kharkar R, Ramsey KE, Craig DW, Melmed RD, Grebe TA, Bay RC, Ober-Reynolds S, Kirwan J, Jones JJ, Turner JB, Hen R, Stephan DA. Autism and increased paternal age related changes in global levels of gene expression regulation. PLoS One. 2011 Feb 17;6(2):e16715. [PMID: 21379579]

Ashwood P, Krakowiak P, Hertz-Picciotto I, Hansen R, Pessah I, Van de Water J. Elevated plasma cytokines in autism spectrum disorders provide evidence of immune dysfunction and are associated with impaired behavioral outcome. Brain Behav Immun. 2011 Jan;25(1):40-5. [PMID: 20705131]

Blanchard KS, Palmer RF, Stein Z. The value of ecologic studies: mercury concentration in ambient air and the risk of autism. Rev Environ Health. 2011;26(2):111-8. [PMID: 21905454]

Bowers K, Li Q, Bressler J, Avramopoulos D, Newschaffer C, Fallin MD. Glutathione pathway gene variation and risk of autism spectrum disorders. J Neurodev Disord. 2011 Jun;3(2):132-43. [PMID: 21484198]

Delong G. A positive association found between autism prevalence and childhood vaccination uptake across the U.S. population. J Toxicol Environ Health A. 2011 Jan;74(14):903-16. [PMID: 21623535]

Gardener H, Spiegelman D, Buka SL. Perinatal and neonatal risk factors for autism: a comprehensive meta-analysis. Pediatrics. 2011 Aug;128(2):344-55. [PMID: 21746727]

Garrecht M, Austin DW. The plausibility of a role for mercury in the etiology of autism: a cellular perspective. Toxicol Environ Chem. 2011 May;93(5-6):1251-1273. [PMID: 22163375]

Gilman SR, Iossifov I, Levy D, Ronemus M, Wigler M, Vitkup D. Rare de novo variants associated with autism implicate a large functional network of genes involved in formation and function of synapses. Neuron. 2011 Jun 9;70(5):898-907. [PMID: 21658583]

Goines PE, Croen LA, Braunschweig D, Yoshida CK, Grether J, Hansen R, Kharrazi M, Ashwood P, Van de Water J. Increased midgestational IFN-?, IL-4 and IL-5 in women bearing a child with autism: a case-control study. Mol Autism. 2011 Aug 2;2:13. [PMID: 21810230]

Goines P, Haapanen L, Boyce R, Duncanson P, Braunschweig D, Delwiche L, Hansen R, Hertz-Picciotto I, Ashwood P, Van de Water J. Autoantibodies to cerebellum in children with autism associate with behavior. Brain Behav Immun.2011 Mar;25(3):514-23. [PMID: 21134442]

Selected Article
Hallmayer J, Cleveland S, Torres A, Phillips J, Cohen B, Torigoe T, Miller J, Fedele A, Collins J, Smith K, Lotspeich L, Croen LA, Ozonoff S, Lajonchere C, Grether JK, Risch N. Genetic heritability and shared environmental factors among twin pairs with autism. Arch Gen Psychiatry. 2011 Nov;68(11):1095-102. [PMID: 21727249]

Selected Article
Levy D, Ronemus M, Yamrom B, Lee YH, Leotta A, Kendall J, Marks S, Lakshmi B, Pai D, Ye K, Buja A, Krieger A, Yoon S, Troge J, Rodgers L, Iossifov I, Wigler M. Rare de novo and transmitted copy-number variation in autistic spectrum disorders. Neuron. 2011 Jun 9;70(5):886-97. [PMID: 21658582]

Selected Article
O'Roak BJ, Deriziotis P, Lee C, Vives L, Schwartz JJ, Girirajan S, Karakoc E, Mackenzie AP, Ng SB, Baker C, Rieder MJ, Nickerson DA, Bernier R, Fisher SE, Shendure J, Eichler EE. Exome sequencing in sporadic autism spectrum disorders identifies severe de novo mutations. Nat Genet. 2011 Jun;43(6):585-9. [PMID: 21572417]

Selected Article
Ozonoff S, Young GS, Carter A, Messinger D, Yirmiya N, Zwaigenbaum L, Bryson S, Carver LJ, Constantino JN, Dobkins K, Hutman T, Iverson JM, Landa R, Rogers SJ, Sigman M, Stone WL. Recurrence risk for autism spectrum disorders: A Baby Siblings Research Consortium study. Pediatrics. 2011 Sep;128(3):e488-95. [PMID: 21844053]

