Articles Selected for the 2020 Summary Of Advances

Screening and Diagnosis

Carbone PS, Campbell K, Wilkes J, Stoddard GJ, Huynh K, Young PC, Gabrielsen TP. Primary Care Autism Screening and Later Autism Diagnosis. Pediatrics. 2020 Aug;146(2):e20192314. [PMID: 32632024]

Constantino JN, Abbacchi AM, Saulnier C, Klaiman C, Mandell DS, Zhang Y, Hawks Z, Bates J, Klin A, Shattuck P, Molholm S, Fitzgerald R, Roux A, Lowe JK, Geschwind DH. Timing of the Diagnosis of Autism in African American Children. Pediatrics. 2020 Sep;146(3). [PMID: 32839243]

Harris JF, Coffield CN, Janvier YM, Mandell D, Cidav Z. Validation of the Developmental Check-In Tool for Low-Literacy Autism Screening. Pediatrics. 2021 Jan;147(1):e20193659. [PMID: 33303635]

Biology

MacDuffie KE, Shen MD, Dager SR, Styner MA, Kim SH, Paterson S, Pandey J, St John T, Elison JT, Wolff JJ, Swanson MR, Botteron KN, Zwaigenbaum L, Piven J, Estes AM. Sleep Onset Problems and Subcortical Development in Infants Later Diagnosed With Autism Spectrum Disorder. Am J Psychiatry. 2020 Jun 1;177(6):518-525. [PMID: 32375538]

Simonoff E, Kent R, Stringer D, Lord C, Briskman J, Lukito S, Pickles A, Charman T, Baird G. Trajectories in Symptoms of Autism and Cognitive Ability in Autism From Childhood to Adult Life: Findings From a Longitudinal Epidemiological Cohort. J Am Acad Child Adolesc Psychiatry. 2020 Dec;59(12):1342-1352. [PMID: 31863881]

Genetic and Environmental Factors

Bai D, Marrus N, Yip BHK, Reichenberg A, Constantino JN, Sandin S. Inherited Risk for Autism Through Maternal and Paternal Lineage. Biol Psychiatry. 2020 Sep 15;88(6):480-487. [PMID: 32430199]

Satterstrom FK, Kosmicki JA, Wang J, Breen MS, De Rubeis S, An JY, Peng M, Collins R, Grove J, Klei L, Stevens C, Reichert J, Mulhern MS, Artomov M, Gerges S, Sheppard B, Xu X, Bhaduri A, Norman U, Brand H, Schwartz G, Nguyen R, Guerrero EE, Dias C; Autism Sequencing Consortium; iPSYCH-Broad Consortium, Betancur C, Cook EH, Gallagher L, Gill M, Sutcliffe JS, Thurm A, Zwick ME, Børglum AD, State MW, Cicek AE, Talkowski ME, Cutler DJ, Devlin B, Sanders SJ, Roeder K, Daly MJ, Buxbaum JD. Large-Scale Exome Sequencing Study Implicates Both Developmental and Functional Changes in the Neurobiology of Autism. Cell. 2020 Feb 6;180(3):568-584.e23. [PMID: 31981491]

Interventions

Lindgren S, Wacker D, Schieltz K, Suess A, Pelzel K, Kopelman T, Lee J, Romani P, O'Brien M. A Randomized Controlled Trial of Functional Communication Training via Telehealth for Young Children with Autism Spectrum Disorder. J Autism Dev Disord. 2020 Dec;50(12):4449-4462. [PMID: 32300910]

Rogers SJ, Yoder P, Estes A, Warren Z, McEachin J, Munson J, Rocha M, Greenson J, Wallace L, Gardner E, Dawson G, Sugar CA, Hellemann G, Whelan F. A Multisite Randomized Controlled Trial Comparing the Effects of Intervention Intensity and Intervention Style on Outcomes for Young Children With Autism. J Am Acad Child Adolesc Psychiatry. 2020 Aug 24. [PMID: 32853704]

