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photos of IACC meetings

Archived Video

2023

Autism Awareness Month Art Event Poster with pictures of David Downes, Sheila Benedis, Jeremy Sicile-Kira, Ronaldo Byrd
April 14, 2023
The National Institute of Mental Health and the Office of Autism Research Coordination's 10th Annual Autism Awareness Month special event featured 4 artists, who talked about how their experiences as autistic individuals has shaped their artistic expression.
Susan DAniels, Camille Proctor, Lydia Brown, Gyasi Burks Abbott, Crystal Hernandez, Jill Locke, Brian Boyd, and Magana Sandy on a Zoom call
April 4, 2023
The April IACC meeting included updates from the Centers for Disease Control and Prevention on autism prevalence data and a panel presentation on racial equity and racial/ethnic disparities in autism.
Susan Daniels, Scott Robertson, Nakela Cook, Meghan Warren
January 18, 2023
This virtual meeting included approval of the 2021-2023 IACC Strategic Plan for Autism Research, Services, and Policy, a discussion on evidence for supportive services, and a presentation from PCORI.

2022

Susan Daniels, Joshua Gordon and John Robison during the October 2022 IACC Full Committee meeting
October 26, 2022
During the IACC Full Committee Meeting, which took place virtually, committee members discussed upcoming IACC publications and heard presentations on employment and aging.
Susan Daniels hosting July 2022 IACC Working Group meeting virtually
July 13-14, 2022
At the July working group meeting, IACC members discussed research, services, and policy priorities for the upcoming 2021-2022 IACC Strategic Plan.
David Siegel and other workers in a group at Exceptional Minds
April 27, 2022
The National Institute of Mental Health and the Office of Autism Research Coordination's 9th Annual Autism Awareness Month Special Event, featured Exceptional Minds, a non-profit organization in Los Angeles, California that prepares young adults on the autism spectrum for careers in the digital arts and entertainment industry.
Susan Daniels, Joshua Gordon, Scott Robertson, and Tara Schwetz
April 13-14, 2022
The April IACC meeting included a welcome from Acting Principal Deputy Director Dr. Tara Schwetz as well as presentations on housing and communication needs.
Susan Daniels at ASF 2022
March 30, 2022
In her Day of Learning talk, acting HHS National Autism Coordinator Dr. Susan Daniels unpacks the role of the Interagency Autism Coordinating Committee (IACC) in engaging the autism community to help shape new federal agendas for autism research, services and policy, highlighting current challenges, trends and opportunities.
Joshua Gordan, Susan Daniels, Catherine Lord, and Dena Gassner Taryn Williams during January 2022 IACC Meeting
January 19, 2022
The Committee discussed the CDC’s autism prevalence update, The Lancet commission on the future of autism research, and committee business.

2021

Joshua Gordan, Susan Daniels, Sam Crane, and Taryn Williams during October 2021 IACC Meeting
October 13-14, 2021
The second meeting of the new IACC took place on October 13-14, 2021. The Committee discussed the IACC Strategic Plan, employment, Kevin and Avonte’s Law, mental health, and more.
Joshua Gordan during July 2021 IACC Meeting
July 21-22, 2021
The first meeting of the latest iteration of the IACC included a presentation on the impact, response, and recovery of COVID-19, a committee discussion on racial equity and health disparities in ASD, and an update from the National Autism Coordinator.