Selected Article
Sanders SJ, Ercan-Sencicek AG, Hus V, Luo R, Murtha MT, Moreno-De-Luca D, Chu SH, Moreau MP, Gupta AR, Thomson SA, Mason CE, Bilguvar K, Celestino-Soper PB, Choi M, Crawford EL, Davis L, Davis Wright NR, Dhodapkar RM, Dicola M, Dilullo NM, Fernandez TV, Fielding-Singh V, Fishman DO, Frahm S, Garagaloyan R, Goh GS,Kammela S, Klei L, Lowe JK, Lund SC, McGrew AD, Meyer KA, Moffat WJ, MurdochJD, O'Roak BJ, Ober GT, Pottenger RS, Raubeson MJ, Song Y, Wang Q, Yaspan BL, Yu TW, Yurkiewicz IR, Beaudet AL, Cantor RM, Curland M, Grice DE, Günel M, Lifton RP, Mane SM, Martin DM, Shaw CA, Sheldon M, Tischfield JA, Walsh CA,Morrow EM, Ledbetter DH, Fombonne E, Lord C, Martin CL, Brooks AI, SutcliffeJS, Cook EH Jr, Geschwind D, Roeder K, Devlin B, State MW. Multiple recurrent de novo CNVs, including duplications of the 7q11.23 Williams syndrome region, are strongly associated with autism. Neuron. 2011 Jun 9;70(5):863-85. [PMID: 21658581]

Schieve LA, Rice C, Devine O, Maenner MJ, Lee LC, Fitzgerald R, Wingate MS, Schendel D, Pettygrove S, van Naarde Braun K, Durkin M. Have secular changes in perinatal risk factors contributed to the recent autism prevalence increase? Development and application of a mathematical assessment model. Ann Epidemiol. 2011 Dec;21(12):930-45. [PMID: 22000328]

Schmidt RJ, Hansen RL, Hartiala J, Allayee H, Schmidt LC, Tancredi DJ, Tassone F, Hertz-Picciotto I. Prenatal vitamins, one-carbon metabolism gene variants, and risk for autism. Epidemiology. Jul;22(4):476-85. [PMID: 21610500]

Shandley K, Austin DW. Ancestry of pink disease (infantile acrodynia) identified as a risk factor for autism spectrum disorders. J Toxicol Environ Health A. 2011 Sep 15;74(18):1185-94. [PMID: 21797771]

Stamova B, Green PG, Tian Y, Hertz-Picciotto I, Pessah IN, Hansen R, Yang X, Teng J, Gregg JP, Ashwood P, Van de Water J, Sharp FR. Correlations between gene expression and mercury levels in blood of boys with and without autism. Neurotox Res. 2011 Jan:19(1):31-48. [PMID: 19937285]

Volk HE, Hertz-Picciotto I, Delwiche L, Lurmann F, McConnell R. Residential proximity to freeways and autism in the CHARGE study. Environ Health Perspect. 2011 Jun;119(6):873-7. [PMID: 21156395]

Question 4: Which Treatments and Interventions Will Help?

Blair K-S C, Lee I-S, Cho S-J, Dunlap G. Positive behavior support through family-school collaboration for young children with autism. Topics in Early Childhood Special Education. 2011 May;30(1):22-36. [Link]

Hopkins IM, Gower MW, Perez TA, Smith DS, Amthor FR, Wimsatt FC, Biasini FJ. Avatar assistant: improving social skills in students with an ASD through a computer-based intervention. J Aut Dev Disord. 2011 Nov;41(11):1543-55. [PMID: 21287255]

Kasari C, Locke J, Gulsrud A, Rotheram-Fuller, E. Social networks and friendships at school: comparing children with and without ASD. J Autism Dev Disord. 2011 May;41(5):533-44. [PMID: 20676748]

Kim JE, O'Sullivan ML, Sanchez CA, Hwang M, Israel MA, Brennand K, Deerinck TJ, Goldstein LS, Gage FH, Ellisman MH, Ghosh A. Investigating synapse formation and function using human pluripotent stem cell-derived neurons. Proc Natl Acad Sci U S A. 2011 Feb 15;108(7):3005-10. [PMID: 21278334]

Krishnaswami S, McPheeters ML, Veenstra-Vanderweele J. A systematic review of secretin for children with autism spectrum disorders. Pediatrics. 2011 May;127(5):e1322-5. [PMID: 21464196]

Selected Article
Landa RJ, Holman KC, O'Neill AH, Stuart EA. Intervention targeting development of socially synchronous engagement in toddlers with autism spectrum disorder: a randomized controlled trial. J Child Psychol Psychiatry. 2011 Jan;52(1):13-21. [PMID: 21126245]