Sandbank M, Bottema-Beutel K, Crowley S, Cassidy M, Dunham K, Feldman JI, Crank J, Albarran SA, Raj S, Mahbub P, Woynaroski TG. Project AIM: Autism intervention meta-analysis for studies of young children. Psychol Bull. 2020 Jan;146(1):1-29. [PMID: 31763860]

Wood JJ, Kendall PC, Wood KS, Kerns CM, Seltzer M, Small BJ, Lewin AB, Storch EA. Cognitive Behavioral Treatments for Anxiety in Children With Autism Spectrum Disorder: A Randomized Clinical Trial. JAMA Psychiatry. 2020 May 1;77(5):474-483. [PMID: 31755906]

Services and Supports

Benevides TW, Carretta HJ, Rust G, Shea L. Racial and ethnic disparities in benefits eligibility and spending among adults on the autism spectrum: A cohort study using the Medicare Medicaid Linked Enrollees Analytic Data Source. PLoS One. 2021 May 25;16(5). [PMID: 34032811]

Bilaver LA, Sobotka SA, Mandell DS. Understanding Racial and Ethnic Disparities in Autism-Related Service Use Among Medicaid-Enrolled Children. J Autism Dev Disord. 2020 Nov 21. [PMID: 33219917]

Wehman P, Schall C, McDonough J, Sima A, Brooke A, Ham W, Whittenburg H, Brooke V, Avellone L, Riehle E. Competitive Employment for Transition-Aged Youth with Significant Impact from Autism: A Multi-site Randomized Clinical Trial. J Autism Dev Disord. 2020 Jun;50(6):1882-1897. [PMID: 30825082]

Lifespan

Hall JP, Batza K, Streed CG Jr, Boyd BA, Kurth NK. Health Disparities Among Sexual and Gender Minorities with Autism Spectrum Disorder. J Autism Dev Disord. 2020 Aug;50(8):3071-3077. [PMID: 32056117]

Nimmo-Smith V, Heuvelman H, Dalman C, Lundberg M, Idring S, Carpenter P, Magnusson C, Rai D. Anxiety Disorders in Adults with Autism Spectrum Disorder: A Population-Based Study. J Autism Dev Disord. 2020 Jan;50(1):308-318. [PMID: 31621020]

Research Infrastructure and Prevalence

Dietz PM, Rose CE, McArthur D, Maenner M. National and State Estimates of Adults with Autism Spectrum Disorder. J Autism Dev Disord. 2020 Dec;50(12):4258-4266 [PMID: 32390121]

Hand BN, Angell AM, Harris L, Carpenter LA. Prevalence of physical and mental health conditions in Medicare-enrolled, autistic older adults. Autism. 2020 Apr;24(3):755-764. [PMID: 31773968]

Maenner MJ, Shaw KA, Baio J; EdS1, Washington A, Patrick M, DiRienzo M, Christensen DL, Wiggins LD, ettygrove S, Andrews JG, Lopez M, Hudson A, Baroud T, Schwenk Y, White T, Rosenberg CR, Lee LC, Harrington RA, Huston M, Hewitt A; PhD-7, Esler A, Hall-Lande J, Poynter JN, Hallas-Muchow L, Constantino JN, Fitzgerald RT, Zahorodny W, Shenouda J, Daniels JL, Warren Z, Vehorn A, Salinas A, Durkin MS, Dietz PM. Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016. MMWR Surveill Summ. 2020 Mar 27;69(4):1-12. Erratum in: MMWR Morb Mortal Wkly Rep. 2020 Apr 24;69(16):503. [PMID: 32214087]

Shaw KA, Maenner MJ, Baio J; EdS1, Washington A, Christensen DL, Wiggins LD, Pettygrove S, Andrews JG, White T, Rosenberg CR, Constantino JN, Fitzgerald RT, Zahorodny W, Shenouda J, Daniels JL, Salinas A, Durkin MS, Dietz PM. Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Early Autism and Developmental Disabilities Monitoring Network, Six Sites, United States, 2016. MMWR Surveill Summ. 2020 Mar 27;69(3):1-11. [PMID: 32214075]