2019

Tom Insel at ASF West 2019
October 17, 2019
During Autism Science Foundation's 2019 Day of Learning - San Francisco, former IACC Chair Dr. Tom Insel discussed technology solutions for people on the autism spectrum.
July 2019 IACC Meeting
July 24, 2019
The final meeting of the most recent iteration of the IACC included a presentation from a community partnership in Baton Rouge, LA that coordinates services for people on the autism spectrum, and discussions on racial and ethnic disparities in autism.
July 2019 IACC Workshop
July 23, 2019
The Housing Working Group convened a workshop to discuss the housing needs of people on the autism spectrum. The workshop included presentations on housing issues and various disability housing initiatives from across the country.
John Robison
July 2019
John Elder Robison discusses his autism diagnosis, his experience as a parent of a child with autism, the William and Mary Neurodiversity Initiative, and the impact of the autistic community.
May 2019 IACC Workshop
May 21, 2019
The May IACC Workshop addressed mental health issues that affect people on the autism spectrum, including anxiety and OCD, depression and suicide, self-injurious and aggressive behaviors, and mental health services.
April Autism Awareness Month Special Event
April 23, 2019
This year’s Autism Awareness Month Special Event featured four autistic female authors and editors, who discussed their books and life experiences as women on the spectrum.
Kevin Pelphrey
April 2019
Dr. Pelphrey discusses his connection to autism, recent findings, the biology of ASD in girls, and his experience as a member of the IACC.
April 2019 IACC Meeting
April 17, 2019
The April meeting included a presentation from Canadian Parliament Member Mike Lake. It also included a panel presentation on disability employment initiatives, an update from the Federal Communications Commission, and an overview of the new CDC Data Visualization Platform.
Joshua Gordon at ASF Day of Learning 2019
March 27, 2019
Dr. Joshua Gordon, NIMH Director and IACC Chair, talks about the latest in autism research at Autism Science Foundation's 2019 Day of Learning.
January 2019 IACC Meeting
January 16, 2019
The January meeting included a Housing Policy Update from the Centers for Medicare and Medicaid Services, the TRICARE Autism Care Demonstration, and a panel presentation on wandering and criminal justice issues for people with disabilities.
Samantha Crane
January 2019
Samantha Crane discusses her background, the mission of the Autistic Self Advocacy Network, and how the IACC can help the autism community.

2018

October 2018 IACC Meeting
October 17, 2018
The October meeting included presentations on Unintended Injury in Autistic Individuals, Financial Planning/ABLE Accounts for People with Disabilities, and an update of the IACC Strategic Plan.
September 2018 IACC Workshop
September 27, 2018
The workshop was held to discuss health epidemiology, patient-provider interactions, and co-occurring health conditions that affect people with ASD.
Susan Daniels
April 25, 2018
Dr. Susan Daniels, Dr. Usifo Edward Asikhia, Dr. Tracy Freeman, and Morénike Giwa Onaiwu appeared on Straight Talk Africa to discuss issues related to ASD.
April 2018 IACC Meeting
April 19, 2018
The meeting included a panel on employment for people on the autism spectrum, a presentation on aggression and self-injury for the severely affected end of the spectrum, committee business, and public comments.
Joshua Gordon
April 2018
Dr. Gordon discusses his connection to autism, what he's learned from the autism community, current research initiatives at NIH, his experience on the IACC, and more.
January 2018 IACC Meeting
January 17, 2018
The meeting included presentations from the NIH Autism Spectrum Disorder Pediatric, Early Detection, Engagement and Services (ASD PEDS) Network on their research on early screening, and the HHS Indian Health Service on their autism and disability programs. There was also a discussion of the 2017 Summary of Advances.

2017

October 2017 IACC Meeting
October 24, 2017
The meeting included presentations on suicide and autism, an update on the CDC Study to Explore Early Development (SEED), and the 2017 Report to Congress: Young Adults and Transitioning Youth with Autism Spectrum Disorder.
July 2017 IACC Meeting
July 26, 2017
The meeting included presentations on wandering by the National Autism Association and the Interactive Autism Network, an update from Madison House Autism Foundation on their new initiative, Autism After 21, a discussion of the 2016-2017 IACC Strategic Plan, and more.
As One Movie Screening
April 25, 2017
The National Institute of Mental Health and Office of Autism Research Coordination hosted this special event for National Autism Awareness Month. The event featured a screening of the documentary film As One: The Autism Project followed by a discussion with the film director, Ms. Hana Makki, and Ms. Sharifa Yateem, a behavioral therapist who worked with the children and families featured in the film.
January 13, 2017
To discuss business, updates, and issues related to ASD research and services activities. The Committee will discuss updates of the IACC Strategic Plan.