Selected Article
McPheeters ML, Warren Z, Sathe N, Bruzek JL, Krishnaswami S, Jerome RN, Veenstra-Vanderweele J. A systematic review of medical treatments for children with autism spectrum disorders. Pediatrics. 2011 May;127(5):e1312-21. [PMID: 21464191]

Paşca SP, Portmann T, Voineagu I, Yazawa M, Shcheglovitov A, Paşca AM, Cord B, Palmer TD, Chikahisa S, Nishino S, Bernstein JA, Hallmayer J, Geschwind DH, Dolmetsch RE. Using iPSC-derived neurons to uncover cellular phenotypes associated with Timothy syndrome. Nat Med. 2011 Nov 27;17(12):1657-62. [PMID: 22120178]

Selected Article
Strain PS, Bovey EH. Randomized, controlled trial of the LEAP model of early intervention for young children with autism spectrum disorders. Topics in Early Childhood Special Education. 2011 Nov;31(3):133-154. [Link]

Strain, P, Wilson, K, Dunlap, G. Prevent-Teach-Reinforce: addressing problem behaviors of students with autism in general education classrooms. Behavioral Disorders. 2011 May;36(3), 160-171. [Link]

Question 5: Where Can I Turn For Services?

Mandell D, Dingfelder H. Bridging the research-to-practice gap in autism intervention: an application of diffusion of innovation theory. J Autism Dev Disord. 2011 May;41:597-609. [PMID: 20717714]

Pickett J, Xiu E, Tuchman R, Dawson G, Lajonchere C. Mortality in individuals with autism, with and without epilepsy. J Child Neurol. 2011 Aug;26(8):932-9. [PMID: 21471551]

Selected Article
Shattuck PT, Wagner M, Narendorf S, Sterzing P, Hensley M. Post-high school service use among young adults with an autism spectrum disorder. Arch Pediatr Adolesc Med. 2011 Feb;165(2):141-6. [PMID: 21300654]

Question 6: What Does the Future Hold, Particularly for Adults?

Selected Article
Brugha TS, McManus S, Bankart J, Scott F, Purdon S, Smith J, Bettington P, Jenkins R, Meltzer, H. Epidemiology of autism spectrum disorders in adults in the community in England. Arch Gen Psychiatry. 2011 May;68(5):459-65 . [PMID: 21536975]

Cimera R, Burgess S. Do adults with autism benefit monetarily from working in their communities? J Vocat Rehabil. 2011;34(3):173-80. [Link]

Nonnemacher SL, Bambara LM. "I'm supposed to be in charge": self-advocates' perspectives on their self-determination support needs. Intellect Dev Disabil. 2011 Oct;49(5):327-40. [PMID: 21905826]

Selected Article
Piven J, Rabins P; Autism-in-Older Adults Working Group. Autism spectrum disorders in older adults: Toward defining a research agenda. J Am Geriatr Soc. 2011 Nov;59(11):2151-55.[PMID: 22091837]

Selected Article
Stock SE, Davies DK, Wehmeyer ML, Lachapelle Y. Emerging new practices in technology to support independent community access for people with intellectual and cognitive disabilities. NeuroRehabilitation. 2011;28(3):261-9. [PMID: 21558631]

Question 7: What Other Infrastructure and Surveillance Needs Must Be Met?

Selected Article
Boyle CA, Boulet S, Schieve LA, Cohen RA, Blumberg SJ, Yeargin-Allsopp M, Visser S, Kogan MD. Trends in the prevalence of developmental disabilities in US children 1997-2008. Pediatrics. 2011 Jun;127(6):1034-42. [PMID: 21606152]

Selected Article
Kim YS, Leventhal BL, Koh YJ, Fombonne E, Laska E, Lim EC, Cheon KA, Kim SJ, Kim YK, Lee H, Song DH, Grinker RR. Prevalence of autism spectrum disorders in a total population sample. Am J Psychiatry. 2011 Sep;168(9):904-12. [PMID: 21558103]

About the IACC

The Interagency Autism Coordinating Committee (IACC) is charged with providing advice to the Secretary of Health and Human Services (HHS) and with coordinating all efforts within HHS concerning autism spectrum disorder (ASD). It was established by Congress under the Combating Autism Act of 2006 and renewed under the Combating Autism Reauthorization Act of 2011.

Membership of the committee includes a wide array of Federal agencies involved in ASD research and services, as well as public stakeholders who represent a variety of perspectives from within the autism community. This makeup of the IACC membership is designed to ensure that the committee is equipped to address the wide range of issues and challenges faced by families and individuals affected by autism.