Full Listing of Nominated Articles (Selected Articles Appear *Red)

Screening and Diagnosis

*Carbone PS, Campbell K, Wilkes J, Stoddard GJ, Huynh K, Young PC, Gabrielsen TP. Primary Care Autism Screening and Later Autism Diagnosis. Pediatrics. 2020 Aug;146(2):e20192314. [PMID: 32632024]

Carpenter KLH, Hahemi J, Campbell K, Lippmann SJ, Baker JP, Egger HL, Espinosa S, Vermeer S, Sapiro G, Dawson G. Digital Behavioral Phenotyping Detects Atypical Pattern of Facial Expression in Toddlers with Autism. Autism Res. 2021 Mar;14(3):488-499. [PMID: 32924332]

*Constantino JN, Abbacchi AM, Saulnier C, Klaiman C, Mandell DS, Zhang Y, Hawks Z, Bates J, Klin A, Shattuck P, Molholm S, Fitzgerald R, Roux A, Lowe JK, Geschwind DH. Timing of the Diagnosis of Autism in African American Children. Pediatrics. 2020 Sep;146(3). [PMID: 32839243]

*Harris JF, Coffield CN, Janvier YM, Mandell D, Cidav Z. Validation of the Developmental Check-In Tool for Low-Literacy Autism Screening. Pediatrics. 2021 Jan;147(1):e20193659. [PMID: 33303635]

Locke J, Ibanez LV, Posner E, Frederick L, Carpentier P, Stone WL. Parent Perceptions About Communicating With Providers Regarding Early Autism Concerns. Pediatrics. 2020 Apr;145(Suppl 1):S72-S80. [PMID: 32238533]

Major S, Campbell K, Espinosa S, Baker JP, Carpenter KL, Sapiro G, Vermeer S, Dawson G. Impact of a digital Modified Checklist for Autism in Toddlers-Revised on likelihood and age of autism diagnosis and referral for developmental evaluation. Autism. 2020 Oct;24(7):1629-1638. [PMID: 32466674]

Mozolic-Staunton B, Donelly M, Yoxall J, Barbaro J. Early detection for better outcomes: Universal developmental surveillance for autism across health and early childhood education settings. Research in Autism Spectrum Disorders. 2020 Mar;71 101496. [https://doi.org/10.1016/j.rasd.2019.101496]

Safer-Lichtenstein J, McIntyre LL. Comparing Autism Symptom Severity Between Children With a Medical Autism Diagnosis and an Autism Special Education Eligibility. Focus on Autism and Other Developmental Disabilities. 2020;35(3):186-192. [https://doi.org/10.1177/1088357620922162]

Shields RH, Kaat AJ, McKenzie FJ, Drayton A, Sansone SM, Coleman J, Michalak C, Riley K, Berry-Kravis E, Gershon RC, Widaman KF, Hessl D. Validation of the NIH Toolbox Cognitive Battery in intellectual disability. Neurology. 2020 Mar 24;94(12):e1229-e1240. [PMID: 32094241]

Biology

Fazel Darbandi S, Robinson Schwartz SE, Pai EL, Everitt A, Turner ML, Cheyette BNR, Willsey AJ, State MW, Sohal VS, Rubenstein JLR. Enhancing WNT Signaling Restores Cortical Neuronal Spine Maturation and Synaptogenesis in Tbr1 Mutants. Cell Rep. 2020 Apr 14;31(2):107495. [PMID: 32294447]

Gonatopoulos-Pournatzis T, Niibori R, Salter EW, Weatheritt RJ, Tsang B, Farhangmehr S, Liang X, Braunschweig U, Roth J, Zhang S, Henderson T, Sharma E, Quesnel-Vallières M, Permanyer J, Maier S, Georgiou J, Irimia M, Sonenberg N, Forman-Kay JD, Gingras AC, Collingridge GL, Woodin MA, Cordes SP, Blencowe BJ. Autism-Misregulated eIF4G Microexons Control Synaptic Translation and Higher Order Cognitive Functions. Mol Cell. 2020 Mar 19;77(6):1176-1192.e16. [PMID: 31999954]