2016

October 26, 2016
To discuss business, updates, and issues related to ASD research and services activities. The Committee will discuss updates of the IACC Strategic Plan.
July 19, 2016
To discuss business, updates and issues related to ASD research and services activities. The committee will discuss the next update of the IACC Strategic Plan.
April 19, 2016
To discuss business, updates and issues related to ASD research and services activities. The committee will discuss the next update of the IACC Strategic Plan.
April 11, 2016
Mr. John Donvan and Ms. Caren Zucker will discuss autism's past, including some new findings, and how rediscovering that past can advise the future for those who have autism, their families, and for those researching and treating it.
February 19, 2016
To discuss the state of the science with regard to onset patterns in ASD and related disorders, including developmental regression, and the biological mechanisms that may account for these onset patterns.
January 12, 2016
To discuss business, updates and issues related to ASD research and services activities. The committee will discuss the next update of the IACC Strategic Plan.

2015

November 17, 2015
The newly appointed IACC will hold their first meeting to discuss ASD research and services activities.

2014

‎September 23, 2014
The workshop will focus on a range of co-occurring health conditions in individuals with ASD that are under-recognized in clinical and services settings, as well as how to best support research, increased community/provider awareness, and other activities to improve the quality of life of those with ASD who are affected by these conditions.
July 8, 2014
To discuss committee business, updates and issues related to ASD research and services activities.
April 8, 2014
To discuss committee business, updates and issues related to ASD research and services activities.
January 14, 2014
To discuss and finalize the 2013 IACC Strategic Plan Update and discuss committee business, updates and issues related to ASD research and services activities.

2013

November 15, 2013
The workshop will feature discussions between IACC members and external subject matter and community experts regarding updates from the field and from the community that the committee may consider when developing the 2013 update of the IACC Strategic Plan.
July 9, 2013
To discuss committee business, updates and issues related to ASD research and services activities.
April 9, 2013
The committee will discuss autism related issues and will host activities in recognition of Autism Awareness Month and World Autism Awareness Day.
January 29, 2013
The committee will discuss updates on ASD research and services activities, discuss plans for the 2012 IACC Summary of Advances and plans for the update of the IACC Strategic Plan for ASD Research.

2012

December 18, 2012
The IACC will review and approve the final 2012 update of the IACC Strategic Plan for Autism Spectrum Disorder Research. Please note: Only the oral public comments session was webcasted, the session started at approximately 10:15 a.m. and ended after the public comment session was finished.
July 10, 2012
The Secretary of HHS will welcome new members of the committee and thank previous members for their service. The meeting will include presentations on autism research and policy issues, and the committee will discuss plans for future activities.

Presented by: Thomas Insel, Kathleen Sebelius, Michael Doyle, Christopher Smith, Kareem Dale, Michael Strautmanis, Alexa Posny, Francis Collins, Henry Claypool, Larry Wexler, Susan E. Swedo, Stuart Spielman, Peter Bell, Geraldine Dawson, Deborah Hirtz, Susan A. Daniels

2011

January 18, 2011
The purpose of the IACC meeting is to review and approve the final 2011 update of the IACC Strategic Plan for Autism Spectrum Disorder Research.

Presented by: Thomas Insel, Geri Dawson, Lee Grossman, Walter Koroshetz, Alison Singer, Cheryl Ulmer, Stuart Spielman, Jeffrey Sell, Sharon Lewis, Lyn Redwood, Alison Singer, Susan Daniels

2010

October 22, 2010
Invited speakers will give presentations on various aspects of autism spectrum disorder research and services and the IACC will discuss plans for the annual update of the IACC Strategic Plan for Autism Spectrum Disorder Research.

Presented by: Thomas Insel, Alexa Posny, Wendy Fournier, Lori McIIwain, Richard Frank, Kevin Pelphrey, Alice Kau, Regina Smith James, David Armstrong, Stephen Scherer, Gerald Fischbach, Ann Wagner, Michael Huerta
July 16, 2010
The purpose of this IACC meeting is to listen to presentations on various aspects of autism spectrum disorder research and services and to discuss plans for the annual update of the IACC Strategic Plan for Autism Spectrum Disorders Research.

Presented by: Thomas Insel, Michael Ganz, Issac Pessah, Philip Landrigan, Eric Courchesne, Denise Resnik, Carol Quirk
April 30, 2010
The purpose of this IACC meeting is to welcome the new members of the IACC and to discuss IACC activities including the 2009 IACC Summary of Advances and the 2009 Portfolio Analysis. There will also be presentations on the Autism Treatment Network, autism in the DSM-V, stem cell research, nonverbal autism and comparative effectiveness research.

