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Portfolio Analysis Cover 2010
Portfolio Analysis Report
IACC Autism Spectrum Disorder Research
2010
Who funded ASD research in 2010?

The Office of Autism Research Coordination requested 2010 research project and funding information from 18 Federal agencies and private organizations, including the annual budget for each project and its relevance to the seven critical questions/chapters of the 2011 IACC Strategic Plan for ASD Research, illustrated below (Figure 1).

Figure 1. The Seven IACC Strategic Plan Critical Questions and Corresponding Research Areas. An organizational chart. There is one item at the top of the organizational chart, labeled ASD research and the IACC strategic plan. There are seven items below. The first is labeled diagnosis, with the following text below: 1 When should I be concerned? Topics covered: diagnostic and screening tests, early signs, biomarkers, symptomology, subgroups. The second item is labeled biology, with the following text below: 2 How can I understand what is happening? Topics covered: neural systems, molecular pathways, developmental trajectory, cognitive studies, immune and metabolic pathways, neuropathology, biosignatures, computational studies, co-occurring conditions, sensory and motor functions. The third item is labeled Risk Factors, with the following text below: 3 What caused this to happen and can it be prevented? Topics covered: genetic risk factors, environmental risk factors, and the intersection of genetic and environmental risk factors, including epigenetics. The fourth item is labeled Treatments and interventions, with the following text below: 4 Which treatments and interventions will help? Topics covered: Pharmacological, behavioral, educational, complementary, dietary, occupational, sensory-based therapies, technology-based interventions and supports, model systems to identify molecular targets. The fifth item is labeled Services, with the following text below: 5 Where can I turn for services? Topics covered: utilization and access, evidence-based practices, cost-effective service delivery, practitioner training, family well-being, safety, community inclusion. The sixth item is labeled lifespan issues, with the following text below: 6 What does the future hold, especially for adults? Topics covered: Adult interventions, services needs, transition services, vocational rehabilitation, adult diagnosis. The seventh and final item is labeled: Infrastructure and Surveillance, with the following text below: 7 What other infrastructure and surveillance needs must be met? Topics covered: Surveillance and prevalence, research infrastructure, data tools, biobanks, research subject recruitment, research workforce development.

Figure 1. The research areas corresponding to the seven questions of the 2011 IACC Strategic Plan for ASD Research are designated in the oval above each question, and a list of topics covered in each section is listed below each question. The list of topics includes most projects found in each question, but is not necessarily comprehensive.

Table 1 lists the 18 agencies and organizations that participated in this effort. Funders submitting data for the first time in 2010 include the Administration for Children and Families (ACF), the Agency for Healthcare Research and Quality (AHRQ), the Environmental Protection Agency (EPA), the National Science Foundation (NSF), and the Coalition for SafeMinds (SafeMinds). Combined, the estimated Federal and private investment in ASD research in 2010 was $408,577,276, with the Federal government providing 82% ($334 million) and private organizations funding 18% ($74 million) of ASD research (Figure 2). Private investment in ASD research decreased slightly in 2010, compared to about $78.5 million in 2008 and $77 million in 2009, possibly reflecting changes in the U.S. economy. The amount of Federal investment in autism research reported in the 2010 Portfolio Analysis ($334 million) was significantly larger than the amounts reported in 2008 ($144 million) and 2009 ($237 million). This was largely due to the addition of four new Federal funders (ACF, AHRQ, EPA, and NSF), as well as broader reporting of autism-relevant projects from HRSA and the Department of Education. Funding from the American Recovery and Reinvestment Act (ARRA) also continued to bolster the Federal funding of ASD research in 2010. A project count across all funders showed that in 2010, the Federal government supported 932 ASD research projects and private organizations funded 435 projects.

Agencies and Organizations Included in the 2010 IACC Portfolio Analysis

Federal Agencies Private Organizations

Federal Agencies

  • Administration for Children and Families (ACF)
  • Agency for Healthcare Research and Quality (AHRQ)
  • Centers for Disease Control and Prevention (CDC)
  • Centers for Medicare & Medicaid Services (CMS)
  • Department of Defense (DoD)
  • Department of Education (ED)
  • Environmental Protection Agency (EPA)
  • Health Resources and Services Administration (HRSA)
  • National Institutes of Health (NIH)
  • National Science Foundation (NSF)

Private Organizations

  • Autism Research Institute (ARI)
  • Autism Science Foundation (ASF)
  • Autism Speaks (AS)
  • Center for Autism and Related Disorders (CARD)
  • Coalition for SafeMinds (SafeMinds)
  • Organization for Autism Research (OAR)
  • Simons Foundation (SF)
  • Southwest Autism Research & Resource Center (SARRC)

Table 1.The table lists the ten Federal agencies and eight private organizations included in the 2010 IACC Autism Spectrum Disorder Research Portfolio Analysis of ASD research funding.