Lutz AK, Pfaender S, Incearap B, Ioannidis V, Ottonelli I, Föhr KJ, Cammerer J, Zoller M, Higelin J, Giona F, Stetter M, Stoecker N, Alami NO, Schön M, Orth M, Liebau S, Barbi G, Grabrucker AM, Delorme R, Fauler M, Mayer B, Jesse S, Roselli F, Ludolph AC, Bourgeron T, Verpelli C, Demestre M, Boeckers TM. Autism-associated SHANK3 mutations impair maturation of neuromuscular junctions and striated muscles. Sci Transl Med. 2020 Jun 10;12(547). [PMID: 32522805]

*MacDuffie KE, Shen MD, Dager SR, Styner MA, Kim SH, Paterson S, Pandey J, St John T, Elison JT, Wolff JJ, Swanson MR, Botteron KN, Zwaigenbaum L, Piven J, Estes AM. Sleep Onset Problems and Subcortical Development in Infants Later Diagnosed With Autism Spectrum Disorder. Am J Psychiatry. 2020 Jun 1;177(6):518-525. [PMID: 32375538]

Oztan O, Garner JP, Constantino JN, Parker KJ. Neonatal CSF vasopressin concentration predicts later medical record diagnoses of autism spectrum disorder. Proc Natl Acad Sci U S A.. 2020 May 12;117(19):10609-10613. [PMID: 32341146]

*Simonoff E, Kent R, Stringer D, Lord C, Briskman J, Lukito S, Pickles A, Charman T, Baird G. Trajectories in Symptoms of Autism and Cognitive Ability in Autism From Childhood to Adult Life: Findings From a Longitudinal Epidemiological Cohort. J Am Acad Child Adolesc Psychiatry. 2020 Dec;59(12):1342-1352. [PMID: 31863881]

Tai C, Chang CW, Yu GQ, Lopez I, Yu X, Wang X, Guo W, Mucke L. Tau Reduction Prevents Key Features of Autism in Mouse Models. Neuron. 2020 May 6;106(3):421-437.e11. [PMID: 32126198]

Trakoshis S, Martínez-Cañada P, Rocchi F, Canella C, You W, Chakrabarti B, Ruigrok AN, Bullmore ET, Suckling J, Markicevic M, Zerbi V; MRC AIMS Consortium, Baron-Cohen S, Gozzi A, Lai MC, Panzeri S, Lombardo MV. Intrinsic excitation-inhibition imbalance affects medial prefrontal cortex differently in autistic men versus women. Elife. 2020 Aug 4;9:e55684. [PMID: 32746967]

Genetic and Environmental Factors

*Bai D, Marrus N, Yip BHK, Reichenberg A, Constantino JN, Sandin S. Inherited Risk for Autism Through Maternal and Paternal Lineage. Biol Psychiatry. 2020 Sep 15;88(6):480-487. [PMID: 32430199]

Bilinovich SM, Lewis K, Thompson BL, Prokop JW, Campbell DB. Environmental Epigenetics of Diesel Particulate Matter Toxicogenomics. Int J Environ Res Public Health. 2020 Oct 10;17(20):7386. [PMID: 33050454]

Chiang AH, Chang J, Wang J, Vitkup D. Exons as units of phenotypic impact for truncating mutations in autism. Mol Psychiatry. 2020 Oct 27. [PMID: 33110259]

Jensen M, Smolen C, Girirajan S. Gene discoveries in autism are biased towards comorbidity with intellectual disability. J Med Genet. 2020 Sep;57(9):647-652. [PMID: 32152248]

McDonald NM, Senturk D, Scheffler A, Brian JA, Carver LJ, Charman T, Chawarska K, Curtin S, Hertz-Piccioto I, Jones EJH, Klin A, Landa R, Messinger DS, Ozonoff S, Stone WL, Tager-Flusberg H, Webb SJ, Young G, Zwaigenbaum L, Jeste SS. Developmental Trajectories of Infants With Multiplex Family Risk for Autism: A Baby Siblings Research Consortium Study. JAMA Neurol. 2020 Jan 1;77(1):73-81. [PMID: 31589284]