Under the CAA, the IACC is required to (1) develop and annually update a Strategic Plan for ASD research, (2) develop and annually update a summary of advances in ASD research, and (3) monitor federal activities related to ASD.

In completing these tasks, the members of the committee have worked collaboratively to advance biomedical research and coordinate services that will make an impact for people with ASD and their families.

IACC Member Roster

Chair

  • Thomas R. Insel, M.D.
    Director
    National Institute of Mental Health
    National Institutes of Health
    Bethesda, Maryland

Federal Members

  • James F. Battey, M.D., Ph.D.
    Director
    National Institute on Deafness and Other Communication Disorders
    National Institutes of Health
    Bethesda, Maryland
  • Linda Birnbaum, Ph.D.
    Director
    National Institute of Environmental Health Sciences
    National Institutes of Health
    Research Triangle Park, North Carolina
  • Ellen W. Blackwell, M.S.W.
    Division of Community and Institutional Services
    Disabled and Elderly Health Programs Group
    Center for Medicaid and State Operations
    Centers for Medicare & Medicaid Services
    Baltimore, Maryland
  • Coleen Boyle, Ph.D.
    Director
    National Center on Birth Defects and Developmental Disabilities
    Centers for Disease Control and Prevention
    Atlanta, Georgia
  • Henry Claypool
    Director
    Office on Disability
    U.S. Department of Health and Human Services
    Washington, DC
  • Francis S. Collins, M.D., Ph.D.
    Director
    National Institutes of Health
    Bethesda, Maryland
  • Alan E. Guttmacher, M.D.
    Director
    Eunice Kennedy Shriver National Institute of Child Health and Human Development
    National Institutes of Health
    Bethesda, Maryland
  • Gail R. Houle, Ph.D. 
    Associate Division Director Research-to-Practice Division Early Childhood Programs
    Office of Special Education Programs
    U.S. Department of Education
    Washington, DC
  • Larke N. Huang, Ph.D. 
    Senior Advisor on Children Office of the Administrator
    Substance Abuse and Mental Health
    Services Administration
    Rockville, Maryland
  • Laura Kavanagh, M.P.P.
    Director
    Division of Research, Training and Education
    Health Resources and Services Administration
    Rockville, Maryland
  • Geraldine Dawson, Ph.D. 
    Chief Science Officer
    Autism Speaks
    New York, New York
  • Gerald D. Fischbach, M.D.
    Scientific Director
  • Walter J. Koroshetz, M.D.
    Deputy Director
    National Institute of Neurological Disorder and Stroke
    National Institutes of Health
    Bethesda, Maryland
  • Sharon Lewis
    Commissioner
    Administration on Developmental Disabilities
    Administration for Children and Families
    Washington, DC

Public Members

  • Yvette M. Janvier, M.D.
    Medical Director
    Children's Specialized Hospital
    Toms River, New Jersey
  • Christine M. McKee, J.D.
    Rockville, Maryland
  • Ari Ne'eman
    Founding President
    Autistic Self-Advocacy Network
    Washington, DC
    Board Member and Co-Founder
    Southwest Autism Research and Resource Center
    Phoenix, Arizona
  • Stephen M. Shore, Ed.D.
    Executive Director
    Autism Spectrum Consulting and
    Assistant Professor of Special Education
    Adelphi University
    Newton, Massachusetts
  • Alison Tepper Singer, M.B.A.
    President
    Autism Science Foundation
    New York, New York
  • Marjorie Solomon, Ph.D., M.B.A. 
    Assistant Clinical Professor
    University of California, Davis
    School of Medicine and
    M.I.N.D. Institute
    Sacramento, California

Office of Autism Research Coordination (OARC) Staff List

  • Susan A. Daniels, Ph.D.
    Acting Director
  • Elizabeth M. Baden, Ph.D.
    Policy Analyst
  • Erin H. Bryant, M.J.
    Science Writer/Editor
  • Cyrus Davani
    Scientific Program Analyst
  • Sara E. Dodson, Ph.D.
    AAAS Science & Technology
    Policy Fellow/Health Scientist
  • Nicole Jones
    Senior Web Developer
  • Miguelina Perez
    Management Analyst
  • Sarah E.V. Rhodes, Ph.D. 
    Policy Analyst/Detailee
    NIMH Intramural Research Program

Cover Design
NIH Medical Arts Branch

Copyright Information
All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows.

Suggested Citation
Interagency Autism Coordinating Committee (IACC). 2013 IACC Summary of Advances in Autism Spectrum Disorder Research. April 2014. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website: http://iacc.hhs.gov/publications/summary-of-advances/2013/.

Appendices

 
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