Presented by: Thomas Insel, Kathleen Sebelius, Francis Collins, Geraldine Dawson, Susan Swedo, James Battey, Helen Tager-Flusberg, Ann Wagner, Rosaly Correa-de-Araujo
January 19, 2010
To discuss the recommendations for updating the IACC Strategic Plan for Autism Spectrum Disorder Research.

Presented by: Thomas Insel, Andy Shih, Andrew Feinberg, Cathy Rice, Linda Birnbaum

2009

November 10, 2009
To discuss recommendations for the annual update of the IACC Strategic Plan for Autism Spectrum Disorder Research.

Presented by: Thomas Insel
October 23, 2009
Includes a presentation by a panel of parents of children with autism, a presentation on Applied Behavioral Analysis by Dr. Tony Charman, and discussion of recommendations for updating the IACC Strategic Plan for Autism Spectrum Disorders Research.

Presented by: Thomas Insel, Peter Bell, Tony Charman, Michael Huerta, Ellen Blackwell, Lee Grossman, Chris DeGraw
September 30, 2009 - October 1, 2009
The workshop will cover the six questions in the strategic plan, focusing on noted research gaps, new opportunities for advancing research and knowledge about ASD, and the prioritization of short-term and long-term objectives in the plan. The format of the meeting will include presentations by invited panelists (clinicians, researchers and people with ASD or family members of people with ASD), as well as discussions by panelists, the public and members of the IACC.

Presented by: (Panel 4) Robin Hendren, Eric Samstad, Edwin Cook, Bryan King, Joyce Chung, Sharisa Kochmeister, Thomas Insel, Stephen Shore, (Panel 5) Tec Chapman, Cathy Pratt, Peter Gerhardt, David Mandell, Ann Gibbons, Marjorie Solomon, Ellen Blackwell, Christine McKee
September 30, 2009 - October 1, 2009
The workshop will cover the six questions in the strategic plan, focusing on noted research gaps, new opportunities for advancing research and knowledge about ASD, and the prioritization of short-term and long-term objectives in the plan. The format of the meeting will include presentations by invited panelists (clinicians, researchers and people with ASD or family members of people with ASD), as well as discussions by panelists, the public and members of the IACC.

Presented by: (Panel 1) Geraldine Dawson, Rebecca Landa, Deborah Fein, Catherine Lord, Paula Durbin-Westby, Nancy Wiseman, Yvette Janvier, Jennifer Johnson, (Panel 2) Pauline Filipek, Sarah Spence, David Amaral, Emanuel DiCicco-Bloom, Ashura Buckley, Denise Resnick, Alison Singer, Edwin Trevathan, (Panel 3) Robin Hansen, Susan Swedo, Craig Newschaffer, Matthew State, Lars Perner, Jeffrey Sell, Lee Grossman, Story Landis
July 24, 2009
The meeting will begin with a 30 minute presentation by members of the IACC, followed by an open microphone session in which comments may be shared on topics related to services for people with ASD. Topics of particular interest include: Questions 5 and 6 of the IACC Strategic Plan for ASD Research: "Where can I turn for services?" and "What does the future hold?" Additional suggested topics: Services for adults, community issues, family support, school services, provider services, infrastructure, evidence-based services and supports, health and safety, early diagnosis, transition to adulthood, therapies and treatments, and health and dental care.

Presented by: Ellen Blackwell, Lee Grossman
July 15, 2009
In the morning, the IACC is hosting a joint meeting with the National Vaccine Advisory Committee (NVAC) Vaccine Safety Working Group to discuss vaccine safety and autism. Other agenda items include presentations on the NIH Autism Centers of Excellence and the National Database for Autism Research (NDAR), and discussion of services-related activities and analysis of the autism research portfolio.

Presented by: Thomas Insel, Andy Pavia, Alice Kau, Edwin Cook, Michael Huerta, Ellen Blackwell, Lee Grossman
May 4, 2009
To discuss the annual strategic plan updating process and services and supports activities.

Presented by: Thomas Insel, Susan Swedo, Joanne Cafiero, Dora Raymaker, Josephine Briggs
 
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