Oulhote Y, Lanphear B, Braun JM, Webster GM, Arbuckle TE, Etzel T, Forget-Dubois N, Seguin JR, Bouchard MF, MacFarlane A, Ouellet E, Fraser W, Muckle G. Gestational Exposures to Phthalates and Folic Acid, and Autistic Traits in Canadian Children. Environ Health Perspect. 2020 Feb;128(2):27004. [PMID: 32073305]

*Satterstrom FK, Kosmicki JA, Wang J, Breen MS, De Rubeis S, An JY, Peng M, Collins R, Grove J, Klei L, Stevens C, Reichert J, Mulhern MS, Artomov M, Gerges S, Sheppard B, Xu X, Bhaduri A, Norman U, Brand H, Schwartz G, Nguyen R, Guerrero EE, Dias C; Autism Sequencing Consortium; iPSYCH-Broad Consortium, Betancur C, Cook EH, Gallagher L, Gill M, Sutcliffe JS, Thurm A, Zwick ME, Børglum AD, State MW, Cicek AE, Talkowski ME, Cutler DJ, Devlin B, Sanders SJ, Roeder K, Daly MJ, Buxbaum JD. Large-Scale Exome Sequencing Study Implicates Both Developmental and Functional Changes in the Neurobiology of Autism. Cell. 2020 Feb 6;180(3):568-584.e23. [PMID: 31981491]

Trost B, Engchuan W, Nguyen CM, Thiruvahindrapuram B, Dolzhenko E, Backstrom I, Mirceta M, Mojarad BA, Yin Y, Dov A, Chandrakumar I, Prasolava T, Shum N, Hamdan O, Pellecchia G, Howe JL, Whitney J, Klee EW, Baheti S, Amaral DG, Anagnostou E, Elsabbagh M, Fernandez BA, Hoang N, Lewis MES, Liu X, Sjaarda C, Smith IM, Szatmari P, Zwaigenbaum L, Glazer D, Hartley D, Stewart AK, Eberle MA, Sato N, Pearson CE, Scherer SW, Yuen RKC. Genome-wide detection of tandem DNA repeats that are expanded in autism. Nature. 2020 Oct;586(7827):80-86. [PMID: 32717741]

Raghavan R, Selhub J, Paul L, Ji Y, Wang G, Hong X, Zuckerman B, Fallin MD, Wang X. A prospective birth cohort study on cord blood folate subtypes and risk of autism spectrum disorder. Am J Clin Nutr. 2020 Nov 11;112(5):1304-1317 [PMID: 32844208]

Interventions

Andersen AM, Law JK, Marvin AR, Lipkin PH. Elopement Patterns and Caregiver Strategies. Journal of Autism and Developmental Disorders. 2020 Jun;50(6):2053-2063. [PMID: 30838492]

*Lindgren S, Wacker D, Schieltz K, Suess A, Pelzel K, Kopelman T, Lee J, Romani P, O'Brien M. A Randomized Controlled Trial of Functional Communication Training via Telehealth for Young Children with Autism Spectrum Disorder. J Autism Dev Disord. 2020 Dec;50(12):4449-4462. [PMID: 32300910]

McCamphill PK, Stoppel LJ, Senter RK, Lewis MC, Heynen AJ, Stoppel DC, Sridhar V, Collins KA, Shi X, Pan JQ, Madison J, Cottrell JR, Huber KM, Scolnick EM, Holson EB, Wagner FF, Bear MF. Selective inhibition of glycogen synthase kinase 3α corrects pathophysiology in a mouse model of fragile X syndrome. Sci Transl Med. 2020 May 20;12(544). [PMID: 32434848]