What was the breakdown of funding?

The 18 stakeholders that were included in this analysis contributed a total of $408,577,276 across 1,367 ASD research projects in 2010 (Table 2). This should be considered an estimated total funding amount because some funders provided estimated annual funding data.

Federal vs. Private Funding for ASD Research in 2010
(Total funding = $408,577,276)

Figure 2. Eighty-two percent of the $408,577,276 distributed for ASD research in 2010 was provided by Federal sources, while 18% of funding was provided by private organizations.

Figure 2. Eighty-two percent of the $408,577,276 distributed for ASD research in 2010 was provided by Federal sources, while 18% of funding was provided by private organizations.

The number of projects and amount of funding in the Portfolio Analysis were substantially higher in 2010 compared to 2009 ($314 million over 995 projects in 2009 compared to $408 million over 1,367 projects in 2010). This was largely attributed to the addition of new funders in the present analysis as well as more comprehensive data collection from some previously represented funders. However, many funders participating in the previous analysis also increased their investment levels between 2009 and 2010.

2010 ASD Research Funding by Agency/Organization

Funding Agency/Organization Number of Projects Total Funding

Funding Agency/Organization

National Institutes of Health (NIH)

Number of Projects

545**

Total Funding

$217,143,701

Funding Agency/Organization

Simons Foundation (SF)

Number of Projects

123

Total Funding

$53,729,921

Funding Agency/Organization

Health Resources and Services Administration (HRSA)

Number of Projects

82

Total Funding

$43,303,150

Funding Agency/Organization

Department of Education (ED)

Number of Projects

139

Total Funding

$30,432,564*

Funding Agency/Organization

Centers for Disease Control and Prevention (CDC)

Number of Projects

30

Total Funding

$19,698,859

Funding Agency/Organization

Autism Speaks (AS)

Number of Projects

228

Total Funding

$18,476,890

Funding Agency/Organization

National Science Foundation (NSF)

Number of Projects

69

Total Funding

$12,222,206*

Funding Agency/Organization

Department of Defense (DoD)

Number of Projects

58

Total Funding

$7,082,059

Funding Agency/Organization

Administration for Children and Families (ACF)

Number of Projects

1

Total Funding

$1,877,959

Funding Agency/Organization

Agency for Healthcare Research and Quality (AHRQ)

Number of Projects

4

Total Funding

$1,548,053*

Funding Agency/Organization

Center for Autism and Related Disorders (CARD)

Number of Projects

31

Total Funding

$906,482

Funding Agency/Organization

Environmental Protection Agency (EPA)

Number of Projects

1

Total Funding

$756,802

Funding Agency/Organization

Autism Research Institute (ARI)

Number of Projects

15

Total Funding

$386,905

Funding Agency/Organization

Centers for Medicare & Medicaid Services (CMS)

Number of Projects

3

Total Funding

$376,159

Funding Agency/Organization

Autism Science Foundation (ASF)

Number of Projects

13

Total Funding

$245,000

Funding Agency/Organization

Organization for Autism Research (OAR)

Number of Projects

12

Total Funding

$191,590

Funding Agency/Organization

Coalition for SafeMinds (SafeMinds)

Number of Projects

8

Total Funding

$128,975

Funding Agency/Organization

Southwest Autism Research & Resources Center (SARRC)

Number of Projects

5

Total Funding

$70,000

Funding Agency/Organization

Grand Total

Number of Projects

1367

Total Funding

$408,577,276

*Annual funding amounts for AHRQ, ED, and NSF are estimated.

**The NIH project number shown reflects unique NIH projects. Projects funded by more than one NIH institute ("co-funds") were combined and only counted as a single project. This approach differs from that used in the NIH RePORT database, where each co-fund is counted as a separate project when the data are exported into Excel.

Table 2. The table lists the total funding provided by the 18 Federal agencies and private organizations included in the Portfolio Analysis and the number of projects funded. Please note that the NIH budget figure includes both ARRA ($58 million) and non-ARRA ($160 million) funding. Together, the agencies and organizations funded 1367 projects in 2010, representing an overall investment of more than $408 million.

Research Funders

 
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