*Rogers SJ, Yoder P, Estes A, Warren Z, McEachin J, Munson J, Rocha M, Greenson J, Wallace L, Gardner E, Dawson G, Sugar CA, Hellemann G, Whelan F A Multisite Randomized Controlled Trial Comparing the Effects of Intervention Intensity and Intervention Style on Outcomes for Young Children With Autism. J Am Acad Child Adolesc Psychiatry. 2020 Aug 24. [PMID: 32853704]

*Sandbank M, Bottema-Beutel K, Crowley S, Cassidy M, Dunham K, Feldman JI, Crank J, Albarran SA, Raj S, Mahbub P, Woynaroski TG. Project AIM: Autism intervention meta-analysis for studies of young children. Psychol Bull. 2020 Jan;146(1):1-29. [PMID: 31763860]

Solish A, Klemencic N, Ritzema A, Nolan V, Pilkington M, Anagnostou E, Brian J. Effectiveness of a modified group cognitive behavioral therapy program for anxiety in children with ASD delivered in a community context. Mol Autism. 2020 May 13;11(1):34. [PMID: 32404180]

Steinbrenner JR, Odom SL, Hall LJ, Hume K. Moving Beyond Fidelity: Assessing Implementation of a Comprehensive Treatment Program for Adolescents With Autism Spectrum Disorder. Exceptional Children. 2020;86(2):137-154. [https://doi.org/10.1177/0014402919855321]

*Wood JJ, Kendall PC, Wood KS, Kerns CM, Seltzer M, Small BJ, Lewin AB, Storch EA. Cognitive Behavioral Treatments for Anxiety in Children With Autism Spectrum Disorder: A Randomized Clinical Trial. JAMA Psychiatry. 2020 May 1;77(5):474-483. [PMID: 31755906]

Curtin C, Hyman SL, Boas DD, Hassink S, Broder-Fingert S, Ptomey LT, Gillette MD, Fleming RK, Must A, Bandini LG. Weight Management in Primary Care for Children With Autism: Expert Recommendations. Pediatrics. 2020 Apr;145(Suppl 1):S126-S139. [PMID: 32238539]

Services and Supports

Bellesheim KR, Kizzee RL, Curran A, Sohl K. ECHO Autism: Integrating Maintenance of Certification with Extension for Community Healthcare Outcomes Improves Developmental Screening. J Dev Behav Pediatr. 2020 Aug;41(6):420-427. [PMID: 32735419]

*Benevides TW, Carretta HJ, Rust G, Shea L. Racial and ethnic disparities in benefits eligibility and spending among adults on the autism spectrum: A cohort study using the Medicare Medicaid Linked Enrollees Analytic Data Source. PLoS One. 2021 May 25;16(5). [PMID: 34032811]

*Bilaver LA, Sobotka SA, Mandell DS. Understanding Racial and Ethnic Disparities in Autism-Related Service Use Among Medicaid-Enrolled Children. J Autism Dev Disord. 2020 Nov 21. [PMID: 33219917]

Kim I, Dababnah S, Lee J. The Influence of Race and Ethnicity on the Relationship between Family Resilience and Parenting Stress in Caregivers of Children with Autism. J Autism Dev Disord. 2020 Feb;50(2):650-658. [PMID: 31667651]

Mazurek MO, Parker RA, Chan J, Kuhlthau K, Sohl K.; ECHO Autism Collaborative. Effectiveness of the Extension for Community Health Outcomes Model as Applied to Primary Care for Autism: A Partial Stepped-Wedge Randomized Clinical Trial. JAMA Pediatr. 2020 May 1. [PMID: 32150229]

McClain MB, Shahidullah JD, Mezher KR, Haverkamp CR, Benallie KJ, Schwartz SE. School-Clinic Care Coordination for Youth with ASD: A National Survey of School Psychologists. J Autism Dev Disord. 2020 Sep;50(9):3081-3091. [PMID: 30877418]

Pugliese CE, Ratto AB, Granader Y, Dudley KM, Bowen A, Baker C, Anthony LG. Feasibility and preliminary efficacy of a parent-mediated sexual education curriculum for youth with autism spectrum disorders. Autism. 2020 Jan;24(1):64-79. [PMID: 31096780]

Stadnick NA, Lau AS, Dickson KS, Pesanti K, Innes-Gomberg D, Brookman-Frazee L. Service use by youth with autism within a system-driven implementation of evidence-based practices in children's mental health services. Autism. 2020 Nov;24(8):2094-2103 [PMID: 32686469]

*Wehman P, Schall C, McDonough J, Sima A, Brooke A, Ham W, Whittenburg H, Brooke V, Avellone L, Riehle E. Competitive Employment for Transition-Aged Youth with Significant Impact from Autism: A Multi-site Randomized Clinical Trial. J Autism Dev Disord. 2020 Jun;50(6):1882-1897. [PMID: 30825082]

Wiggins LD, DiGuiseppi C, Schieve L, Moody E, Soke G, Giarelli E, Levy S. Wandering Among Preschool Children with and Without Autism Spectrum Disorder. J Dev Behav Pediatr. 2020 May;41(4):251-257. [PMID: 31977588]

Lifespan

Anderson KA, Hemmeter J, Rast JE, Roux AM, Shattuck PT. Trends in Supplemental Security Income Payments to Adults With Autism. Psychiatr Serv. 2020 Jun 1;71(6):602-607. [PMID: 32264799]

*Hall JP, Batza K, Streed CG Jr, Boyd BA, Kurth NK. Health Disparities Among Sexual and Gender Minorities with Autism Spectrum Disorder. J Autism Dev Disord. 2020 Aug;50(8):3071-3077. [PMID: 32056117]

Jeste S, Hyde C, Distefano C, Halladay A, Ray S, Porath M, Wilson RB, Thurm A. Changes in access to educational and healthcare services for individuals with intellectual and developmental disabilities during COVID-19 restrictions. J Intellect Disabil Res. 2020 Sep 17. [PMID: 32939917]

McCauley JB, Pickles A, Huerta M, Lord C. Defining Positive Outcomes in More and Less Cognitively Able Autistic Adults. Autism Res. 2020 Sep;13(9):1548-1560. [PMID: 32851813]

Moseley RL, Druce T, Turner-Cobb JM. 'When my autism broke': A qualitative study spotlighting autistic voices on menopause. Autism. 2020 Aug;24(6):1423-1437. [PMID: 32003226]

Nicolaidis C, Schnider G, Lee J, Raymaker DM, Kapp SK, Croen LA, Urbanowicz A, Maslak J. Development and psychometric testing of the AASPIRE Adult Autism Healthcare Provider Self-Efficacy Scale. Autism. 2020 Aug 28. [PMID: 32859135]

*Nimmo-Smith V, Heuvelman H, Dalman C, Lundberg M, Idring S, Carpenter P, Magnusson C, Rai D. Anxiety Disorders in Adults with Autism Spectrum Disorder: A Population-Based Study. J Autism Dev Disord. 2020 Jan;50(1):308-318. [PMID: 31621020]

Pohl AL, Crockford SK, Blakemore M, Allison C, Baron-Cohen S. A comparative study of autistic and nonautistic women's experience of motherhood. Mol Autism. 2020 Jan 6;11(1):3. [PMID: 31911826]

McGhee Hassrick E, Sosnowy C, Graham Holmes L, Walton J, Shattuck PT. Social Capital and Autism in Young Adulthood: Applying Social Network Methods to Measure the Social Capital of Autistic Young Adults. Autism Adulthood. 2020 Sep 1;2(3):243-254. [PMID: 32954220]

Research Infrastructure and Prevalence

*Dietz PM, Rose CE, McArthur D, Maenner M. National and State Estimates of Adults with Autism Spectrum Disorder. J Autism Dev Disord. 2020 Dec;50(12):4258-4266 [PMID: 32390121]

*Hand BN, Angell AM, Harris L, Carpenter LA. Prevalence of physical and mental health conditions in Medicare-enrolled, autistic older adults. Autism. 2020 Apr;24(3):755-764. [PMID: 31773968]

*Maenner MJ, Shaw KA, Baio J; EdS1, Washington A, Patrick M, DiRienzo M, Christensen DL, Wiggins LD, ettygrove S, Andrews JG, Lopez M, Hudson A, Baroud T, Schwenk Y, White T, Rosenberg CR, Lee LC, Harrington RA, Huston M, Hewitt A; PhD-7, Esler A, Hall-Lande J, Poynter JN, Hallas-Muchow L, Constantino JN, Fitzgerald RT, Zahorodny W, Shenouda J, Daniels JL, Warren Z, Vehorn A, Salinas A, Durkin MS, Dietz PM. Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016. MMWR Surveill Summ. 2020 Mar 27;69(4):1-12. Erratum in: MMWR Morb Mortal Wkly Rep. 2020 Apr 24;69(16):503. [PMID: 32214087]

McCormick CEB, Kavanaugh BC, Sipsock D, Righi G, Oberman LM, Moreno De Luca D, Gamsiz Uzun ED, Best CR, Jerskey BA, Quinn JG, Jewel SB, Wu PC, McLean RL, Levine TP, Tokadjian H, Perkins KA, Clarke EB, Dunn B, Gerber AH, Tenenbaum EJ, Anders TF; Rhode Island Consortium for Autism Research and Treatment (RI-CART), Sheinkopf SJ, Morrow EM. Autism Heterogeneity in a Densely Sampled U.S. Population: Results From the First 1,000 Participants in the RI-CART Study. Autism Res. 2020 Mar;13(3):474-488. [PMID: 31957984]

*Shaw KA, Maenner MJ, Baio J; EdS1, Washington A, Christensen DL, Wiggins LD, Pettygrove S, Andrews JG, White T, Rosenberg CR, Constantino JN, Fitzgerald RT, Zahorodny W, Shenouda J, Daniels JL, Salinas A, Durkin MS, Dietz PM. Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Early Autism and Developmental Disabilities Monitoring Network, Six Sites, United States, 2016. MMWR Surveill Summ. 2020 Mar 27;69(3):1-11. [PMID: 32214075]

About the IACC

The Interagency Autism Coordinating Committee (IACC) is a Federal advisory committee charged with coordinating Federal activities concerning autism spectrum disorder (ASD) and providing advice to the Secretary of Health and Human Services (HHS) on issues related to autism. The Committee was established by Congress under the Children's Health Act of 2000, reconstituted under the Combating Autism Act (CAA) of 2006, and renewed most recently under the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act of 2019.

Membership of the Committee includes a wide array of Federal agencies involved in ASD research and services. Public stakeholders are also members of the Committee, including self-advocates, family members of children and adults on the autism spectrum, advocates, service providers, and researchers, representing a variety of perspectives from within the autism community. The IACC membership is composed to ensure that the Committee is equipped to address the wide range of issues and challenges faced by individuals and families affected by autism.

Under the CAA and subsequent reauthorizations, the IACC is required to (1) develop and annually update a strategic plan for ASD research, (2) develop and annually update a summary of advances in ASD research, and (3) monitor Federal activities related to ASD.

Through these and other activities, the IACC provides guidance to HHS and partners with other Federal departments, Federal agencies, research and advocacy organizations, and the broader autism community to accelerate research and enhance services with the goal of addressing the needs of and improving the quality of life of people on the autism spectrum and their families.

For more information about the IACC, see https://iacc.hhs.gov.

Interagency Autism Coordinating Committee Member Roster

Chair

Federal Members

Public Members

Office of Autism Research Coordination Staff

Cover Design
NIH Medical Arts Branch

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All material appearing in this report is in the public domain and may be reproduced or copied. A suggested citation follows.

Suggested Citation
Interagency Autism Coordinating Committee (IACC). 2020 IACC Summary of Advances in Autism Research. May 2022. Retrieved from the U.S. Department of Health and Human Services Interagency Autism Coordinating Committee website https://iacc.hhs.gov/publications/summary-of-advances/2020/.